Knifli introduction

#1

Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.

Where are you from (country)?
Belgium

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)

PSSD forum

What is your current age, height, weight?

20 y/o , 1m63 , 44kg

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?

Sertraline

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?

50mg

What condition was being treated with the drug?

Depression
For how long did you take the drug (weeks/months/years)?

5 months

How old were you, and WHEN (date) did you start the drug?

18y/o

How old were you when you quit, and WHEN (date) did you quit?

19 y/o in July 2018
How did you quit (cold turkey or taper off)?

Taper off in 2 weeks
How long into your usage did you notice the onset of side effects?

Had pssd symptoms after my first pill, didn’t went away after i stopped the drug.
What side effects did you experience that have yet to resolve since discontinuation?

A bit less confusion and emotional blunting
Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual
[ x] Loss of Libido / Sex Drive
Erectile Dysfunction
[ x] Complete Impotence
Loss of Morning Erections
Loss of Spontaneous Erections
Loss of Nocturnal Erections
Watery Ejaculate
Reduced Ejaculate
Inability or Difficulty to Ejaculate / Orgasm
Reduced Sperm Count / Motility

Mental
[X ] Emotional Blunting / Emotionally Flat
[ x] Difficulty Focusing / Concentrating
[ x] Confusion
[ x] Memory Loss / Forgetfulness
[ x] Stumbling over Words / Losing Train of Thought
[X ] Slurring of Speech
[ x] Lack of Motivation / Feeling Passive / Complacency
Extreme Anxiety / Panic Attacks
[ x] Severe Depression / Melancholy
[X ] Suicidal Thoughts

Physical
Penile Tissue Changes (narrowing, shrinkage, wrinkled)
Penis curvature / rotation on axis
Testicular Pain
Testicular Shrinkage / Loss of Fullness
[ x] Genital numbness / sensitivity decrease
Weight Gain
Gynecomastia (male breasts)
Muscle Wastage
[X ] Muscle Weakness
Joint Pain
Dry / Dark Circles under eyes

Misc
Prostate pain
Persistent Fatigue / Exhaustion
Stomach Pains / Digestion Problems
Constipation / “Poo Pellets”
[ x] Vision - Acuity Decrease / Blurriness
Tinnitus (ringing or high pitched sound in ears)
Hearing loss
Increased hair loss
Frequent urination
Lowered body temperature

Other (please explain)

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
SJW, bethanechol, CBD-oil, NAC, ritalin
If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?

Anything not listed in the above questions you’d like to share about your experience?

Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.

Had terrible side effects in the beginning of the treatment, i was shaking, sweating, had genital numbness, went back to my GP and she lowered my dose from 50mg to 25mg. Got back on 50mg after a few weeks and lost all my emotions and overal awareness. Stopped in July, my sexuality and emotions didn’t came back. Very scary if i look back on it since i am the last months a bit more consious about everything.

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#2

Welcome to the forum, @Knifli. Your symptom profile is very close to a lot of users here - including users hit by Propecia, SSRIs, Accutane.

Please fill out the survey if you haven’t already!

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#3

Done!

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#4

Great!

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#5

Bloodwork

21/01/2019 (19yo female at this time)
(All ovulatory)
TSH : 2,69 (range 0,51-4,30)
FSH : 12,5 (range : 4,7-21,5)
LH : 34,6 (range : 14,0-95,6)
Oestradiol : 89 (range 48-314)
Progesteron : 1,5 (range 0,1-12,0)
Prolactine : 16,4 (range 4,8-23,3)
Testosteron : 1,85
Testost.bind.globuline : 75,5
Free test : 0,019
DHEA sulfaat : 346,8 (range 65,1-368,0)

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#6

All seems in order to me

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#7

Yes it is :slight_smile:

Went to my GP yesterday… he thinks that i’m psychotic for linking my gut problems and dissociation problems with PSSD. I’m getting sick of this :confused:

#8

Have you tried to present any of the published scientific literature on PSSD to him?

This appears to be rather common problem that patients are pinned with the “mentally unstable” label for the sin of linking their illnesses to a prescription drug after discontinued use.

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#9

I did, but he only believes in the sexual sides. I don’t know what to do… luckely he’s not going to force me antipsychotics or whatever…

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#10

Hey, that’s pretty good that he will at least accept the sexual symptoms as SSRI-related, all things considered. There have been a couple PFS patients mention recently that they were shoved into mental institutions by their psychs or family members for believing in PFS. What a travesty.

I don’t have any good advice except to treat the other symptoms as a separate entity/etiology from the sertraline and go around his back to report them directly to whatever pharmacovigilance agency presides over Belgium.

It’s also good to see the PSSD community is becoming more accepting of anhedonia and physical symptoms as part of the syndrome.

#11

That’s what happened to me

#12

Oh damn, that’s awful.

Luckely my parents believe me :slight_smile:

I’m going to a dutch pdoc who believes and did research in PSSD soon. (Waldinger) Although i don’t think he can help me.

Thanks for the tips.

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