Update: this was to be part of the now cancelled Victoria Derbyshire programme, so currently this is not scheduled to happen.
It’s possible that the journalist involved may take it to another programme so this topic may be reopened.
In the meantime, please consider participating in our YouTube project.
I have been in contact with a journalist who is interested in covering our story. This is for a national television broadcaster and the story will appear both on television as a video package and online as a written piece.
We feel that the journalist in question is both sympathetic, professional and compassionate.
We have agreed to try and help find participants who are prepared to tell their story.
Crucially, we are looking for participants based in the UK. Anonymity is offered.
We would especially like to hear from people with Neuro-Cognitive Symptoms and or Physical Changes but would like to hear from as many people as possible who are willing to tell their story. Do not hesitate to come forward if you would like to hear more, even if you don’t think you are eligible. In case you missed it, anonymity has been offered.
This is a big opportunity for us to get more recognition and to increase the pressure on the companies who deny our position and continue to profit by selling these drugs.
Please come forward if you can help. Reply here or message me.