Propeciahelp site news and feedback thread

[gents93]

brain fog

[awor]

@awor

we need to perform an upgrade of our database server. The upgrade will be performed this weekend (Nov 24/25)

The upgrade and all maintenance work is complete. Site operation should be normal again.

[Mcbbould]

Hey Stupid question - but is there an easy way to find someones member story? Or do i need to search through all his/her activity?

Thanks!
M

[awor]

@Mcbbould

is there an easy way to find someones member story? Or do i need to search through all his/her activity?

At the moment you unfortunately have to search for it. Use search term for “PLEASE FILL IN THE FOLLOWING TEMPLATE” and then select member stories category and person you’re looking for in “Posted by” on the Advanced Search pane on the right. We’ve got plans to improve this, but have other high prio tasks we need to finish first.

[awor]

For some reason mails are currently not going through to Hotmail/Outlook.com accounts. If you would like to receive email alerts from us (for new private messages, etc.), please add the following email adress to your contacts:

noreply@propeciahelp.com

How to do this:

Step 1

Step 2

Step 3
Add the following email address to your contacts:
noreply@propeciahelp.com

Click “Create” and you’re done. You will now receive our emails again. I hope Microsoft will resolve this soon.

[axolotl]

Hey guys

Please see the following post announcing the new Coping and Connecting categories, along with the new integrated map feature:

New categories and forum features: Coping and Connecting

Hi guys, I’m pleased to announce, in an attempt to expand patient support networks, the addition of a top level category and a subcategory with a unique feature to enable patients to easily locate and connect with one another. New category: Coping Posts or topics with a focus on pharmaceutical or supplemental therapeutic attempts or member theories regarding etiology will be moved or removed from this category. This category is intended to expand the support focus of the website and provide …

[Jaime]

Hey Axo!

Could you inform the forum in any way of how many unique members have created accounts on here? I think it’s important data, but it’s really hard to estimate because there are many lurkers and nonposters, or people that have stopped posting.

[axolotl]

Hey, sure. There are nearly 5000 registered, including posters who are currently inactive for varying reasons. Propeciahelp has been in existence for over a decade now, and with prescription of these drugs increasing, unfortunately it’s needed more than ever.

[axolotl]

Hi guys,

Due to a technical issue posts this weekend have been lost. Unfortunately this could not be avoided. However, these have been exported, and I will try to put a few back that are obvious manually. If there was anything of note you would like me to pass you to re-post please send me a private message and i will paste it over.

Thanks and apologies for any inconvenience,

axo

[axolotl]

Hi all,

Two new site features are launching next weekend.

These are a system to record therapeutic outcomes and other notable reactions, as well as a clinical test reporting system. The systems to provide the results to patients are still in development, but when ready the data will be provided to patients who have completed the Post-Drug Syndrome Survey.

Topics explaining how to use these new systems are linked below. I hope you agree these are beneficial for the site and our shared issue.

Best,

Axo

Guide to using new feature: Therapeutic Outcomes and Notable Reactions Reporting Form

PLEASE NOTE: There is currently no known effective treatment for Post-Finasteride Syndrome and aggregate or individual indications through this system do not and cannot indicate a safety or efficacy profile for any therapeutic attempts. Propeciahelp.com does not recommend or endorse any treatment for PFS. Hi all, For many years people have wanted a better way to look at standardised aggregate and individual reports regarding subjective patient responses to their self-driven or prescribed the…

Guide to using new feature: Clinical Tests Reporting Form

Hi guys, We are pleased to announce a system for patients to report the results of their clinical tests. This provides an easy way to collect and ultimately present aggregate and individual test results. This topic is to explain how it works and how to use it. The graph icon at the top right of the forum (when viewed on a desktop or laptop computer) will provide you with a selection of links to all out patient data systems, including the Post-Drug Syndrome Survey, and the new Therapeutic Outco…

[axolotl]

A couple of updates:

We now have a concise place for all the important stuff: The Community Projects category.

This includes a clear guide for actions new members can take to help push the issue forward, as well as individual guides on how to participate in the many projects we have underway to take the issue to the next level. This includes the survey, 23andme submissions, our YouTube project and more.

We are intending a significant switch in strategy to outreach projects beginning in the new year to change things, but we can’t do it without your help. Please get involved now.

Additionally, owing to his new role heading our media team and as a patient contact, the member formerly known as smallballsbighope has changed his username to @Jaime. Sad, but for the best.

Best

[awor]

We increasingly have users from drugs other than finasteride in our community. To make it clearer who took what, we have added some visualization which shows which drug the user believes is causative of their persistent health problems. This is shown as a little colored box with a letter in it, next to avatar in posts:

finasteride: red with F
isotretinoin: orange with I
ad’s: blue with A
saw plametto: green with S
GnRH analogs: purple with G
Dutasteride: yellow with D

Additionally, a mouse hover over the box will reveal the drug class in full.

[JimWildman]

@awor ,

Two questions:
1- I am seeing blue " F " boxes instead of red… is this my phone?
2- my phone constantly takes me back to posts I have already read instead of starting up at the newest post. Also the index will say a thread has new posts, and when I go there I have read everything. Are these problems with my phone browser?

Thanks, Jim

[Dubya_B]

Had a message from awor that the color was changed from blue (Finasteride icon looked too similar to Facebook logo), to red.

Are the finasteride icons still showing blue for you?

Try refreshing or deleting the cached data for this site and see if it corrects itself.

Which phone browser do you use?

Does it always take you to the first post in each topic you open?

[JimWildman]

@Dubya_B

I cleared out my cache and now my “F” block is red.

Also, discussions which I have read are no longer showing up as unread.

Thanks for your help.
BTW, I am using Chrome on an Android phone.

[axolotl]

Hi all,

Patients have repeatedly asked for stricter moderation around therapeutic discussions, as unfortunately self-medication has repeatedly caused significant harm to some members. However, it’s important for patients to be able to report their experiences, both positive and negative.

Starting soon, staff notices will be added above threads or (in some cases) posts that contain therapeutic discussions and member thoughts that are within the rules but the moderators feel require feel an additional note of caution. This could be due to theories, or that a discussion surrounds or involves substances that other patients have reported a substantial worsening of their condition after taking. You can see this notice above this post.

This is simply intended as a word of caution in the hope of keeping patients as safe as possible and easing the burden on the staff, so please don’t take offense if your post is labelled. This is a matter of policy and I’ve asked the moderators to use this frequently.

Best regards,

Axo

[axolotl]

Hi guys,

Given our increasing workload, I’m pleased to say @Sugarhouse is now on the moderating team. Please join me in thanking him for his time and commitment. He is a long term member and previously his username was msab1990, however I asked him to change it to something that’s a word or a name given he’s joining the site staff.

Best

Axo

[lakehouse]

Another “house” username

Thank you @Sugarhouse

[Sugarhouse]

It’s great to meet you all, officially, and contribute to making a difference. I’m a great admirer of all the work you’ve all done so far and keen to help however possible.

Let me get up to speed on the mod guide, the chat and put together a few thoughts on how I can help.

It’s amazing how far this place has come.

[axolotl]

Hi all,

As participation and demand for the site continues to increase, we now request that you post a member story after joining so the community can better understand your personal situation, symptoms, and reasons for participation.

Best,

Axo