At the end of the day, we are probably talking about endocrine disruptors. A term could thereby be something like Post Endocrine Disruption Syndrome (PEDS).
Abdulmaged Traish from BU, who is a strong supporter of our cause, recently wrote this article where he is specifically talking about endocrine disruption:
Incidentally, @axolotl and myself had a call with him yesterday, and he said that he believes that many or even any substance that interrupts the endocrine system can cause what we call the Post Finasteride Syndrome (PFS). He believes that PFS, PSSD, PAS, etc. are all the same underlying biological problem. Prof. Traish is a basic scientist in the area of steroid biochemistry and steroid receptor signaling, has published more papers than many in his field, and knows what he is talking about.
EDC’s have been a hot topic for many years now (also related to BPA’s / plastics and other environmental factors). One such landmark article is this one, where the epigenetic effect of endocrine disruptors is also discussed:
The problem is pretty clear to smart people like Prof. Traish. It is just that the rest of the world must wake up to this now.
From a strategic point of view, we as a community must now focus on the bigger picture and stop segmenting ourselves by drugs. We should all come together in one place, and not split up our energy, efforts and visibility by running forums per substance, therapeutic approach (science vs. “home brew”) and language. By doing so, we are shooting ourselves in the foot. I believe that the place where we should all reunite is here, simply because we have the best infrastructure and domain visibility. This is not a Awor, Axo or anyone else forum, propeciahelp is a community platform and project, where anyone can participate and can join the team.
Second, we have to better characterize our communities. Our survey project is aimed at achieving this, outlined here:
Third, once we collect 23andMe raw data files from as many people as possible (see above), we will then hopefully find some genetic markers which predict our susceptibility to get this syndrome. Prof. Traish said that this would be a landmark achievement, and would cause the world to listen up. Such a finding could help us get significant government funding.
Our ultimate goal is to create a consortium of scientists from various fields, which will work on our problem. Other diseases have this too. The results of our community project will be very helpful in forming such a consortium. Therefore, please support this project through your participation. If you have not already done so, please read the announcement.