Some of the moderators have recently formed a content team for our social media outreach projects. Youtube content is in the planning stage, and we would like to use the platform to help those who are interested in telling their stories share how PFS has affected their lives. Please give thought to any implications with regards to your own privacy, and don’t feel pressured to contribute. This is purely voluntary, and as the benefit of this project is to humanise the problem and bring it out of the shadows, a bag over the head isn’t going to be of much benefit in this medium. There will be other ways to contribute to our projects.
We hope this project can broaden awareness of the truth and the scope of this crucial public health issue - a problem that is too easily buried due to stigma, clinical ignorance and the powerlessness of isolation. Sharing stories together will allow patients voices to be heard in a coherent way and focus attention on the real human cost, as everyone affected is a valuable person.
@Jaime is taking a lead on this project, along with @Dubya_B, @Greek and @pete., For now we’re just registering interest while things are worked out. Please let us know in this topic (or by pm to one of the moderators listed above) if that’s you. You will be contacted to discuss this further in time when plans for the project are further along.
Thanks and best