My regimen, and it's working

@Ozeph @Pete1989 @Scott.H

Ok, I’ve been extremely busy and haven’t been on here much lately. I was actually dreading getting on here as my symptoms started slowly coming back. Refractory period was getting longer, dry skin on hands started coming back, fat on torso started getting thicker again, gynecomastia started getting tender again, ect…

I did say on here that I was going to start taking digestive enzymes as these have enzymes called protease which helps in the conversion of amino acids in the gut. I took these for several weeks and although I did not notice any difference in my normal symptoms, it completely cured the indigestion that I have literally battled since the beginning of pfs. In fact, I’ve been off of these enzymes now for at least 2 weeks and those symptoms have not returned.

Ok, on to the new theory. My theory has turned to my body not properly synthesizing the essential acids, or the ones we get from the food we eat. So, I ordered a bottle of the essential 9 on Amazon. I started taking it last Friday. Within 1 day I noticed a difference. Now, although this may help for a while and quit, my symptoms have started improving again. My hands are almost completely healed, sex drive is doing very well again with improved refractory period, fat seems to be depleting again, gynecomastia is dormant again.
Here is one I didn’t even know was due to pfs. I have had very tender legs below the knees for as long as I can remember. My wife has always laughed at me for not wanting anyone to put pressure on my legs due to that. The other day, my 4 year old stood on my leg with both feet and it did not hurt at all. I was pretty shocked.

As far as my current regimen, that’s it. I’m not taking any non essentials or anything else right now. Oh, and @Scott.H, this has histidine in it.

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Happy to hear from you alteredlife. Looks to me like you should do more of what works and less of what doesn’t.
I’m waiting to receive some of those enzymes as well. I’ll tell you how I feel with it. I fixed my digestive issues with the diet I’m on, with bone broth and the controversial collagen.

As you know, I have been experimenting quite a lot on a bunch of individual aminos acids, essentials or not. I’m currently on a break and it’s not feeling so great. It’s been only two days and Mood is bad, motivation is low, I’m slightly depressed and got anxiety. All of that only by reducing the doses and variety of aminos I’m taking.

It seems like I can be well if I take a bunch of specific aminos at specific times during the day, and if I stop, reduce or change the timing, I lose the gains.

I’ll confirm that tomorrow. I have a long day at the factory and I cannot afford to be anxious, demotivated and lack confidence, I will have to take my normal amino acids right from the morning and all day long. When I take them, I’m all the contrary. I feel strong, motivated, confident and happy.

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Confirmed.

yesterday I took 5-HTP 100mg, L-Tyrosine 500mg and L-Dopa 350mg upon waking up at 6:30am and later Theanine 200mg with my morning coffee.

I took 5-HTP 100mg, L-Tyrosine 500mg and L-Dopa 350mg again at 12:30pm before lunch and I had a great day, and a good night of sleep in the evening.

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I haven’t tried 5-HTP, guess I need to give that a shot!

@Ozeph So get this, when I take the essential acids, my symptoms improve greatly for a while and then it’s like they reach a plateau, and then just kind of fizzle off. When I quit taking them, my symptoms improve for a while and then it wears off. My wife and I both thought this was weird so she suggested that I take them every other day instead of every day and see what happens. I’ve been doing that for a week now and it actually seems to be better for me. Sex drive stays strong, all other symptoms seem to stay away. If this starts wearing off, I’m going to maybe try every three days and see what happens, but right now this is working great. Also, the essential 9 doesn’t cover all essentials. Arginine is an essential and glutamine is essential and non essential. So I’m going to order these and add to the mix.

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That’s great, your moving forward !

Keep posting your progress !

On my side, I’m improving my protocol and I’m getting closer to zero symptoms… You can check this out on Amino Acid For neurological symptoms

@Pete1989 @axolotl @Scotsman @Baz44uk @alteredlife @Mcbbould @Chapman @Shellnyce @doomed80 @Rmoney96

Update: Just had sex with my wife and I masturbated 2 days ago. I can confirm that vitamin A 25000 IU made a huge change in sensitivity. In both cases I could finish in 3-4 minutes (and I did!) or control it longer if I wanted. The change was sudden, I took vitamin A for only 5 days.

This didn’t happen in the last 6 months. In those 6 months, I couldn’t finish when I masturbated (so I stopped doing it) and sometimes when having sex it would take 30 minutes before I could finish or it would never happen.

I can connect vitamin A in large doses with increased sensitivity. Still be careful, too much vitamin A can be toxic. I will reduce to 10000 IU as soon as I find the pills (the 25000 IU I have are gel caps, so I can’t split them)

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Hi @Ozeph, thanks for sharing this interesting response. The admins view is this makes sense (retinoids are vitamers of vitamin A) and we would recommend caution in using this if you suffer from PAS, PFS or the possibly connected conditions, in addition to any health concerns for the general population in its use, particularly if you’re a severe case.

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I agree. Vitamin A is one of the few vitamins that is toxic in high doses. It can even kill you.

The only Vitamin A pills I could find here in Thailand are 25000 IU. This is the maximum safe dose. I don’t even know why they sell it in this format. It was cheap (like 2$) and I will receive 10000 IU pills from the US in a few days. So I decided to take them anyway, while waiting for the safer, more realistic dose.

But I got this unexpected result of increased sensitivity !

Because it’s a topic that was discussed a lot before and it seems everyone (including myself) was taking it for granted there was nothing that can be done about it and only time would improve this symptom, I wanted to share this result.

I don’t intent to keep taking this dose when I’ll receive the lower dose pills. I’ll post the result. It will be like the penis version of Flowers for Algernon I guess.

On another forum I have visited there are a bunch of guys who took Accutane seeming to recover by going on Vitamin A elimination diets and doing liver flushes. Like the whole problem all along was Vitamin A poisoning. Just thought I’d share that. Some people apparently think Vit A shouldn’t even be a “vitamin”, that really it’s more a poison, and a huge cause of autoimmune disease. There’s some book on the topic called “Poisoning for Profits” Ive seen recommended.

@vkg1 Thats interesting. Ive been taking Choline and Inusitol 500mg each per day, both of which flushes the liver of fatty acids, including vitamin A. I dont know what to make of this. What do you think is causing the increase in sensitivity ? Its quite a surprise to me !

I’m just getting started here. Very happy to see that you’ve been getting results like that, though. My problems are low libido, which seems to at least be somewhat improved by the TRT I have just started, and anorgasmia/lack of sensitivity (that remains bad). I can’t have a girlfriend because I can’t perform sexually when I can’t feel anything (erections are good except for soft glans, but lack of sensation kills sexual “connection”) Reading up on what all you guys have been getting results with this weekend and preparing to place a big order for aa’s. Also going to switch to Keto diet. So that’s the stage I’m at. Let’s hope I get some results and can make meaningful contributions to discussion in the coming weeks.

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That’s a good idea. please share results with us.

I keep my current regimen updated on Day 1 (the first post) of my experiment on Amino Acid For neurological symptoms if you’re interested. I just updated it today.

By the way, I do believe you will see improvements with this type of amino acid regimen. Many thanks to @alteredlife for putting us on this track ! That was inspired.

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Guess I’m going to find some vitamin A, lol

Well, if you do, please share the results.

Ive been studying the balance (and imbalance in our cases) of amino acids, neuro-transmitters and their co-actors, vitamins and minerals for some time and to simply state that vitamin A restored my sensitivity doesnt make sense to me. Yet, I can feel again.

Perhaps its vitamin A in interaction with one or more other things, I dont know. Im aware that if it was just vitamin A alone, we would have figured it out by now. Im puzzled.

So if other people try it please share results. (yes, too much vitamin A can kill you. But 10000 IU will certainly not, at least not in 5 days)

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Does anyone know if gluten or other food intolerances are particularly associated with causing aa deficits? Is it conceivable that our best currently available treatment would be to go on elimination diets? I hate to be thinking within the lines of trendy diets. But it seems that people here that have seen improvements have also been on Keto or carnivore diet.

Will do. Hoping to grab some today to try out!

Ncsugrad please check the book I mentioned first though. It’s not the very most scientific, but it might have some points you want to consider before taking any more risks like we did when took these drugs in first place assuming they were safe.

Will do

After crashing, all food allergies becomes exacerbated, all inflammation in the body increases. The auto immune response is not restricted to Androgen Receptors, it attacks a lot more.

So eliminating all food allergens and fixing the guts is a great first step. Its also an overall approach that will work much better than those pinpoint attempts at taking a single supplement or drug that address only a single issue and ultimately fail. PFS is not a single disease but a set of bad health conditions triggered by finasteride, Isotretinoin, saw palmetto extract, anti-depressants (SSRI, SNRI, TCAs) or Gonadotropin-releasing hormone, all of which can cause the similar imbalances although often from a different angle. I read a story of a girl who had the same symptoms as us by taking Pregnenolone 25mg and DHEA 25MG given to her by a naturopath because she had adrenal fatigue (I dont know where this naturopath made the link between those hormone precursors and the adrenal glands. It`s like trying to fix stomach ache with anti-wart drops, but I better not get started on doctors. They killed 3 family members by giving the wrong drugs, none of them were held responsible. They have a double 0 license to kill like 007)

But back to the subject. To eliminate food allergens and fix the guts, its good to eliminate grains (which contains phyto-estrogen anyway) and especially gluten which is the number one culprit in guts diseases. Reducing all carbs is also great as it will reduce stress and fix many issues. Increasing protein and saturated fat is very important. Youve got things to fix, so you need the material to fix it. Proteins obviously build lots of stuff, but people are usually less aware of how important saturated fat is. Cholesterol, for example, is the precursor of most hormones. Our brain and nervous system is made of 90% saturated fat (fat from animals. not vegetable oil).

Taking Glycine, Glutamine, bone broth, collagen peptides (in small doses, 2-3 gr and see how you react) are all good ways to fix the guts.

I took the radical approach and went on a carnivore / lots of saturated fat diet only, 6 months ago. No more than 5 gr of carbs a day. The second and third days were hard (i cheated a bit by having glasses half full of milk, half full of water, just to get me through), then it became increasingly easy and after a few weeks I was set for glory. All neurological symptoms except insomnia went away after 3-4 days. including daily headaches I had for 4 years, stomach ache, gastric reflux (I couldnt lie down, I needed a pillow to set myself at an angle so I wouldnt drown in my vomit), stomach discharge was immediately improved, all joints pain disappeared and I even stopped having dandruff !

I also took bone broth and After 3 weeks, I introduced some green low carbs veggies like kale, spinach, celery, lettuce.

I fixed my guts by using collagen. Some people had adverse effect from it, so we have to be careful, but I take 5 gr. of gelatin (which is partially hydrogeneted collagen) 2-3 times a week and probiotics once a week to maintain good guts health. After that, I could take food allergens that used to cause me anxiety without ill effects (like peanuts and sugar)

I found that after 4 months, I could easily eat low quantities of carbs and be normal, but I still cannot have a huge plate of spaghetti without some ill effects. That`s where I am now. I eat 2 slices of bread in the morning, put sugar in my coffee and have 1 tsp of honey before sleep and the rest of the food for the day will be protein or saturated fat.

Doing this diet fixed 60% of all my symptoms. The rest was fixed by exercise, amino acids and supplements.
8 months after crashing, my only remaining symptom is I wake up after 6 hours of deep sleep, then wake up multiple times in the next 3 hours with lots of dreams in between but no stress at all. I get up well rested and have a normal, productive day while being calm, confident, motivated and in a good mood. All the residual sexual symptoms have recently disappeared.

It may not work for everyone, but it did for me. Considering 7 months ago I was so weak, my mind so incoherent, had panic attack and anxiety, I though I would have to stop working, driving the car and would have to move out of the house because I couldnt handle the presence of my own 3 children (not to mention the inability to stand up for more than 20 minutes or climb two flights of stairs, zero sex drive, almost no sensibility and no night erections ). I though my life was over and I was considering dying would be more humane than living like that. But dont give up anyone. There’s a way out and it may not be that far away. You just have to be proactive and do something about it. An overall approach, not a single one thing attempt, starting with radically changing your food habits is in my opinion the best first thing to do to get out of this mess. People have cured diseases worst than ours this way, like cancer, heart diseases and strokes.

Disclaimer: Im not a doctor (thank God). Those are only my opinions and experiences and should not be considered medical advises. (Now that I said that, you cant sue me for trying to help. Ha ha ! Not that a normal descent person would do that anyway.)

I wish the best to you all guys. We can beat this.

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