Community Projects


Survey basics View the basic results from the Post-Drug Symptom Survey
Topic Replies Activity
Post-Drug Syndrome Survey FAQ. Survey NOW LIVE - Please Participate

Hello everyone, Please participate in a Post-Drug Syndrome Survey We are requesting the participation of patients who have suffered persistent health damage following use and discontinuation of certain drugs and substan…

330 February 13, 2020
YouTube Video Project: Guide, Template and Submission Instructions

Please read this guide in full to make and submit a video for our YouTube Project. If you already have a video to submit, please send a message to @Jaime or @Greek. Introduction We are asking patients with the bravery to…

1 October 3, 2019
What Can I Do? An Action Guide For New Members

Hello, If you are a new member suffering from PFS or an existing member wondering what steps you can personally take to get involved, help advance the issue and make your voice heard, please read the following guide. P…

1 October 1, 2019
23andme Patient Data Analysis 58 February 10, 2020
RAND 36-Item Health Survey Results 1 December 1, 2019
Syndrome Reaction to Orgasm and Comparison with POIS 3 November 26, 2019
Additional Changes 1 November 23, 2019
Quality of Life Impact 1 November 18, 2019
Female Sexual Function Index (FSFI) Results 12 November 17, 2019
Short Assessment of Patient Satisfaction (SAPS) Results 2 November 17, 2019
Survey Results: Information about Drug Taken 19 November 2, 2019
Depression Anxiety Stress Scales (DASS) Results 5 October 31, 2019
Now closed: Are you a UK member who would you like to tell your story on the BBC News website and national TV? 12 February 3, 2020
International Index of Erectile Function (IIEF) Results 3 October 27, 2019
PFS resource pack: letter and study abstracts for your doctor 1 October 13, 2019
Guide to using new feature: Therapeutic Outcomes and Notable Reactions Reporting Form 4 August 19, 2019
Guide to using new feature: Clinical Tests Reporting Form 1 August 19, 2019
Have you signed up to take the post drug syndrome survey? This topic is for you 1 August 3, 2019
Survey Results: Comparing Symptoms from Finasteride, Isotretinoin and Anti-Depressants 21 June 13, 2019
Survey Results: Targets 4 June 9, 2019
Survey Results: Patient Demographics 1 June 8, 2019
Survey Results: Quitting the Drug 1 June 7, 2019
:tada: First survey data: Age of patients 8 May 26, 2019