Whit this videos new young males are going to fell into the trap. Sadly
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Ignorant fucking twats!
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Because brain damage…;;
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No bro! The ones who claim that it’s in our head got brain damage, not us! We have very complex issue with our bodies that affects everything from the immune system to the endocrine system and nervous system, not just the brain or the dick or whatever side we got…
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If you want to disarm these people, hit them with the peer reviewed work that has already been done. Ask them about it. For example, say “What do you think of the lowered neurosteroids found in PFS patients?” And put up a link to the Melcangi study or whatever it is your talking about. I’d be extremely surprised if they’ve ever even seen studies regarding PFS.
If we fight back with anecdotal evidence and emotions, it really backfires on the community in that setting. But we’re approaching the point where we can ignore these people as more and more evidence emerges.
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I think it might not be a bad idea to have a section citing study after study of adverse effects compartmentalized from Propecia, Accutane, and SSRIs.
Basically a go F yourself to Drs and critics that could easily be compiled, referenced and printed out.
For example is this a Psychological side effect of Accutane?
Isotretinoin increased carotid intima-media thickness in acne patients
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If the neurotransmitters or receptors in your brain aren’t working it’s a form of brain damage. I have no emotions. Emotions come from the amygdala in your limbic system in your brain. Memory and sleep come from the hypothalamus. Libido comes from the brain as well. These things don’t come back for most people. At all. You don’t have to be shot in the head to have brain damage. Every neurologist I saw said it’s a form of brain damage.
Same with the genital numbness. Dr. Goldstein did QST and my nerves are responding 2.5 times slower. He called it nerve damage. It’s a form of nerve damage whether it comes from the brain or it’s the actual nerves. And it doesn’t come back for most people either.
You are right that it’s a complex issue that also involves damage to the endocrine system and immune system. But since blood work is normal for most people it’s likely a receptor issue possibly coming from the AR. That’s why we get physical symptoms like muscle wastage and penile shrinkage.
It’s all likely just different genes switched on and off throughout the body. Damage everywhere but saying we have a form of brain damage isn’t wrong.
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Yes you are wrong. People that had no emotions recovered and people that had shrinkage/numbness recovered as well. Dont state facts here when you don’t know.
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What am I wrong about? And what percentage of people do you think recovered from those things?
You’re wrong saying it is brain damage when you don’t know what it is. No one does. And i dont know what percentage. I do know people that have gotten better dont come on these forums. You just seem to be stating things as fact when no one knows any absolutes about this condition
How do you know people got better if they don’t come on the forums? How do you know they haven’t killed themselves? I think you are just believing what you want to believe.
Lol there are a ton of posts where on here where people have gotten over anhedonia and numb penis. Also on the pfs podcast. I think you just dont want to look around. Per usual on this dumbass site, people are hellbent on believe the worst.
It’s always better to think positive. Placebo and nocebo are quite powerful
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There’s not “tons” of posts. In comparison to the number of sufferers it’s pretty small actually. And quite a few of them, like CDNuts, are flat out frauds. And nobody Dr. Healy is following has recovered significantly from PSSD, PFS, or PAS. As a patient of his I can tell you Dr. Goldstein isn’t having great success treating it. Talk to me in a couple of years and tell me what you think. Actually nevermind I won’t be around. And it won’t be because I’m recovered either.
With no emotions there is no positive or negative. Only logical.
Please refrain from posting in such a disrespectful tone about this site. The very first reply you received in your member thread advised you that people often improve with time so it is not the “usual” that members believe the worst
You’re not the first to mischaracterise the whole website as overly fatalistic and you likely won’t be the last. It peeves me to see it because it simply isn’t true. We recently had someone return to make a thread protesting “healing is possible” (implying it’s somehow forbidden to say so on this site) while stating on another website that propeciahelp makes it seem as if this is all “100% permanent for everybody” and that mods ban people who post that they’ve recovered because this is all a front to collect money from people for the Foundation. What follows is literally the first reply they received on this site:
Some more replies to his member story
That this forum is a universally negative “cesspool” is a myth.
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Lol so how do you know cd nuts is a fraud? The guy posted here for 5 years about his symptoms and then got better and people think hes a fraud. Does that make sense to you? A guy posting for 5 years just to try and scam people after 5 years?
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Lol you can’t be that naive/ dumb. Look around. You scroll through one thread it’s literally NOTHING but negativity. Saying that is a myth is just flat out lunacy. Add that to the long list of other problems with this site. People like you are either in denial or just straight up lie about the tone of this site. It’s negative, full of sad, miserable people trying to spread misery. Most people would agree. So either stop lying or snap out of this rediculous thought that this place isnt negative.
This site doesn’t exist to channel positive affirmations toward every crank with a recovery protocol, nor does it exist as a platform to insult those with what is an inherently miserable condition for the severely affected. In all honesty, this has been the only negative, ill spirited, comment Posted today. Take it elsewhere.
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