Post-Drug Syndrome Survey FAQ. Survey NOW LIVE - Please Participate

Ice · February 23, 2019, 2:54pm

I havent received the survey either. Also checked my spam folder

axolotl · February 25, 2019, 11:27am

Hi @Ice - could you please check again later and let me know if you havent received an invite 6 hours from now? As you have not been very active since the relaunch the system may have just picked up on you and may have queued you for an invite since your last post. Thanks.

Ice · February 23, 2019, 3:00pm

Absolutely, thanks!

pvdl · February 23, 2019, 4:07pm

Hey axo,

I have received the survey invitation just now. Thanks for your efforts.

axolotl · February 23, 2019, 4:10pm

Excellent, thanks for your time filling it out.

Lw77 · February 23, 2019, 5:04pm

Done😀
Thanks guys for the effort…
Is there any researcher linked to this survey?

axolotl · February 23, 2019, 8:32pm

We’re in contact with researchers who are aware of the project, but if you mean is it earmarked, no - we didn’t want to do that. We’re very happy to discuss potential publications arising from the data with professional scientists, but I expect that’s more likely to happen at the next stage. And, of course, to see the benefit we need as many patients to take it as possible. In terms of the project, our current focus is squarely on the analytics system, publicising it to the community and making sure everyone is getting their invites ok.

Thanks so much for taking it Lw77 and spreading the word to PSSD patients, highly appreciated

pete · February 23, 2019, 9:03pm

More and more people are taking the survey - imagine this will be big!

pete · February 23, 2019, 9:15pm

Like the @ncsugrad above, I like how the survey picks up where it left, if you close your browser. Accidentally shut it at one point - the survey re-commenced right back where it was.

Ukguy82 · February 23, 2019, 9:55pm

Hi axolotl, sorry to be a pain, but I haven’t received the survey, I’ve checked my junk folder, and cannot see anything. Please would it be possible to re-send.

awor · October 18, 2021, 9:39am

Do you receive any forum mails? If you are a hotmail user you need to add the following emails to your contacts:

forum@propeciahelp.com
noreply@propeciahelp.com

Len · February 23, 2019, 11:35pm

Mine was in my spam folder with the sender marked as “administrator”. It is possible people are not finding it in their spam folder because they do not recognize the sender. Not sure if it will be the same for others but maybe double check.

Thank you again so much.

Ukguy82 · February 24, 2019, 9:52am

Thanks Awor, I’ve now added the contacts to my hotmail account.

Ice · September 16, 2021, 1:00am

@axolotl I still haven’t received an invite for the survey

axolotl · February 24, 2019, 8:24pm

Have now sent a reminder email to both @Ukguy82 and @Ice. Please take a look in your emails and spam folders.

Ukguy82 · February 25, 2019, 1:22pm

Sorry it’s still not come through, I also checked junk folder.

Ice · February 25, 2019, 4:52pm

Same here, still nothing

axolotl · February 25, 2019, 5:10pm

Will follow up in pm with you both.

trav · February 25, 2019, 6:14pm

I still do not see it in my junk folder either.

axolotl · February 25, 2019, 7:11pm

Hi @trav, I have issued a reminder. If you have not received it in around 10 minutes or so, this may be due to unsubscribing from emails in the past. Please follow these instructions (from the first question of the FAQ):

Thank you