This message is to promote our GoFundMe project, which is suitable if you:
- Are supportive of our planned scientific study in 2022
- Are comfortable, or at least somewhat comfortable, discussing your condition with your immediate family
If that is you, or even if you are just enthusiastic about furthering scientific understanding to find an effective treatment for PFS, please read on. This issue requires the courage of patients now more than ever.
There is one simple but powerful action you can take to help us find an effective treatment for Post-Finasteride Syndrome.
Maximise the impact of your contribution to upcoming PFS research through your personal network.
While we have just reached 50% of our €80,000 fundraising target for planned research in 2022, not including further staff pledges, we must ensure not only is it funded urgently, but that we can act quickly upon any important results discovered and fund future research. This will not be achieved by maintaining the fundraising status quo.
Vulnerable patients cannot do this alone. We need the support of loved ones if we are to be successful.
That’s why, if you’re located in the United States, United Kingdom, Canada, Australia, Italy or Spain, we are asking you to take advantage of our GoFundMe fundraiser campaign to maximise the impact of your contribution.
This is the single most impactful thing you can do as a PFS patient or loved one. Nothing is more important.
If 100 patients raised €200 each from a small fundraiser, 2022 research could begin immediately. That’s equivalent to two donations of €100. If 100 patients raised €500 each, we would have a significant head-start on funding for any future projects.
You can find instructions on how to set up your fundraiser on our website, and it takes less than 15 minutes. Several patients have already set up a fundraiser and it has been very simple. PFS Network is registered as a charity on GoFundMe, so you do not need to manage funds or withdrawals. Simply set up the campaign and share with your family and friends.
Speaking about such a stigmatising and poorly understood condition is hard.
As patients suffering immensely, we understand how difficult it is to speak with your family and friends about PFS, and sometimes even seek their support. That’s why we’ve created some helpful tips and tools that we hope will make your conversations with loved ones easier.
- Familiarise your loved ones with the disease and show them you are not alone. You can do this by sharing content from our YouTube channel, such as our podcast series trailer or explainer video, or by sharing our Science page with them.
- Start small with your immediate family. You don’t need to seek support from dozens of friends to help. It only takes a few small contributions from immediate family to make a big difference.
- Remind your loved ones the future is not hopeless. A large community of patients and families working towards a shared goal can discover an effective treatment.
- Explain why research is so important, and why their support is crucial to find an effective treatment.
Every day that goes by without effective research is another day where PFS patients are traumatised and stigmatised.
We strongly encourage If you would prefer to simply make a donation instead, you can do so on our website.
PFS Network Team