Do you also have hourglass flaccid problem? Mine is comes and goes when i pee time to time… and yes i have a uneasy, sometimes painful feeling in this area when i ejaculate… its like muscles try to push and contract in orgasm but its like they can’t do it properly…
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Yes, I have hourglass shape, which usually appears when I pee. Erections are still very bad, but at least viagra has returned to work when I need it. Libido is still nonexistent, and the discomfort I have at the root of my penis is very mild. I think our symptoms are very similar.
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I started reading PSSD Ghost’s website. There’s honestly more connections of PFS fixes to parasites. I feel like it explains why so many do well with things that help the gut.
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I would like to comment on the DCT (Dynamic Contraction Technique) program. Its a legitimate program that has really helped people get rid of CPPS and hard flaccid (Although hard flaccid seems to be harder to fix - but people on the DCT forum have had success). Keep in mind that 95% of the people doing DCT did not get it from pharmaceutical drugs - in fact I think that’s something people on here may or may not know but hard flaccid is something many men can get and have never touched fin or accutane or ssri.
My results from DCT are as follows: when I’m consistently doing the program I notice benefits for sure - improved hard flaccid - my penis will hang normal again and improved orgasms and sex drive. If I stop doing the program the benefits fade away back to baseline. There is a guy doing the program who has MCAS and he has to do the stretching daily or he loses the benefits as well- but he has made full recovery after 6 months of working hard. I will continue to do the program and even if that means everyday then thats just what I will have to do. One interesting thing is that people on the DCT forum have noticed the abs play a role in hard flaccid - so a lot of them are doing ab workouts - just something to keep in mind.
I have met in person the creator of the program David McCoid and he is a genuine guy that has helped a lot of people - so I can vouch for him as not being a scam or anything like that. In case anyone is wondering I have no affiliation with DCT and receive no kickbacks for anyone joining the program.
As far as will it fix hard flaccid for people who got it from PSSD/ PFS / Accutane - that is not clear at this time - like I said maybe we can get fixed through DCT but unlike normal people who get better doing it and can dial it back and just do a maintaince plan - we may need to do it everyday like the guy who has MCAS has to.
If you have any questions about DCT feel free to contact me and I can respond - and for those of you that doubt if it works - I really dont know what to tell you other than you will have to try it to know - there is another guy doing it that got HF from Trazadone and he has had success (he isnt recovered but has had improvements like me)
Also I just created this account and will write my story but basically was on SSRI for years then stopped and took Sam-e and got PSSD. There are a few other guys who got PSSD from sam-e and 5htp
Hope this helps
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How long did it take to notice improvements?
And to clarify, you should/shouldn’t be doing abs exercises?
I’ve heard that kegels will make pelvic floor syndrome worse?
Thanks for the sharing.
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I noticed improvement the first time I did the full routine (takes about 1-2 hrs) I stopped half way through and jerked off because I actually felt a sex drive come back - Like I said before If I’m doing the program every day I do notice benefits - If I stop then the benefits fade out.
To clarify - people are having success with hard flaccid and doing ab workouts- it goes against what a normal PT would tell you I know - but many on this group and the DCT group have gone the traditional PT route and had little success - at least with this DCT stuff people are getting results - but its fucking hard work and u have to do it consistenly
Kegels are not good - don’t do that - this is not kegels its resistance stretching
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I strongly believe that the sexual side effects of PFS, PAS and PSSD have something to do with pelvic dysfunction, as I said on this thread: https://forum.propeciahelp.com/t/pelvic-floor-theory-my-opinion
I’ve read a lot about hard flaccid and DCT. I almost bought this program before this coronavirus pandemic. I even sent an email to the author, but the dollar has skyrocketed against my country’s currency.
At first I was skeptical, as pelvic dysfunction may be just one of the consequences of our syndrome. But I started to think that all of our side effects (at least from the sexual part) can be caused by pelvic dysfunction, as it can simply cause pudental neuralgia and all the bizarre changes in our penises. I’ll send you a private message so we can talk better later.
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When you join the program you join the DCT facebook group (has about 300 ppl) and its great to see everyone’s progress. Like I said I find it best to do 1hr every morning and then do the assisted stretches with my dad 3 times a week when I go over to my parents for dinner. I believe short of curing PSSD/ PFS this is the best its going to get for relief - my sensitivity and HF definitely improve but like I said if I go a week and get lazy and don’t do the stretches then I lose my gains - but 1hr a day isn’t bad if it means I will have better sex with my gf that night
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Do you feel the tension/build up feeling when you say sex drive? I remember that I’d always have that feeling when abstaining and it would keep increasing every day until ejaculation.
Or your mental libido is fine, and the pelvic floor exercises reestablishes connection the brain to balls/dick.
I had a good reaction when I decided to relax the pelvic floor and flex the muscles above my buttcrack, like there was a tail to wag.
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I’m assuming shockwave therapy would help with this too.
Plenty of people on the DCT forum have tried shockwave and its expensive and very ineffective
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Hey guys! I’ve discovered same situation with you all! My symptoms %100 about pelvic floor. I’ve spoken plenty of people who has got Hard Flaccid syndrome, the symptomps same with me. How is your situation, I’ve bought DCT as well gonna start soon. I went physiotherapist and he told me that my pelvic musces so tight. So I think the DCT is key. Could you please PM me?
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what is dct ?
Dynamic Contraction Technique - google it
I have spent the last 2 years researching hard flaccid and DCT is BY FAR the best option. Lots of people getting better.
Its hard work but worth it - and the creators are always looking to make the program even better, they have so many ppl doing it with hard flaccid that their knowledge of the condition is getting better and better. So they understand this more than doctors or regular pelvic floor PT
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Can i have the name of the physical therapy centre please.
There has been a lot of activity in my thread after my absence, so I just answer in general.
In fact, I came across DCT through my research and tried it. It actually improved my pain a lot, and also a bit the feeling. But it’s not a cure and just another symptom of this shit.
The pelvic floor alone does not explain symptoms like anhedonia, brain fog etc.
It is obvious that this is a more complex thing.
In the meantime, I assume there is neuromuscular damage. The pudendal nerve could also be affected by chronic inflammation.
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Where did you read that it affects glutathione and do you know if it would therefore be useful to take it in supplement form?
I dont have access to the study anymore but the link that used to work to the graph was http://medicaljournalofcairouniversity.net/index/images/pdf/2009/September/30.pdf
We also had 8 of 8 that tested for glutathione with low levels including myself.
I actually recently starting taking Glutathione again at night. It definitely helps wit sleep and I do notice an overall benefit as well.
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Can i ask what dose u take and do u have the s-acetyl one?
Reduced Glutathione powder. I take about 300mg 5 nights a week.