Community Projects
Survey basics View the basic results from the Post-Drug Symptom Survey
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RARE DISEASE DAY 2021: Announcing PFSNetwork.org, a watershed moment for PFS awareness. PLEASE READ AND SHARE
Dear fellow PFS patients, As providers of the largest and longest-established patient platform, we are shouldering an unsustainable burden. This is a serious disease, and is costing the lives of the worst affected. The … |
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29 | 393 | March 4, 2021 |
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Post-Drug Syndrome Survey FAQ. Survey NOW LIVE - Please Participate
Hello everyone, Please participate in a Post-Drug Syndrome Survey We are requesting the participation of patients who have suffered persistent health damage following use and discontinuation of certain drugs and substan… |
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356 | 18644 | January 12, 2021 |
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YouTube Video Project: Guide, Template and Submission Instructions
Please read this guide in full to make and submit a video for our YouTube Project. If you already have a video to submit, or have further questions, please send a message to @Northern_Star, @Dubya_B, @Greek or @Sugarhous… |
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3 | 1823 | September 1, 2020 |
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New user? START HERE
Hello, If you are a new member suffering from PFS or an existing member wondering what steps you can personally take to get involved, help advance the issue and make your voice heard, please read the following guide. P… |
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1 | 9099 | October 1, 2019 |
| Written stories for awareness |
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10 | 247 | March 4, 2021 |
| Survey Results: Information about Drug Taken |
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20 | 1340 | January 14, 2021 |
| Female Sexual Function Index (FSFI) Results |
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15 | 723 | December 3, 2020 |
| 23andme Patient Data Analysis |
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66 | 2577 | October 31, 2020 |
| Survey Results: Comparing Symptoms from Finasteride, Isotretinoin and Anti-Depressants |
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25 | 2181 | August 14, 2020 |
| New Propeciahelp Video Project: What is PFS? |
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2 | 371 | May 8, 2020 |
| Have you signed up to take the post drug syndrome survey? This topic is for you |
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1 | 1093 | August 3, 2019 |
| Syndrome Reaction to Orgasm and Comparison with POIS |
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4 | 604 | February 24, 2020 |
| RAND 36-Item Health Survey Results |
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1 | 499 | December 1, 2019 |
| Additional Changes |
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1 | 352 | November 23, 2019 |
| Quality of Life Impact |
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1 | 502 | November 18, 2019 |
| Short Assessment of Patient Satisfaction (SAPS) Results |
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2 | 561 | November 17, 2019 |
| Depression Anxiety Stress Scales (DASS) Results |
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5 | 526 | October 31, 2019 |
| Now closed: Are you a UK member who would you like to tell your story on the BBC News website and national TV? |
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12 | 551 | February 3, 2020 |
| International Index of Erectile Function (IIEF) Results |
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3 | 597 | October 27, 2019 |
| PFS resource pack: letter and study abstracts for your doctor |
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1 | 866 | October 13, 2019 |
| Guide to using new feature: Therapeutic Outcomes and Notable Reactions Reporting Form |
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4 | 634 | August 19, 2019 |
| Guide to using new feature: Clinical Tests Reporting Form |
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1 | 354 | August 19, 2019 |
| Survey Results: Targets |
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4 | 650 | June 9, 2019 |
| Survey Results: Patient Demographics |
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1 | 580 | June 8, 2019 |
| Survey Results: Quitting the Drug |
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1 | 652 | June 7, 2019 |
| :tada: First survey data: Age of patients |
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8 | 637 | May 26, 2019 |