吴百通—中国非那雄胺综合征受害者

I don’t know. This kind of thing seems to be just a health product. Wegotyou, I feel like a prisoner in prison. I may gradually adapt to my new life

I hope I can get a complete solution to my mental problems like the moon man. If I implant a Titan prosthesis, I can say goodbye to PFS, but I really don’t think this wish can be met, and my mental disability doesn’t seem to be cured

I’m going crazy, brothers. Every day I face dizziness, fatigue, brain fog, lack of motivation, logical confusion, lack of personality and memory problems. I’m very tired ~ I don’t even have a voice to speak,150days,It’s disgusting.

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Hang in there mate u still have time to improve take each day as it comes and try not to think the worst. DONT try any supplements or other medicines as this can make things a lot worse, I’m living proof of that.
Every day behind u is a milestone. BELIEVE things will get better.

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这两天突然恶化,我的舌头一天比一天萎缩,现在一不留神口水就出来了,我的牙突然疼了,虽然我的记忆力稍有恢复,但我说话的时候脑袋僵硬而发痒,我的颌关节似乎完全失去了软组织,每张口一下,就会难受,昨天我用手抠了我的耳朵,整个外耳道就发炎了!我太累了,我才23岁,发病5个月,但鉴于我这些精神/性功能/恶化的躯体的狗屁症状,我确实想买一个瑞士的安乐死胶囊舱。
我敢肯定,我不会好起来,最理想的状态是在几年后脑雾消失,然后坐在轮椅上看着这个世界运转,也许脑雾也永远不会消失…我为什么如此贫困,在戏剧性地接触了几片药物之后就成了这样一个怪物?

Yes i know its cruel. The doctors killed us with their fucking pills and they said to us to the pills are safe. And now we are monsters. Unimaginable to a normal human what happened to all of us. We cant die in Switzerland unfortunetly. That is not an option to us.

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what medicines make you become worse?

I’m sorry to read about how you are doing @baitongWu

Although it’s only a small thing I still think that it is vital, and that is your humour. Despite all that you are going through, your humour shows your personality and strength of spirit, and certainly brightens my day. Keep that light and humour alive, and as I said, I’m sorry that things are so tough for you just now. I just wanted you to know that I value your contribution, even your offbeat posts! Hang in there.

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guys, my dizziness seems to have suddenly improved! After my gums and teeth ache, they seem to have made a deal
shit,dizziness come back,if I don’t eat food ,I will feel worse

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Running led to my retrogression. I retrogressed at least two weeks mentally and added new problems physically. Please be careful with exercise

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Today, I want to seriously update my post.
As you can see, in just six months, my post is full of nonsense. Only recently did I react that it is caused by extreme anxiety. My mental problem is so serious that I have become a chattering complainer.
I’m sorry to you.
It was like this when it first crashed!
Sexual
[✓ ] Loss of Libido / Sex Drive
[ ✓] Erectile Dysfunction
【】Complete Impotence
[✓ ] Loss of Morning Erections
[ ✓] Loss of Spontaneous Erections
【】Loss of Nocturnal Erections
【✓】Watery Ejaculate
【✓】Reduced Ejaculate
[✓ ] Inability or Difficulty to Ejaculate / Orgasm
【✓】Reduced Sperm Count / Motility

Mental
[ ✓] Emotional Blunting / Emotionally Flat
[✓ ] Difficulty Focusing / Concentrating
[ ✓] Confusion
[ ✓] Memory Loss / Forgetfulness
[ ✓] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[✓ ] Lack of Motivation / Feeling Passive / Complacency
[✓ ] Extreme Anxiety / Panic Attacks
[ ✓] Severe Depression / Melancholy
[✓ ] Suicidal Thoughts

Physical
【✓】Penile Tissue Changes (narrowing, shrinkage, wrinkled)
【】Penis curvature / rotation on axis
【✓】Testicular Pain
【】Testicular Shrinkage / Loss of Fullness
【✓】 Genital numbness / sensitivity decrease
【】Weight Gain
【】Gynecomastia (male breasts)
【】Muscle Wastage
[ ✓] Muscle Weakness
【】Joint Pain
【】Dry / Dark Circles under eyes

Misc
【✓】 Prostate pain
[✓ ] Persistent Fatigue / Exhaustion
【✓】Stomach Pains / Digestion Problems
【✓】Constipation / “Poo Pellets”
【✓】 Vision - Acuity Decrease / Blurriness
【】 Tinnitus (ringing or high pitched sound in ears)
【✓】 Hearing loss
【】 Increased hair loss
【✓】 Frequent urination
【✓】Lowered body temperature

Other (please explain)
Dizziness, head pressure, intracranial burning sensation, depersonalization, dry skin

now,
Sexual
[✓ ] Loss of Libido / Sex Drive(20%recover)
[ ✓] Erectile Dysfunction(30%recover)
【】Complete Impotence
[✓ ] Loss of Morning Erections(sometime )
[ ] Loss of Spontaneous Erections(improve)
【】Loss of Nocturnal Erections
【】Watery Ejaculate(recover)
【✓】Reduced Ejaculate(60%recover)
[✓ ] Inability or Difficulty to Ejaculate / Orgasm(20%?)
【】Reduced Sperm Count / Motility(I don’t know)

Mental
[ ✓] Emotional Blunting / Emotionally Flat(improve)
[✓ ] Difficulty Focusing / Concentrating(improve)
[ ✓] Confusion(improve)
[ ✓] Memory Loss / Forgetfulness(improve)
[ ✓] Stumbling over Words / Losing Train of Thought (improve)
[ ] Slurring of Speech
[✓ ] Lack of Motivation / Feeling Passive / Complacency(improve)
[✓ ] Extreme Anxiety / Panic Attacks(improve)
[ ✓] Severe Depression / Melancholy(recovered)
[✓ ] Suicidal Thoughts(recovered)

Physical
【✓】Penile Tissue Changes (narrowing, shrinkage, wrinkled)(improve)
【】Penis curvature / rotation on axis
【✓】Testicular Pain(recovered)
【】Testicular Shrinkage / Loss of Fullness
【✓】 Genital numbness / sensitivity decrease(improve)
【】Weight Gain
【】Gynecomastia (male breasts)
【】Muscle Wastage
[ ✓] Muscle Weakness(improve)
【✓】Joint Pain(sometime)
【】Dry / Dark Circles under eyes

Misc
【✓】 Prostate pain(recovered)
[✓ ] Persistent Fatigue / Exhaustion(improve)
【✓】Stomach Pains / Digestion Problems
【✓】Constipation / “Poo Pellets”
【✓】 Vision - Acuity Decrease / Blurriness(recovered?)
【】 Tinnitus (ringing or high pitched sound in ears)
【✓】 Hearing loss(improve)
【】 Increased hair loss
【】 Frequent urination(recover)
【✓】Lowered body temperature(sometime)

Other (please explain)
Tongue curl,Mild head pressure,Mandibular disorder,Slight toothache,The beard grows slowly,Some degree of dizziness,Like to wink…Numbness of hands and feet(little)

Generally speaking, I have improved significantly, or the symptoms have begun to be tolerated slightly. Now anxiety and brain fog are my biggest enemies.

But I feel more and more scared because I seem to gradually adapt to this sad state and begin to forget the “me” in my healthy period. I use “lost” to describe my state. I often feel that I am born with all kinds of imperfections, as if I have ed and other mental problems before taking poison, because my memory is still lost, So I can’t remember what kind of spirit I had, what kind of senses I had, and what kind of guy I was. After this torture, I became very tired and mentally looked like a 100 year old man. Do you have this feeling?

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最恐怖的是习惯了这种副作用,反应过来会觉得哪里不对劲,很恐怖

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:100:

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最近我过得不好,我的脑子依然很乱,一刻不停地想乱七八糟的事,但我的自满情绪似乎已经消失了,脑雾应该也好了点,我对我的处境感到愤怒,任何小事都能引起我的怒火,尤其是我的工作压力很大,我的睡眠也没有一个月前好,我现在在线上办公,和我妈住在一起,当她在我眼前晃来晃去的时候,我非常难受,如果她再弄出点什么动静或者做了分散我注意力的事,我会立刻爆发,我不能像原来一样忍受她的缺点。
另外我的下颌关节紊乱越来越严重了,我除了工作已经很少张口,吃饭对我来说都是一种折磨,当然我还有牙齿问题。
不知道为什么,我的头顶左前方又开始一种半烧灼半压迫的疼痛,可能是用脑过度?
我现在真正认识到,我可能真的已经“死亡”了,我现在非常喜欢安静,哪怕是其他PFS病人跟我对话,我都会感觉到无趣—因为死人是不关心任何人的,或者说我也没有什么必要和这些同样的死人再说些什么(埋葬在一起?)
我也不会奢望什么所谓的“恢复”,事实上我的确有相当的恢复,尤其是精神方面,但只有在精神上越来越好,才会发现这场灾难是多么恐怖,我看到“恢复”或者别人问我“恢复得怎么样?”我就会觉得这像给我喂狗屎一样恶心,跟何况,问这些问题的人大多都是些消极的坐以待毙/悲观主义者,想象时间能解决一切问题的傻瓜,这个论坛的存在就足以说明时间对绝大多数人而言只是又一个谎言,然而绝大多数人都不会正视这一点。

一个人的死是微不足道的,一万个,十万个人的死都是如此,想到这里,我又一次敬佩awor和axolo还有Mitch和Green等等,他们是真正的勇士,尤其是axolo,我实在想不出他还有什么理由去继续这一切,在绝绝绝大多数人都旁观/消极/哀嚎/甚至嘲讽的情况下,向命运发起挑战,在这一刻,胜负已经不重要了。
我很想善待我生命中的一切,可惜在我没有善待我自己之后,我做不到这些事了,我只能让我妈在我情绪不好/压力大的时候离开我,以免我再冲她发脾气,然后继续做我的小抄,以应付我的工作。这就是我一天的生活,我待在十平米的小屋里,日复一日对着电脑。

我现在还在这个世界上,无非是因为怨气,我消耗着我的耐心,也消耗着别人的耐心,去度过没有时间概念的每一天,我要去上课了,再见!我只知道,今天我还“活”着,明天也不会“死”。

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This ugly evening when I took the first pill, I read the leaflet with ED, watery sperm and even loss of Libido can persist. Before I read ED can hold on after quitting and men can get infertile I stopped to read, thought two weeks after quitting all will be fine again and throated the Merck pharma war machine murder pill. I was insane that evening. I was insane two months, when I sucked the poison. But the system is murder to let the pharma war machine kill!

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今天我干了件蠢事,事实上,今天早上我的感觉还不错,相对而言有更少的脑雾和焦虑(胡思乱想),下午我尝试动了一下我的枯萎的鸡巴,之后我立刻感觉到了情绪的暴躁不安,脑雾的加重,轻微头痛、下颌、脖子的发紧,牙齿痛以及其它一些细微的变化,我需要把它记录下来,告诫自己不要再这样做了

另外说一句,由于我的脑子始终在胡思乱想或者放一些音乐之类的,我不得不“挑”一些音乐/MV在我的脑子里单曲循环,最近我迷上了这个
【泽连斯基翻跳乌克兰妖男组合Kazaky神曲LOVE完整版-哔哩哔哩】 https://b23.tv/Ipz7VMv
希望你们也能喜欢 :stuck_out_tongue_winking_eye:

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I know I have not been participating on the forum lately. I’m sorry to see you suffering so much. You seem mentally stronger though. Maybe I am wrong.

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是的,谢谢你,我的精神方面确实有好转,因为我开始怀念我的“大公鸡”了,但我的整个头部和脑袋里还是有物理的疼痛/不适,以及脑雾焦虑之类的,但我已经学着忍受和应对这些症状了,没必要时刻发泄绝望,毕竟我有过更坏的时候…

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这两天有点不爽,认真的,我的口腔感觉着火了一样,只要稍微工作一下,我的头和整个口腔的烧灼感,颌骨紧张度,舌头卷曲感似乎就变得难以忍受(指的是难以忍受的难以忍受,在这个论坛上并不意外),我总感觉很渴,当我用舌头舔牙齿的时候,我能感觉到一股咸咸的血腥味,我吃饭的时候必须要备着纸,因为我的嘴老是漏菜汤…
我真的很想把我的脑袋“打开透透气”,往里面倒上满满的冰镇啤酒🍺 ,然后重新地神清气爽,说真的脑子里压了一块腌菜石头的感觉绝对是比看见“枯萎的大公鸡”更恐怖的事,或者换个方法,把头放进冰箱去?

我认为很多人只有在难以忍受时才会在这个论坛上发帖,当然也有人已经无法言表他们的痛苦了,但无论如何,这不是我放弃的理由,我可以平淡地忍受痛苦,但这并不意味着我可以坦然接受命运,最起码,我需要一个答案,告诉我一个答案,究竟能否回到以前,为了这个答案,我会继续活下去,并在我能力范围内作出贡献。换句话说,人人都是向死而生,无论何种结局,我都离解脱越来越近了👊

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