Been suffering from PFS for 6 years. Other than the very slow recovery that comes with time, the only thing that has made a dent on my symptoms was water fasting and the carnivore diet. Experiments with fasting got my recovery from about 40-60% depending on the day to 60-80% depending on the day.
Been too busy and uninspired to water fast for a while but had the thought one day that the drug left my system 6 years ago so maybe it’s time to forget about the drug completely and just look at the symptoms I have and treat them all one by one. As I’ve noticed changes in diet having such a big difference in my overall health and how I feel I started looking into treating inflammation and auto-immune syndromes using diet.
Got interested in the carnivore diet after watching the Shawn Baker interview on Joe Rogan’s podcast and also from Jordan Peterson’s daughter Mikhaila’s blog (mikhailapeterson.com) and her various interviews. This inspired me to try the carnivore diet and during the third week I experienced a remarkable recovery: libido fixed, reproductive system pain and inflammation gone, found women attractive again, masturbating 2-3 times a day rather than 0-3 times a week, slept like a log and woke up early ready to go, depression lifted but best of all I had LOADS OF ENERGY, was loving work and exercise and being active in all areas of life that I couldn’t before. It also fixed the sebhorric dermatitis on my upper lip which was a recent development. Had the best week of the last 6 years hands down. Felt like I was 21 again.
In the fourth week all that good stuff went and I’d say I dropped back down to about 70-75%. Unfortunately a few things happened at the end of the third week that may have been responsible for the drop in convalescence: 3 inch rusty nail went through my heel while walking in a forest so had to go get a diphtheria/polio/tetanus jab, also had a couple of pints of beer and a mostly meat curry (no rice or naan, two meat starters and a meat main), also possibly just overdid life in the previous week (work, exercise, masturbation etc), also noticed that my meat diet had gone from 30% pork up to about 85% pork (pork is often thought to have more of a histamine/auto-immunity inducing reaction because of their dieter and faster digestive systems leaving more crappy stuff in their meat).
Carnivore dieters are not a very zealous, dogmatic or evangelical lot. There isn’t much science to it and there aren’t really any tests that have been done on carnivore dieters. However, science is very slow, is very hard to do well and there are plenty of incentives to do it badly. I’ve found a lot more common sense with the carnivore lot than with any of the other umpteen diet groups I’ve looked into over the years.
I’m very unclear as to what caused the week of 99% recovery that I experienced. It could be about what I was eating, about what I wasn’t eating, about the inevitable intermittent fasting that comes with filling yourself with meat twice a day, it could be about ketosis, it could be about autophagy, it could have been to do with the weather getting better, some sort of healing cycle might have come and gone, it could have been a domino effect of a number of things.
I’m looking into all of the above now and honestly the more scientific literature I read the more ignorant it makes me realise we all are in terms of being able to explain why something does or doesn’t work. And the more ignorant I feel, the less I feel I can draw guidance from the sciences of stuff like nutrition or autophagy etc. I feel confident in saying that many many journalistic websites latch onto a very small number of scientific publications and start pumping out articles that massively misrepresent what was actually written in the publication. For instance, autophagy is being sold to the reader as some borderline miracle process of self-healing and cleansing that happens when we fast. Go read the very few papers that have been on it and you’ll see most of it is about mice and yeast, we have no idea when it starts in humans or even how long it continues once it’s started. In terms of PFS, I have no idea if the problem is that our autophagy-triggering genes or other autophagy mechanisms aren’t working properly and that that could explain the persistence of our side-effects.
I’ve been reading about PFS for years now and in terms of science I’m still not sure if it’s a hormone, autophagy, diet or epigenetics related problem. WHAT I DO KNOW is that after experimenting with water fasting I felt 100% better for one day and the sharp pain in my testicles went away never to return, I also felt 99% better for a full week after two weeks of eating just meat and water. What I also know is that hundreds of pounds of supplements have made zero difference to anything. I’m done making expensive urine that can’t produce a 100th of the change that diet can in just a few days.
Currently back on the carnivore diet (day 4) after 2-3 days of comfort eating to deal with the despair of being given my life back only to have it taken away again a week later. If I can remain motivated to keep going with the diet and things get better I’ll probably post something here again soon.