I will put here theories that I think make sense TO ME. For God’s sake, I’m not suggesting any protocol to anyone, and I don’t even have the skills. I am not recommending anything to anyone. Listen to the advice of the people most prepared for this, who are our administrators and moderators. Nothing that will be said here can be taken as absolute truth, as it is just my point of view when trying to connect the dots.
In this endeavor that we all know about looking for things on the internet as a psychopath to improve PFS, I have found that thousands of people around the world have exactly the same sexual symptoms as us in different ways. No, we don’t just have “lack of libido” and “lack of erection” in common. There are in common too the classic physical problems and change of appearance of the penis, in addition to the libido problem and lack of erection obviously.
How many of you have heard of “hard flaccid syndrome” and “large flaccid syndrome”? These are two syndromes VERY correlated with ours (only in the sexual part), or even consequences of PFS.
According to the user “HFrecovering” of the PEGym forum, long-suffering from both syndromes (alternating the frequency of each), it’s causes are:
“Hard Flaccid” is predominantly PC muscle tension (pubococcygeus muscle);
“Large Flaccid” is predominantly BC muscle tension(bulbospongiosus muscle). It is usually a worse syndrome compared to HF, although many say that LF is just one species of the HF genus.
A slight pain or discomfort is felt continuously in patients with these two syndromes, in addition to severe ED and lack of libido. The appearance of the penis also changes dramatically, as in our case.
Some people acquire one of the two syndromes (or both) for several reasons that are not finasteride, such as jelqing, lifting weight in the wrong way or very heavy (being even frequent in bodybuilders), riding a lot of bicycles, excessive masturbation or due to injury in some way (even in vigorous sex and very often using Viagra).
In our case, I believe that we have injured one of these two muscles (or both) with the overexpression of androgen receptors or enzymes present in them.
In a second theory, these muscles (one or both of them) may have been damaged by the lack of neurosteroids, and they contracted, tensioning very abruptly and continuously. This would be a damage to our CNS, which often explains the stress intolerance of many people with PFS and neurological symptoms (we also need to remember that normally those who have PFS already had a history of depression, with perhaps a willingness to stay neurologically " worsened “after the 5AR blockade). That is, we are” genetically predisposed "to this.
This is where PFS scientific studies would come in.
Thus, in addition to being chemically damaged, they also ended up being mechanically tensioned, preventing the correct functioning of the nerves and preventing the production of NO and blood circulation. Of course, this also affects libido as well. There has been cataloged in science the “pudendal neuralgia”, which is when the nerves in this region are prevented from functioning normally, and this causes an erectile dysfunction similar to ours.
The gut and pelvis produce effects on our body that a layperson could never imagine (autoimmune, sexual, overall health). This is “weird”.
Some people have cured these two syndromes with extreme relaxation (including meditation and yoga), avoiding stress, diets and pelvic therapy. There are several cases of PSSD also cured with pelvic physiotherapy.
I’ll put some links here, just out of curiosity:
Official thread of the HF syndrome in the PEGym forum: https://www.pegym.com/forums/penile-anomalies-injuries-pelvic-floor-issues/20460-official-hard-flaccid-recovery-thread.html
Official thread of LF syndrome (this seems to be the worst syndrome, and I have the same symptoms of OP - exactly the same ones): https://www.pegym.com/forums/penile-anomalies-injuries-pelvic-floor-issues/74414-larger-overextended-flaccid-penis-after-masturbate-help.html
See what he said:
I came to conclusion by the time and the injuries I’ve seen here
when the problem came to
SHOWERS they get HARD SMALLER SHRIVELED CONTRACTED FLACCID
when it happened to
GROWERS they get SOFT, LARGER, LOOSE,SAGGING,OVEREXTENDED FLACCID
Hard Small Flaccid is the normal to GROWERS
Soft Larger Flaccid is the normal for SHOWERS
In the Hard Flaccid the PF muscles are to contracted
In the Soft Large Flaccid PF muscles are incompact and over relaxed (BC Muscle)
In some cases flaccid size don’t change , they just lose the control of flexing there penis (BC Muscle),with or without other symptoms
I hope its just PF issue like the HF caused by mental physical stress
this pic shows most of the symptoms of (Hard Flaccid , Larger Soft Flaccid) and the causes of the difference from one person to another IMO
check the below pic (BC muscle) while sitting on the toilette try to raise your balls up with one hand and touch the BC Muscle with the other (one or 2 fingers)while doing kegels ,starting from anus(area 1) to the penis(area 3) with the touching. The muscle near the anus contracts while the muscle under the penis doesn’t contract or barely contracts what is your reaction when you does that area (1,2,3)?as on the pic , you can find it on the page
For me it have a good respond on area 1 and weaker on area 2 and weaker on 3
Just a point here: although he mentioned “kegels”, this is NOT healthy for those who have this syndrome. Later he realized that too.
Another study of HF: https://www.researchgate.net/publication/333663806_A_qualitative_analysis_of_Internet_forum_discussions_on_hard_flaccid_syndrome?enrichId=rgreq-d59ef6d39f0e7a3dbb16b098a737762d-XXX&enrichSource=Y292ZXJQYWdlOzMzMzY2MzgwNjtBUzo3Njg3MjczMTAxNDM0ODlAMTU2MDI5MDI4MTE1Mw%3D%3D&el=1_x_3&_esc=publicationCoverPdf
PSSD Recovery Stories - You can find one or two who have healed using pelvic physiotherapy: https://pssdlab.wordpress.com/success-stories/
Bonus theory (Torn Fascia) that I DON’T think is our case, although it scares me A LOT (just so you can see how the muscles in that region directly affect the erections) https://phalloboards.websitetoolbox.com/post/torn-fascia-from-jelquing-5686640
Old thread of 11 cases of recovery from HF syndrome in which the OP unfortunately deleted the cases (for reasons not fully explained). Here it is interesting to note the discussion of two users: HFrecovering and Sahara. See their views in the comments on this thread: https://www.pegym.com/forums/penile-anomalies-injuries-pelvic-floor-issues/112678-11-hard-flaccid-full-recovery-cases.html
Finally, I want to make it clear that working the pelvic muscles WILL NOT cure our syndrome, as I think they are chemically and physically injured. There are many cases of recovery only with physical therapy and avoiding stress, but I think that in our case it would help to at least improve our sexual condition a little.
I am in contact with the author of one of the famous studies posted on this forum a few months ago (I cannot say which one now). He is willing to research my case at the university where he conducts his research.
I will also try to ask for help from some of the best neurosurgeons and orthomolecular doctors in Brazil.
I think these muscles that I mentioned above can be the key to at least looking for the root cause of our syndrome and, even if worked properly, can help to improve it a little. Again I reinforce that this is just my opinion.