Latest Community Projects topics

Topic	Replies	Views	Activity
New user? START HERE Community Projects Hello, If you are a new member suffering from PFS or an existing member wondering what steps you can personally take to get involved, help advance the issue and make your voice heard, please read the following guide. P…	1	12374	October 1, 2019
Post-Drug Syndrome Survey FAQ. Survey NOW LIVE - Please Participate Community Projects finasteride , ssri , accutane , survey Hello everyone, Please participate in a Post-Drug Syndrome Survey We are requesting the participation of patients who have suffered persistent health damage following use and discontinuation of certain drugs and substan…	363	21480	July 31, 2021
Survey Results: Information about Drug Taken Survey basics	22	1706	August 15, 2021
RARE DISEASE DAY 2021: Announcing PFSNetwork.org, a watershed moment for PFS awareness. PLEASE READ AND SHARE Community Projects	46	1512	March 21, 2021
Guide to using new feature: Clinical Tests Reporting Form Community Projects	1	532	August 19, 2019
Written stories for awareness Community Projects	10	410	March 4, 2021
Female Sexual Function Index (FSFI) Results Survey basics	15	965	December 3, 2020
23andme Patient Data Analysis Community Projects	66	2883	October 31, 2020
YouTube Video Project: Guide, Template and Submission Instructions Community Projects	3	2367	September 1, 2020
Survey Results: Comparing Symptoms from Finasteride, Isotretinoin and Anti-Depressants Survey basics	25	2564	August 14, 2020
New Propeciahelp Video Project: What is PFS? Community Projects	2	442	May 8, 2020
Have you signed up to take the post drug syndrome survey? This topic is for you Community Projects	1	1257	August 3, 2019
Syndrome Reaction to Orgasm and Comparison with POIS Survey basics	4	718	February 24, 2020
RAND 36-Item Health Survey Results Survey basics	1	595	December 1, 2019
Additional Changes Survey basics	1	413	November 23, 2019
Quality of Life Impact Survey basics	1	588	November 18, 2019
Short Assessment of Patient Satisfaction (SAPS) Results Survey basics	2	775	November 17, 2019
Depression Anxiety Stress Scales (DASS) Results Survey basics	5	685	October 31, 2019
Now closed: Are you a UK member who would you like to tell your story on the BBC News website and national TV? Community Projects	12	625	February 3, 2020
International Index of Erectile Function (IIEF) Results Survey basics	3	760	October 27, 2019
PFS resource pack: letter and study abstracts for your doctor Community Projects	1	1029	October 13, 2019
Guide to using new feature: Therapeutic Outcomes and Notable Reactions Reporting Form Community Projects	4	753	August 19, 2019
Survey Results: Targets Survey basics	4	751	June 9, 2019
Survey Results: Patient Demographics Survey basics	1	647	June 8, 2019
Survey Results: Quitting the Drug Survey basics	1	750	June 7, 2019
:tada: First survey data: Age of patients Survey basics	8	711	May 26, 2019

New user? START HERE

Hello, If you are a new member suffering from PFS or an existing member wondering what steps you can personally take to get involved, help advance the issue and make your voice heard, please read the following guide. P…

1

12374

October 1, 2019

Post-Drug Syndrome Survey FAQ. Survey NOW LIVE - Please Participate

Community Projects

Hello everyone, Please participate in a Post-Drug Syndrome Survey We are requesting the participation of patients who have suffered persistent health damage following use and discontinuation of certain drugs and substan…