吴百通—中国非那雄胺综合征受害者

sorry to hear your situation . It’s very difficult to work. I have serious difficulty in finding words and bad logic. I almost teach students history with “intuition” (they are only 12 years old). I don’t know where my knowledge comes from. I think someone compares it to “coming out of a black box”. Brother, I know how you feel. It’s so fucking terrible.
Does your neck and chin seem to be held by a thread? Like a kitten caught by the neck? Are you weak when you speak??

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I have also bad logic and difficulty finding word but I think my brain fog is subsiding a bit. I can work but I don’t know how. It’s hard because I have lot of exams. I also have headache and diffculty to sleep. My neck pain was hard but it seems to be less and less painful now. My pain is now located in my jaw and my ears are inflammed but I have hope it will subside.
Have hope, it’s a bit less hard than two month ago so in two months you and I will have less symptoms I am sure. I will send you some message in one month to know about your situation. I think we have to diminish our time spent in this forum, it can only be good for us. the brain can heal itself, it just need some time. I heard that brain fog is one of the first thing that goes away with time so we will heal
Good luck my friend

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Keep in touch. Our symptoms are too similar (I also have ear inflammation). These symptoms are indeed lighter than a month ago. I am undergoing genetic examination at the Peking Union Medical College Hospital in China. If there is good news, I will share it at the first time . take care of yourself…

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Help, I can’t stop excited. I’m crazy,Why does it always go from one extreme to the other!!I’m so arrogant!

Are you experiencing hypomania?

It seems that yes, especially at night, I feel irritable, but I think it will gradually disappear, just like my severe depression.

Hey buddy, are you taking any supplements? I’ve never had the excitement you talk about.

I just ate some American ginseng to try to improve my brain. This excitement usually appears after 8:30 p.m. if I don’t sleep, I will be more excited. It looks like a neurological disorder. This situation has existed since the onset of the disease.

Interesting. I had very bad insomnia while on finasteride related to being restless at night. I could not calm my mind down at night. Luckily that went away 2 months after stopping finasteride and I sleep better.

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Look forward to your recovery!I’m trapped inside

The four month update is as follows:
I found that I fell too deep.
Spirit: 1. I have been in a feeling of unconsciousness (now better than before). From August to early November, I did many confused things, I lost my will and concentration, and my character has changed.
2.I had bad short-term and long-term memory in the first three and a half months. I basically couldn’t remember what happened before and after my onset (but I didn’t realize it at that time. I felt that my complacency and fearlessness reached the peak). Until today, I still can’t remember effectively like a normal person.
3.The lack of emotion, sensitivity and time concept. I used to be a person with delicate feelings, imagination and creativity. I can recognize the breath of everyone, every plant and every city. Now these feelings still disappear, and so is the concept of time. The four months of suffering of PFS is just “impression” in my memory, I just spend it day by day.
4. The old brain fog (logic confusion and difficulty in finding words) seems to have improved slightly? Nothing is more annoying than memory problems and this.
In short, I can use a metaphor to describe my mental symptoms: when I take medicine, it’s like throwing a in my head :bomb:, It began to smoke, and my emotions and thoughts were gradually shrouded in smoke. When I stopped taking medicine, I ushered in a real collapse, that is, the bomb exploded, my dizziness, my cognition decreased sharply, my head was very swollen, my head was boiling like a pot of water, and my two ears were buzzing (inflamed) like teapot mouths. I couldn’t feel my brain at all, With severe depression, suicidal tendency and brain swelling, such symptoms lasted from the onset to two weeks ago, and then the “temperature of this pot of water” gradually decreased. I felt a brain of “refusing to work” and a “recovery” of calmer emotions and other aspects.Then I realized how ill I was.
Physically: 1. All kinds of discomfort, numbness, flatulence, pain and stiffness are relieved, but the body is still very heavy, and the most
2. My eyesight is getting clearer and my hearing seems to have recovereduncomfortable thing is neck stiffness.
3.All body hair, including hair, is more dry. After the collapse, many tough long hairs grow on my arms. Now they are withering and thinning. My body hardly secretes oil, and it is easy to sweat when I am healthy.My skin feels “tight” (I know some people are loose).
Sexual function: the penis must be shorter, and there will be an unhealthy color at the top (either white or germanium red) and pain from time to time. However, chenbo seems to have recovered and can erect, but it is very easy to premature ejaculation.There are many strange things

Today, my father told me, “your symptoms are all in the instructions of finasteride. Your report is useless. You should calm down and come back for treatment. The military doctor promises to cure you in a month.”. The baofazhi I bought did write “adverse reaction report that appears after listing but is not sure of the correlation - depression”. Okay, but what the fuck is this behavior? After the long series of so-called test safety data of “mild adverse reaction”, keep up with these little nonsense? What is “depression”? My colleague, like an expressionless zombie, eats SSRI and teaches at work every day, but I have become a smiling retarded! Why don’t you write down the damn cognitive impairment, depersonalization, hoop like head pressure?! How many people in today’s society do not have the so-called depression? I’m going to submit materials to the State Council and the food and Drug Administration tomorrow (personal condition + Baylor research and University of Milan) to ask them to investigate the safety of finasteride. It’s best to support the research, but I’m not the damn governor of XX or such dignitaries. If the damn MSD wants to sue me or whatever, let them go

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Sorry to see you are still struggling with brain fog, depersonalization and memory issues. These are very hard to deal with. Depersonalization and anhedonia are hell. Did you feel better when you took a vacation? I heard some people feel better while on vacation.

Wegotyou, I just read your English name today. I’ve come out of the worst depersonalization. It took me more than three months. I’m luckier than others. My brain must have improved. However, I just realized how serious my collapse was. Now I can feel my forehead cold, stiff My brain refuses to work, and my character has changed greatly. It’s hard for me to be angry. My grandmother is more than 90 years old. She has a personality than I do now. I think it’s impossible to wait for the so-called recovery, but I’m really much luckier than those who have been depressed, muscular atrophy and depersonalization. By the way, I can’t take a vacation. My job pays a lot, But I need to pay a penalty for my resignation now. I intend to stay until next summer. If I am still so dull, I will change to a low paid and boring job and devote myself to promoting the understanding of PFS in China.

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Today, I called the China food and drug administration. The other party said it would investigate. Wish me good luck

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Thank you for working to try to get agencies in China to look in to this. We all appreciate it. I’m glad you improved a bit. I remember you were very distraught in the beginning. You seem to be better now. You will be an inspiration to others. I hope you continue improving and your brain comes back. My brain is not 100% but much better. I feel my brain is almost healed. My sexual function is still terrible though slightly improving maybe. Let’s keep fighting on!

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Good luck to you, my friend.

Xiong Feng, 23 years old, my story will start in May this year. In May this year, my back acne was always serious. At the same time, I found that I had hair loss, so I went to the dermatology department of the Third Hospital of Beijing Medical University. The doctor prescribed minoxidil and tanshinone capsules (Hanru said that he was very similar to isotretinoin, had estrogen like activity and interfered with androgens) and selenium disulfide lotion, When she asked me if I wanted to eat finasterin, I refused because I found that it might cause some male problems. So I used minoxidil for two weeks. After eating the tanshinone opened in the hospital, I bought several bottles online. After eating for more than 40 days, my acne almost disappeared for several years, but my hair loss was more serious. During this period, I felt a little weak. There was obviously less impulse in that regard, and there seemed to be a slight obstacle, Once I tried to do it myself. I felt that the time was a little short and I didn’t feel very happy, but I didn’t care at that time. I thought it might be caused by psychological pressure or anxiety caused by hair loss.
Because the hair loss is getting more and more serious, I moved to use Fin again. On June 20, I bought a box of Baofa check from Jingdong, but I still dare not use it. On the 24th and 5th, I tried to crush 1mg Baofa check into a common alcohol spray can and spray it on my head once, as if there was no problem.
Around June 29th, I returned from Beijing to Urumqi, Xinjiang. From July 29th to July 3rd, I only ate tanshinone about once. I felt much better mentally. I chatted with people on the train, and then went out to dinner with my high school classmates on the evening of July 3rd. I was very happy. Then I chatted with my classmates. I heard that he also ate feinaxiong for hair loss for a month, And his mother was a doctor, and then he didn’t eat any more when he felt trouble. I moved my mind again. In addition, I watched a lot of big up videos. I think, why don’t I try for a month? If there are side effects, it’s good to stop. There should be no problem.
On July 4, I took a piece of baofazhi, and then I felt everything was fine. I had no anxiety because of hair loss, and then I took one every other day or two. At this time, some strange things happened. One day when I was taking a bath, I felt that it was a little black, and the size seemed to be smaller and a little numb. I tried it twice, but it seemed to get up, but it was a little painful and had no fun. I thought to myself that I had a bad rest recently, or the side effect was only temporary. I saw the instructions and some up said that the side effects would disappear after eating, so I didn’t care. Then something strange happened, because I studied history. My friends liked to listen to me talk about history, so I told them about party history, but I found that I had fragments and couldn’t find words. Later, when I talked to my colleagues about “the meaning of music”, I felt that this situation was more serious. The third was that I gradually felt lower body pain, much like prostatitis, Since I was used to sitting for a long time in junior high school, I also had some bad habits and had some problems in this regard, so I didn’t care much, but took a little minocycline hydrochloride. Until July 14, when I went to my cousin in Tianjin, I found that I didn’t seem to feel much about the beautiful women I saw on the subway, and I didn’t want to do anything. I didn’t even want to play games, so I wanted to stay in bed, and I woke up a little early at this time. I only stayed at my cousin’s house for a few days, and I was not in a high mood. Once I went to McDonald’s to eat hamburgers. I found that I had to queue up. I felt a little afraid of hands and feet and uncomfortable. Moreover, I felt that the color of the world was not so bright. In terms of image, it seemed that the world was a little out of frame and a little fuzzy.
On July 19th, I ate the last piece of phenanthrene, and then returned to Xinjiang. I vaguely noticed that something was wrong. In addition, I didn’t have the determination to eat phenanthrene for a long time, so I stopped, so I ate about 13 tablets of 1 mg of baofazhi.
It seems that it’s OK to stop the warranty. I seem to have a slight reply. I did that again on July 20. I don’t think there’s any recovery below. I think I’d better wait. The side effects should be gone. But at this time, my lower body pain increased, and it was useless for me to take antibiotics. On the evening of July 24, I became extremely irritable and irritable. I tossed from bed to blow the air conditioner on the sofa and fell asleep very late. Maybe in the early morning, I suddenly woke up and felt that the world was very dangerous. Later, I learned that it was a panic attack. I felt as if I was separated from the world, and the whole world became blurred. I couldn’t control my emotions until noon, I just fell asleep. After waking up, my spirit seemed to return to normal. I could control my emotions again. I was very happy. But that afternoon, I felt something was wrong again. I felt that the number of frames looking at the world fell again, and a vague feeling came back. Moreover, a sense of oppression or freezing gradually appeared in my mind. My brain began to be very stiff. When I signed in the bank, I couldn’t understand why my name should be written like this, but I just did it by intuition, The next day, I found that it was very uncomfortable for me to wake up from sleep, and I found that I had no consciousness below me. It was like death. When I looked at my mobile phone, I felt the screen shaking.
On the 28th, I had a panic attack again. After that, all kinds of symptoms came. The first was the extreme decline of cognitive ability. My memory and logical ability were completely confused. I couldn’t remember what I did in the morning or explain complex things in a long and logical way. At the most serious time, I needed to constantly remind myself not to pass the bus stop, My home is in Hami, Xinjiang, a very small city. Then there is head pressure and swelling pain, especially on both sides of the temple. It feels like something is going to burst. In addition, I have no happiness, anger, sadness, excitement, fear, imagination, creativity, compassion, shame, tension, as well as heavy head and dizziness, The kind that goes up to the earth and twists and turns. Wait, during this period, I saw the world more blurred and felt like watching a movie. I remember when I was a child, I played a game called cf. the characters in it would hold guns. I saw that my hands were the same as those in the game. Later, I knew it was called depersonalization. I went to the hospital to check a lot of hormones and endocrine, and took brain CT. There was no problem, I think this should be a temporary side effect. Just stay optimistic.
But around August 20, the above symptoms did not improve much, and there was also a serious depression and the tendency to kill myself. I woke up every morning with a headache like a bomb. With a strong head swelling and uncontrollable desire to reopen, I didn’t even have the motivation to get up. Many people were very tired before getting up, But I have to face this feeling all day. There are serious early wakes. No matter how late you sleep, it is accompanied by a burst of discomfort in the morning. You wake up at more than five o’clock, and there is no sense of relaxation and pleasure after waking up.
Because it was less than three months after stopping the medicine at that time, I still had a sense of luck. I thought it was just a side effect. In addition, my father also told me that the medicine would be fine after its efficacy. In addition, my work was very good. My leaders and colleagues were very good to me and my salary was very high. I went to work against these side effects. I was a junior middle school teacher.
Not long after I went to work, my severe depression in the early morning turned into my mouth closed, my jaw tightened, my neck and shoulders stiff, like a string puppet and a cat grabbed by my neck. Standing on the podium, I felt like a zombie from my body to my brain. My brain was very swollen and painful, like a boiling kettle, and my ears were inflamed, Just like the steaming teapot mouth, my cognitive logic is chaotic, my thinking is very slow, my sight is blurred, like a layer of fog, lack of emotion and no concept of time. When giving a lecture, I don’t know where the words come from. I can’t feel my brain. My lecture is not good, but I don’t have a sense of shame. My soul tells me that I like my students very much, but in my eyes, my leader and my students are like Arabic numerals. They are 1234567, flat and have no personality. I can’t remember their names. I also found that my voice became very small and I spoke very hard. It was the feeling that I had no strength and could not make a sound. My memory is definitely a mess. I can’t remember my students’ looks and names, and I don’t even know which class to teach. Whenever I want to prepare lessons seriously, I find that I don’t have independent thinking to make some innovation. Every day as long as I sit alone in the office, the idea of reopening can’t be controlled. I still have a serious lack of power. It’s very difficult for me to get up and brush my teeth and wash my face. I’m like a broken scarecrow, blown by the wind. During this time, I hardly had any contact with people I used to know, because now I think of serious problems in my long-term and short-term memory. I don’t know what to do or who to ask for help. I’m completely lost.
It was not until early November that uncontrollable thoughts of reopening and extreme depression gradually disappeared and turned into a dull mood. My head pressure and headache were greatly relieved, and my authenticity of seeing the world was improved, returning to the level before the second panic attack. However, to my dismay, memory and logic problems are still very serious, Now I can feel that my brain is no longer completely empty, but a rigid, non working and non rotating state. It’s like my head has a bad cold. It’s painful to squeeze. Sometimes it’s like a hemp rope pressing against my brain and rubbing it repeatedly. My motivation to do things is still insufficient. My grandmother is 90 years old. She still likes walking as long as I have a rest day, I just spread out on the bed. How can I describe it? Just like Adam in the picture of God creating Adam. My emotions are still incomplete. I’m in a state of loss and numbness. If my parents die now, I don’t necessarily feel sad. Of course, I don’t feel happy. I feel like I’m not like myself in spirit. I’ve lost my male ambition, perseverance and endurance. I used to play a game called European Fengyun 4 all night in college just to realize the global hegemony in the game, That game is more complex and tests people’s endurance. Only the most enthusiastic history lovers can play it, but I can’t play that game now. I have no perseverance and ambition to fight in the game. The only thing I can do is sit down and be stunned, just like the shoelace bill in the galleby Pirates. Physically, I feel quite tired. In addition, some time ago, it seems to have withered and become shorter and thinner. Recently, it seems to have improved a little. Testicular pain occurs from time to time. I don’t know if it has shrunk. I don’t care much now. It seems that the perineal muscles have shrunk, because I feel something missing between my two legs when I stand, Another is the jaw. My jaw is getting tighter and tighter. This afternoon, it’s like the skin on my face is tightening. Today, I went to see the school doctor and said that I may have arthritis like conditions. Even if it’s not tight, I will have a creaking friction feeling when I twist my chin.
How to say, since November, I have recovered a little mentally. Most of the people I know who eat phenanthrene eat bad. My 13 tablets have damaged my brain, which is ridiculous.
To tell the truth, I feel trapped. I can’t fully control my behavior. I always do some confused things and say some inexplicable words.(Sorry, until now, I can’t fully remember what happened)

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Wow, really well written! Sad to see what you went through but I see many similarities to my experience. You do a good job describing the depersonalization and inability to think. I remember a few months ago I was about to pay for groceries and forgot my credit card pin number. I was so confused but now realize it was from the finasteride.

Thanks for sharing. I don’t know why but it was weirdly calming to read. Like seeing my own experience. I hope your thinking and emotions return soon. You have a great mind!

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Never heard of this. Are these peer reviewed scientific studies?

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