This guy thinks he understands PFS but he is totally wrong. At least he is not denying PFS, which is something.
I think everyone should be cognizant of the likelihood of this being the tip of an iceberg. Gurus have always popped up within the community or, in very weird cases, latched on to it. As PFS develops in mainstream consciousness there’s going to be a penumbra in which I’d expect a lot of sudden content on youtube, alternative health sites and whatnot from people with plenty of explanations and answers. This is concerning given how suggestible certain segments of the patient community have been to people playing on hope and desperation, but hopefully alongside the forthcoming scientific efforts and patient efforts, education at the clinical level will catch up.
Some quotes from that video
Once you decrease the DHT levels in some individuals, they’re pretty much a threshold of low androgen status to begin with and crushing DHT regardless of the fact that their testosterone being in the therapeutic reference range, their androgen index is too low now, so they can no longer support these male sexual functions so… “Post Finasteride Syndrome” [does air quotes] is really just a fancy term to outline somebody who either has mismanaged estrogen levels or an androgen deficiency induced by the finasteride use.
So, even if this is properly managed and then you still have the “Post Finasteride Syndrome” [air quotes again], this is just an androgen deficiency brought on by crushing your DHT levels. This is nothing that can’t be alleviated simply by increasing your androgen index manually again.
5000 views in three days. 209 “likes”. Comments like these:
These types of videos are so dangerous in that they seek to demystify and make comprehensible something which continues to baffle world specialists in endocrinology and the larger medical community. Had this 39,000 subscribed Youtuber bothered to reach out to the patient community or read Melcangi’s research, he would’ve known how wrong his assertions are. He didn’t and now there’s another video with reasonably slick presentation in which people unsure on whether to take finasteride will watch the video and read this:
and think that this problem is just something that can be mitigated against by having pre-finasteride treatment blood tests done and then “increasing your androgen index manually” if something goes wrong. Faulty thinking, grounded in some kind of RPG video game stat point system where putting that level up and bringing this level down will produce a “balance” and magically fix PFS.
I just stumbled upon this video: https://www.youtube.com/watch?v=iYzHnYXwB90
He explains how post finasteride came to be and how it can be reversed, I’m wondering what you guys think. Is there some truth to it?
That guy is a fucking douche imo he doesn’t know jack about this condition, but hey that’s just me.
Hi @pokertje, your topic has been merged with this existing discussion of the youtube video.
Please use the search function in the future before opening a new topic.
Hej, yeah sorry I got a bit carried away by this. Will do the next time!
If I’m not mistaken, that guy is affiliated with selling RU58841 and potentially Fin too. So obviously it’d be in his vested interest to try to shut down any fear of PFS.