PFS wastage is like going bald but instead of waking up to less hair every day you wake up to less face and body. I’m half expecting to see pieces of face in the shower drain because I don’t know where the fuck it’s going.
btw, here’s what a year of AR silencing does to your gums
Have you had PFS for a long time? How did you manage to develop muscle again? How long did it take to get exercise?
Almost 13 years, so yes. TRT and AAS are the only things that really help with muscle.
How long did it take me to become able to exercise? It’s impossible to say because it’s always been a matter of energy levels at the time, intensity/volume of the exercise, and how badly I had to pay for it afterwards. Things only really improved in the last couple of years, but still not 100% and I continue to experiment with things.
AAS? did you feel pain in your body during this period? did they improve? did you have muscle loss? saggy skin? turned pale? soft muscles?
Anabolic-Androgenic Steroids. Not “pain” really, just a lot of nothingness.
Yes, lots of muscle loss/softening and pale skin. Although it’s not really “saggy”, there has been drastic thinning/collagen loss causing veins to become very prominent.
Dear @mstone mstone, I showed the pfs wastage of my face and my personal habitus before pfs and after 17 month pfs with two pictures under photographic evidence of facial changes. I dont have the horrible gum resession like you but without any neurosteroid and hormon kick I transformed all over my face, my body and my personality from a super fit and healthy 59 best ager now to a care level III 80 yo grandfather. No motivation for any activity. Living one empty day after the other.
As a typical pfs patient I would tell you all about my 100 % recovery now, because brainfog and derealisation is gone away for over a year now and I have 100 % libido recovery some days with sexual thoughts and phantasies but without the ability to have sex, a half sized dick, no motivation, dark thoughts and a waste away body, I dont tell such things.
are you still pale?
Yep. PFS made me pale, yet hairy AF. So pimpin’!
What did your dentist say? Your gum looks very pale, like there is very little blood flow?
Dentist didn’t have a clue, I don’t think he gets many PFS patients.
Yes all of that unfortunately
Welcome aboard. I don’t have too many spasms but I do have joint pain, mostly in the elbows at the moment.
I believe everything will return! when I had mini iturnarounds in the past everything came back, sight, libido, looks, strength, skin, mood, cognition fully restored.
One or two lasted for a couple of weeks, others a day some a few hours. My TRUE belief is that there is a good chance for most I was getting these turnarounds even after 15 years. One thing is for sure that this is definitely treatable and not permanent. Find the master switch, flick it and were all back to our former selves.
People who are permanently in wheelchairs don’t get up and run across a football pitch 1nce in a while, if they did they would be saying fuck this chair I’ll get out of it 1 day. Don’t ever be defeated in this u will recover
I’m 23 years in 1st drop in muscle was in year 1 but it steadied. (Didn’t know the cause). I’ve had numerous episodes of loss over the years but at times it came back. I’d say it really started to pick up jn 2015 when i knew something was seriously wrong. Its become very apparent in the last 4 and accelerated this year where I no longer recognise myself but I’m still here and have managed to keep going. In summary you have years ahead of you and things can change just keep going
Ralph I have many more issues on top of the wastage. Believe me you have time to heal, or st least improve there are many stories and some who actually had repeated use. I bounced back from the abyss a few times and I didn’t know what the fuck was going on. In 2014 I was like an Olympic athlete I felt like steel, invincible, unbelievable euphoria brain function, it lasted for weeks i then collapsed and was rushed into hospital. A week prior to feeling fantastic I was unable to function I couldn’t think at work couldn’t do gym, steeped in suicidal thoughts etc . All before I knew about pfs. My point being this can change at anytime, an example of the polar opposites this disease presents. Stop assuming the worst. Tell your brain you will get better
Is there anything you took that corelate with that improvement?
Anitinflammatories seemed to ne the theme
Any waste cases still working? I know some of you are not working, wondering who’s left that still is and how you’re managing.
Fortunately my company isn’t a stickler for office appearances but I went in yesterday and it was a tough haul. Getting dressed for work feels like putting on somebody else’s clothes. And thanks to the adderall shortage I’m on a new ineffective generic so I was pretty tired…like pre-pfs without my morning coffee (which I would never let happen).
Just a data point on wastage. It’s been said that facial wastage attacks the left side harder than the right and this matches my case, however below the neck my right side seems to waste faster. I noticed this past week that my right arm, hand, chest, and buttock are more depleted than the left.
Shoulder is hard to tell because I have an AC separation on the left side and the tissue that used to pad the protruding collar bone has wasted away and the entire shoulder sags beneath it now.