do you have the link?
I take Mucuna Pruriens extract, 450mg, which contains L-Dopa, the precursor to Dopamine and it works for me.
I get L-phenylananine from a mix of Essential Amino Acids I take every day (15g of EAA). I get good benefits from EAA. D-phenylananine is made in a lab and didn’t go well with me when I tried it alone. I never tried DL-phenylananine so I can’t tell. What are your results with it ?
I ll say I am 98 percent recovered. I only have mild fatigue now.
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I feel 95% my normal self now when it comes to cognition, memory, sleep, anxiety symptoms. Although my vision and hearing seems permanently degraded still. I’m 3.5 months post stopping topical finasteride (0.3% in 0.5ml 2xs daily for 7.5 weeks.) So, anxiety, panic attacks, distracting brain weirdness/numbness, cognition and memory impairment, fight or flight sensations throughout night interrupting sleep after only 2 hour segments, etc all are 95% better now. The last couple weeks of targeting discrepancies and abundances in my body with natural supplements seem to really be helping. Here’s what I’m doing that is having the most positive effects that are targeting my specific blood, urine and saliva tests including hormone and neurotransmitter tests. I’m 5’10” and 140lbs.
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Boron 6mg (2mg 3xs daily) Blood tests 3 weeks ago showed I have high SHBG levels and normal free Testosterone. This means my body has probably less free T than the test shows that my tissues can use due to too much SHBG.
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L-Theanine 300mg (100mg 3xs daily) Urine test 2 weeks ago shows I have very high Dopamine, Epenephrine, and GABA levels. Theanine supposedly helps balance all of those.
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Vitamin C and D daily, B complex (as Methyl B Complete nightly before bed) Urine test showed low levels of Seratonine. Vitamin D essential there although I tried 5-HTP and felt super weird. Vitamin B also essential for sleep?/cortisol? I know blood test showed I have high Homostyceine levels which means a B12 deficiency.
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Also taking daily multivitamin and daily probiotic just as a fail safe.
Will update with further progress or changes.
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I made an appointment with Dr Pierre Marc Bouloux in London while I was visiting. He met me over a video call as I had already returned to the USA. Here is a summary of our call today:
April 18, 2024 Call Purpose:
Discuss Dr. Boulous’s experience treating patients suffering from post-finasteride syndrome (PFS) and get his insights on my own experience with PFS.
Topics Discussed:
Dr. Bouloux’s Background Treating PFS Patients:
- Has seen 300 PFS patients over the years, first trying to get drug manufacturers interested in researching it.
- Symptoms range from sexual side effects to emotional/neurological issues.
- Tried analyzing personality traits and factors to find commonalities but difficult without a proper control group.
- Research is limited and flawed without comparing susceptible vs non-susceptible patients.
My PFS Experience:
- Tried supplements like 5-HTP and GABA before getting cortisol and neurotransmitter test results.
- Tests showed high GABA so I stopped taking it.
- Feelings of fight-or-flight at night disrupt sleep and exacerbate symptoms.
- Cortisol test results may be hard to interpret without circadian rhythm context.
Moving Forward:
- 30-40% of Dr. Bouloux’s patients recover close to normal eventually.
- My regimen seems reasonable for now since it’s helping and is non-toxic.
- Plateau first before withdrawing supplements one by one to see if still needed.
- Omega-3 fatty acids are neuroprotective and I should keep taking them.
Next Steps:
- Continue current supplement regimen.
- Plateau first before slowly withdrawing supplements.
- Continue taking neuro-anti-inflammatory omega-3 fatty acids for neuroprotection.
- Provide periodic updates to Dr. Bouloux on progress.
Action Items:
- Repeat hormone tests, cortisol measurements, neurotransmitter levels, proteomics, and genomics when symptoms improve to establish a baseline for comparison (Sounds like he wants this data to add to his growing file of PFS patients.)
- Withdraw supplements one by one every 1-2 months and monitor any changes: probiotics, Methyl B Complex vitamins, L-Theanine amino acids, and Boron. Continue omega-3 supplementation
- Send a summary report and keep in touch periodically via email
Dr Bouloux thinks $10 million would pay for the kind of study needed on humans with baseline tests before starting Fin and then ongoing tests periodically during and after use, especially on those who see no side effects versus those who do. He says most studies haven’t tested those who have taken Finasteride with no side effects.
I’m wondering if we could petition some lawmakers in Congress to try to introduce a bill that would require this study to be conducted and funded by the companies who sell Finasteride products. They could attach it to a spending bill or something and get this research done!
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This is really great info in one post! Thank you for taking the time to do this!
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Really helpful!
30-40% of Dr. Bouloux’s patients recover close to normal eventually.
This seems too good to be true. Does that include sexual side effects? These seem to be the most persistend ones, they definitely are for me. Hearing this I definitely want to make an appointment with him as well.
to fightfin
I love recovery stories. However 30〜40% sounds a bit too convenient…
300 × 0.3〜0.4 = 90〜120
where is the lucky 90〜120 survivers?
Then, what is the probability of which none of them do not know this forum?
Of course I wish it were truth. I think 30〜40% is not impossible. If you meet him, please ask him to inform the survivers of this forum and let them tell their recovery stories here.
Haha. I was doing the exact same math wondering exactly the same. Where are the 100 people cured by him. I feel like at least 10% should know this forum. Not even 1% seems weird.
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That man has really bad reviews on the website I want great care. These are real patients and not fake.
It seems the lighter cases don’t get to the forum. Here, we consider that if the symptoms are not gone after 6 months, then it’s PFS. Dr. Bouloux may not have this threshold. He may be counting those who either crashed after stopping fin or after taking a few pills and starts treating them as soon as symptoms occurs, when they would not be considered PFS patients on this forum. It also means that some of the 30-40% may have healed without his treatment during the first 6 months (or longer, some people recover by themselves after a few years and to a certain extent.). I’m not saying all his patient are less than 6 months with symptoms. I’m saying some of them most likely are and it’s hard to draw statistics when comparing groups with different composition.
I contacted Dr. Bouloux’s secretary to take a voice appointment as I’m not in the UK but considering I still don’t know what’s his treatment and because he can’t prescribe me anything where I am, I didn’t go through the motion.
Does anyone knows what’s his treatment ?
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My experience was that he told me everyone is different so people will respond differently to different treatments.
But I’ve got some other really interesting news. I spoke to a friend who went through PFS two years ago. His biggest symptoms were similar to mine: sleep disturbances, anxiety and for him depression and suicidal thoughts, brain fog and cognition impairment, extreme fatigue. He told me he thinks he cured himself around month 4-6 by taking Thymosin Beta 4, a peptide normally for tissue healing and injury repair. He said the TB4 and at one point a 65 hour water/salt fast really set him on track to being nearly 100% healed. My local endocrinologist prescribed it for me today and it arrives next week. I feel about 70-80% healed but still have major sleep disturbances just from eating a hamburger or having ice cream or things diet related. Have any of you had any experience with TB4? Another thing my friend tried was BPC 157 but he said it didn’t seem to help him as much.
I have an Endocrinologist to refer for anyone who wants to do remote consultation (for $200 initial, $100 subsequent video calls) who can prescribe it. He says practically 0 side effects with TB4. It was $430 for the prescription. I’ll update this thread with my results once I’ve finished treatment in about 30 days.
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Sure, here is the translation:
Guys, I spent 2 years with terrible symptoms, almost all of them! Today, I am 95% cured. I believe that what mainly helped me physically was doing prolonged fasts. The longest and most impactful was going 8 days drinking only water. I’m not recommending anyone do it, just sharing my experience. Another thing that helped me gain mental motivation was stopping worrying about the symptoms and just existing. I meditated a lot and stopped accessing this forum, checking it only every 6 months. Physical exercise, good nutrition, and prolonged fasts, in my opinion, were what got me out of the pit. Today I am married to a beautiful woman and have a beautiful daughter. To think that at some moments I even considered taking my own life! Hang in there and try everything, be strong and have some spiritual connection with something, you will get out of this, stay positive!
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A friend of mine who had 6 months of terrible symptoms also cured himself with 65 hour water/salt fasting along with TB4 peptide injections and daily meditation.
I’m currently taking TB4 (also called TB-500) along with HCG. It will be my second run with HCG, with a 10 months interval in between, the first run being without TB4.
Sleep has improved greatly. I’ve reduced all sleeping meds and supplements. Sex drive is currently a little low but that is normal with androgen supplementation and PFS. Some symptoms always get worst before getting better.
I can’t say if TB4 is helping. The injection site is painful for 36 hours and I don’t seem to have any bad side effects aside from that. I’ll try a little longer.
Ok. Thanks for the update. I had lingering pain at the injection site just one day on one occasion during the 2&1/2 weeks I was taking TB4. Some mild yellow bruising one other time. Glad to hear your sleep is a bit better.
I’m having some weird newer sleep disturbances. Waking up with a rush of light headed numbness in my head. Often accompanied by numb arms and legs. Got checked out for stroke and tests seemed fine but a little low red blood cell count. Is anemia common with PFS? Just ordered a blood pressure monitor device because it may be low blood pressure which may be related to anemia or something else. These fluctuating symptoms are something else!!
Indeed. Those are not PFS symptoms I’m familiar with. It could be indirectly related or not at all. I’m not in a position to tell.
Get that checked !
So the tb4 did not work I take it