Community Projects


Survey basics View the basic results from the Post-Drug Symptom Survey
Topic Replies Views Activity
Post-Drug Syndrome Survey FAQ. Survey NOW LIVE - Please Participate
Community Projects
finasteride ,  ssri ,  accutane ,  survey

Hello everyone, Please participate in a Post-Drug Syndrome Survey We are requesting the participation of patients who have suffered persistent health damage following use and discontinuation of certain drugs and substan…

358 19581 April 2, 2021
YouTube Video Project: Guide, Template and Submission Instructions
Community Projects

Please read this guide in full to make and submit a video for our YouTube Project. If you already have a video to submit, or have further questions, please send a message to @Northern_Star, @Dubya_B, @Greek or @Sugarhous…

3 2014 September 1, 2020
New user? START HERE
Community Projects

Hello, If you are a new member suffering from PFS or an existing member wondering what steps you can personally take to get involved, help advance the issue and make your voice heard, please read the following guide. P…

1 10115 October 1, 2019
RARE DISEASE DAY 2021: Announcing PFSNetwork.org, a watershed moment for PFS awareness. PLEASE READ AND SHARE
Community Projects
46 1112 March 21, 2021
Guide to using new feature: Clinical Tests Reporting Form
Community Projects
1 439 August 19, 2019
Written stories for awareness
Community Projects
10 311 March 4, 2021
Survey Results: Information about Drug Taken
Survey basics
20 1429 January 14, 2021
Female Sexual Function Index (FSFI) Results
Survey basics
15 778 December 3, 2020
23andme Patient Data Analysis
Community Projects
66 2672 October 31, 2020
Survey Results: Comparing Symptoms from Finasteride, Isotretinoin and Anti-Depressants
Survey basics
25 2280 August 14, 2020
New Propeciahelp Video Project: What is PFS?
Community Projects
2 396 May 8, 2020
Have you signed up to take the post drug syndrome survey? This topic is for you
Community Projects
1 1137 August 3, 2019
Syndrome Reaction to Orgasm and Comparison with POIS
Survey basics
4 646 February 24, 2020
RAND 36-Item Health Survey Results
Survey basics
1 541 December 1, 2019
Additional Changes
Survey basics
1 373 November 23, 2019
Quality of Life Impact
Survey basics
1 536 November 18, 2019
Short Assessment of Patient Satisfaction (SAPS) Results
Survey basics
2 636 November 17, 2019
Depression Anxiety Stress Scales (DASS) Results
Survey basics
5 594 October 31, 2019
Now closed: Are you a UK member who would you like to tell your story on the BBC News website and national TV?
Community Projects
12 570 February 3, 2020
International Index of Erectile Function (IIEF) Results
Survey basics
3 651 October 27, 2019
PFS resource pack: letter and study abstracts for your doctor
Community Projects
1 915 October 13, 2019
Guide to using new feature: Therapeutic Outcomes and Notable Reactions Reporting Form
Community Projects
4 661 August 19, 2019
Survey Results: Targets
Survey basics
4 682 June 9, 2019
Survey Results: Patient Demographics
Survey basics
1 603 June 8, 2019
Survey Results: Quitting the Drug
Survey basics
1 684 June 7, 2019
:tada: First survey data: Age of patients
Survey basics
8 667 May 26, 2019