Really helpful!
30-40% of Dr. Bouloux’s patients recover close to normal eventually.
This seems too good to be true. Does that include sexual side effects? These seem to be the most persistend ones, they definitely are for me. Hearing this I definitely want to make an appointment with him as well.
to fightfin
I love recovery stories. However 30〜40% sounds a bit too convenient…
300 × 0.3〜0.4 = 90〜120
where is the lucky 90〜120 survivers?
Then, what is the probability of which none of them do not know this forum?
Of course I wish it were truth. I think 30〜40% is not impossible. If you meet him, please ask him to inform the survivers of this forum and let them tell their recovery stories here.
Haha. I was doing the exact same math wondering exactly the same. Where are the 100 people cured by him. I feel like at least 10% should know this forum. Not even 1% seems weird.
That man has really bad reviews on the website I want great care. These are real patients and not fake.
It seems the lighter cases don’t get to the forum. Here, we consider that if the symptoms are not gone after 6 months, then it’s PFS. Dr. Bouloux may not have this threshold. He may be counting those who either crashed after stopping fin or after taking a few pills and starts treating them as soon as symptoms occurs, when they would not be considered PFS patients on this forum. It also means that some of the 30-40% may have healed without his treatment during the first 6 months (or longer, some people recover by themselves after a few years and to a certain extent.). I’m not saying all his patient are less than 6 months with symptoms. I’m saying some of them most likely are and it’s hard to draw statistics when comparing groups with different composition.
I contacted Dr. Bouloux’s secretary to take a voice appointment as I’m not in the UK but considering I still don’t know what’s his treatment and because he can’t prescribe me anything where I am, I didn’t go through the motion.
Does anyone knows what’s his treatment ?
My experience was that he told me everyone is different so people will respond differently to different treatments.
But I’ve got some other really interesting news. I spoke to a friend who went through PFS two years ago. His biggest symptoms were similar to mine: sleep disturbances, anxiety and for him depression and suicidal thoughts, brain fog and cognition impairment, extreme fatigue. He told me he thinks he cured himself around month 4-6 by taking Thymosin Beta 4, a peptide normally for tissue healing and injury repair. He said the TB4 and at one point a 65 hour water/salt fast really set him on track to being nearly 100% healed. My local endocrinologist prescribed it for me today and it arrives next week. I feel about 70-80% healed but still have major sleep disturbances just from eating a hamburger or having ice cream or things diet related. Have any of you had any experience with TB4? Another thing my friend tried was BPC 157 but he said it didn’t seem to help him as much.
I have an Endocrinologist to refer for anyone who wants to do remote consultation (for $200 initial, $100 subsequent video calls) who can prescribe it. He says practically 0 side effects with TB4. It was $430 for the prescription. I’ll update this thread with my results once I’ve finished treatment in about 30 days.
Sure, here is the translation:
Guys, I spent 2 years with terrible symptoms, almost all of them! Today, I am 95% cured. I believe that what mainly helped me physically was doing prolonged fasts. The longest and most impactful was going 8 days drinking only water. I’m not recommending anyone do it, just sharing my experience. Another thing that helped me gain mental motivation was stopping worrying about the symptoms and just existing. I meditated a lot and stopped accessing this forum, checking it only every 6 months. Physical exercise, good nutrition, and prolonged fasts, in my opinion, were what got me out of the pit. Today I am married to a beautiful woman and have a beautiful daughter. To think that at some moments I even considered taking my own life! Hang in there and try everything, be strong and have some spiritual connection with something, you will get out of this, stay positive!
A friend of mine who had 6 months of terrible symptoms also cured himself with 65 hour water/salt fasting along with TB4 peptide injections and daily meditation.
I’m currently taking TB4 (also called TB-500) along with HCG. It will be my second run with HCG, with a 10 months interval in between, the first run being without TB4.
Sleep has improved greatly. I’ve reduced all sleeping meds and supplements. Sex drive is currently a little low but that is normal with androgen supplementation and PFS. Some symptoms always get worst before getting better.
I can’t say if TB4 is helping. The injection site is painful for 36 hours and I don’t seem to have any bad side effects aside from that. I’ll try a little longer.
Ok. Thanks for the update. I had lingering pain at the injection site just one day on one occasion during the 2&1/2 weeks I was taking TB4. Some mild yellow bruising one other time. Glad to hear your sleep is a bit better.
I’m having some weird newer sleep disturbances. Waking up with a rush of light headed numbness in my head. Often accompanied by numb arms and legs. Got checked out for stroke and tests seemed fine but a little low red blood cell count. Is anemia common with PFS? Just ordered a blood pressure monitor device because it may be low blood pressure which may be related to anemia or something else. These fluctuating symptoms are something else!!
Indeed. Those are not PFS symptoms I’m familiar with. It could be indirectly related or not at all. I’m not in a position to tell.
Get that checked !
So the tb4 did not work I take it
Did u initially crash before getting better after starting BHB then sodium butyrate?
Did the TB4 injections cure you?
The TB4 seemed to help. Thinking of ordering another regimen.
No, I did not. It’s pretty mild and we get some just by eating butter, which is 2% butyric acid and convert into BHB upon entry in the system.
I’m on a carnivore/keto diet. Considering my fat intake is at least 100g a day, my body turns fat into at least 80g BHB everyday. So I have no lack of BHB and although I do have BHB salts, adding an extra 2-3 grams would not make a difference for me.
IMO it’s still a good idea to try and get some BHB / Butyric acid, either with BHB salts or a keto diet.
I haven’t posted for a while but things are really good.
I’m symptom free and ironically, what I thought was my last symptoms were caused by the supplements I was taking. I stopped those over a month ago and I saw the last of my brainfog going away.
I’m productive, motivated and sexuality is normal and better than non-PFS friends of my age.
It has taken me 6 years and a half to reach this point and I documented the whole journey on different threads on this forum.
I have friends who have recovered or have gotten much better from PFS.
There is hope !
That’s fantastic news Ozeph, did your sleep finally recover as well? You’re sleeping without meds? Are you still strict with your diet?Regardless, congratulations on your health!
I’m not quite there yet, but almost. I have 2 more years to catch up to you though, and I’m pretty confident I’ll be 100% by then if not befor. Like you said, there is hope.
Congratulation mate ! You’ve recovered quite a lot already and the trend is in the right direction !
I’m slowly tapering benzos. The symptoms I have are from the benzos, not from PFS. They’re not too bad anyway but damn, that thing is addictive !
Doctors give them without discussing the exit ramp and apparently there isn’t one except toughing it out. Anyway, it’s nothing compared to this disease so I’m not complaining.
I’m still on the diet. It’s so amazing, I don’t think I’ll ever quit . I always have energy, even if I don’t eat for a few days, and weirdly enough I didn’t get a single mosquito bite for over 6 years. Other carnivore / keto dieters say the same. Lots of other positives but I won’t do an infomercial on this diet here and now…
I wish you the best of luck in your recovery !