Theoretical discussions related to IHP's story

Yeah, let’s close down the theories section.

Lets close down??? WHAT THE HELL??? WHY DONT YOU CLOSE UP THE TOPIC ABOUT THE WEB SITE WHERE PEOPLE CANT FUCK. THIS IS ABSURD! SERIOUSLY…WE ARE REALLY LOOKING INTO SOMETHING THAT MAKES A LOT OF SENSE. AND SINCE YOU RE SO DESPERATE ABOUT YOUR LIFE SECOND AM WHATEVER IS YOUR NAME…WHY DONT U TTRY TO MAKE LIFE CHANGING OPTIONS…LIKE PERHAPS EAT HEALTHY AND EXERCISE MORE, YOU GUYS ARE NUTS, THIS IS GOING WAY TOO LONG, YOU ARE AWARE THIS IS THE MOST WELL KNOWN WEB SITE ABOUT PFS,AND KEEPING INFORMATION FROM OTHER IS QUITE SUSPICIOUS…AND ACCORDING TO SECOND A, …HIS LIFE IS ALL READY FUCKED, WHY EVEN BOTHER TO COME HERE…MARTIM WROTE ME TODAY AND SAID…WHY DO U KEEP COMING TO THIS THREAD IF ITS NOT YOUR THING MOVE ALONG…SO YEAH YOU AND THE OTHER ONES,IF ITS NOT YOUR THINK MOVE ALONG!!!

Then why do u care if we spend our days here talking about healing??? WHY DO U CARE? what is it so annoying about it mew???

I’ve eaten healthy and exercised my whole life. I am using those methods, along with certain HDAC Inhibitors, as my route to recovery.

The problem is, some people get hyped up over one member’s “recovery”. Last summer, everyone was obsessed with solonjk and some Greek doctor who supposedly had esoteric knowledge that PFS was a case of chronic prostatis and only he knew how to cure it. Despite Frustrated’s thread proving he was a fraud, some 10 propeciahelp members flew to Greece to get treated by this “doctor”.

It appears the same people are repeating the same mistake. Now, people are getting obsessed with IHP’s “recovery”, and how it points to PFS being some case of fungus (seriously, WTF?).

These “treatments” are not only costly, they are dangerous. I fully understand that everyone is intereted in making himself feel better, guessing what the cause of PFS is and treating that cause is getting people nowhere. Instead of wasting time writing how finasteride “caused an infection by messing with our physiology” we could spend that time writing to media sources, government agencies, and research institutions. Instead of wasting our money going to Greece and getting treated by a doctor who claims to have arcane wisdom, but we could put that money aside and set up our own research fund.

but your body is a reflection of what you eat…where did those pills go thru to get to our blood??? ONE CLUE…GUT
so yes the problem can totally be there…

But my liver metablized it and I pissed and shit it out along time ago.

really?? that;s the reaction of 99% of all doctors…

So yes doctor i took finasteride and my dick is smaller and i cant have sex and i dont feel like myself…

In their minds they are going…

so yes you get the picture, you can say all you want dude, im not backing it down ,not even one BIT.

Mew, this thread is already hidden. Please don’t disguise your authoritarian stance behind some benevolent pretentions. We are free-willed grown ups, who just want to share information and thoughts in the forum which is de facto the main public place where similar sufferers gather. The use we make of our time is 100% to our discretion and you have no say in it. You just want to prevent us from discussing things outside of your decided upon theory inside what you obviously see as YOUR forum, as if nothing but Awor’s angle of research has any validity. We actually ARE reaching out to doctors and scientists besides brainstorming on this forum (now isnt the time to disclose who how and when). The “immune theory” makes plenty of sense to them in case you wanted to know. And most of us already have reached out to lawyers, reported our cases to Merck and our national “FDA” (pharmacovigilance in France), etc etc… It has nothing to do with the fact that we still feel the need to share information and brainstorm, some of us not always with the utmost scientific scrutiny, to promote the emergence of promising research avenues (awor’s should NOT stay the only one), tentative empirical treatments etc… If you shut down the theories section (which access has already been restricted to members only) you might as well put that warning I suggested earlyer about this being a place to discuss awor and mew-appointed PFS ONLY, with NO freedom whatsoever to attempt any discussion of other potential mechanisms for PFS beside the epigenetics theory. There truely is an atmosphere of dictatorship on this forum recently, how revealing is it that a noob that calls himself “SecondAmendment” (obviously a firearms lover) is so empressed to act as the head of your militia.

and if its not your thing…WHY ARE YOU HERE??? GET OUT DUDE…SERIOUSLY GET OUT OF HERE. STOP COMMENTING GODDD

It’s simple: if you don’t think there’s merit to IHP’s recovery, then don’t post here. Allow those who want to exchange information here to do so. Create your own threads to discuss other ideas.

I shouldn’t let a newbie punk like 2nd amendment get under my skin, but the gall that this kid has to spam every thread he disagrees with, to anoint himself as the spokesperson for Awor’s study (which we are all in favor of, let’s not forget), and to criticize people who’ve been suffering for 50 times the length he’s suffered, people who’ve genuinely contributed to this PFS community all the while his only achievement is to put up a suicide blog—WOW! Really?

Do you know how many doctors I’ve written to, you asshole? Do you know how many researchers I’ve written to? Do you know how many scientists, microbiologists, influential bloggers I’ve lobbied for insight and publicity? How many hours I’ve devoted to research and exchanging tips and support to fellow sufferers?

Do you know of every PFS research initiative that’s currently going on? Or are you too busy sucking Awor’s limp dick?

Do you know how many times I’ve had my blood drawn, filled out new doctor forms, have had to revisit the painful details of my PFS downfall? How many doctors I’ve seen? How many painful procedures and examinations I’ve had? How many thousands and thousands and thousands of dollars of my own money I’ve spent, how much money I’ve borrowed all to chase a cure for this evil disease? And how I faithfully report back, adding to the database of knowledge?

Do you know how many treatment plans, how many damn supplements or medications I’ve tried? DO YOU? Then shut the fuck up! You don’t know as much as you think!

Do you see me ascertaining anything after nearly 5 years of this suffering with even a shred of the certainty you do? No, I qualify everything I say as opinion, hypothesis or conjecture, I do it humbly, and I also post a lot of information that people find helpful. And I do it over the noise of loudmouths like you. There ARE people who relieved symptoms from taking antibiotics, you know-it-all prick. MANY. The risks of Fluoroquinolones are serious, and that has been communicated. The merits of one particular doctor’s technique have been discussed. But that does not rule out prostate inflammation or infection as part of the pathophysiology for many finasteride patients. Get your head out of your ass and allow people to discuss their ideas and their symptoms and their treatments. THERE ARE people who have experienced relief with Flagyl (antibiotic/anti-parasitic), with Nystatin (antifungal), with fasting and diet and so on (improvements that CHALLENGE your declared sentence that we are ALL necessarily doomed). There very much is merit to the thinking expressed on this thread. So if it doesn’t apply to you, then go write on your blog. Stop censoring us. We don’t prevent you from performing any research, if our ideas are so baseless, they ought not to threaten yours. Take a hike! Seriously! You add no value to anyone’s life here. I shouldn’t have to exchange studies and lab results offline, but that’s what people like you force me and many others to do. YOU are the one who is missing out. Despite the toxic environment here, you are lucky that some guys weather it and report inspiring stories of recovery like IHP. If it was up to you, you would have given IHP a death sentence. You would be THAT kind of doctor “Nope, there’s no hope, you’re gonna die, son, 2 weeks max.” You and others like you sound EXACTLY like the doctors who are SO certain in their knowledge that they do not acknowledge finasteride’s ill effects. You are EXACTLY like the establishment we despise.

2nd amendment? What happened to the first?

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scientific proof… my urine test show severe dysbiosis…
and i saw candida and toxins in my blood in the microoscopy… i saw my hemoglobins agrouped… like i have a strong infection… i saw my estradiol elevated… 50… 20 - 40 range… thats why i believe in my doctor and i believe in ihp… just members can see this post…
so don’t worry about legal issues i just want to help…

sorry for bad english!

youtube.com/watch?v=w0Ljna3C7eY

Guys, hate to sound like mew, but you should try a bit more scientific scrutiny if we dont want to be easily discredited.

I know IHP did it too, but live blood microscopy really seems like nothing but quackery… What you saw in the miscroscopy most probably didnt mean anything, even though it can leave a pretty strong impression.

Here is what someone with another mysterious illness (not a PFS sufferer) has posted on another (private) forum I visit after having LBA done by a convicted QUACK :

The doc that performed the LBA was shortly after revealed to be a known quack and scam artist by knowledgeable members of the forum. The sufferer turned out to have lupus…

Please also visit these links :

thestar.com.my/news/story.asp?file=/2009/10/5/starprobe/4824574&sec=starprobe

sciencebasedmedicine.org/index.php/live-blood-analysis-the-modern-auguries/

microscopesblog.com/2009/10/live-blood-analysis-is-it-scam.html

guardian.co.uk/society/2005/jul/12/health.science

seniorsaloud.blogspot.com/2009/10/live-blood-analysis-scam.html

quackfiles.blogspot.com/2005/04/naturopathic-technique-stirring-bad.html
And of course, mew’s favorite :
quackwatch.com/01QuackeryRelatedTopics/Tests/livecell.html

Heres a case FOR LBA made by an homeopathic doc (homeopathy is the biggest scam ever, but anyway)
thestar.com.my/news/story.asp?file=/2009/10/15/focus/4904385&sec=focus
In short here is what he has to say in defense of LBA : " … it is not to be used as a diagnostic tool, but rather as a screening tool at most. We know that certain people abuse LBA for monetary gains, but that does not make it less scientific."

Please dont post this kind of useless stuff anymore unless you want to make things really easy for mew…

Do you realize this is an ad for a website which name is “curecandidaquickly(dot)com”??? Try using some common sense!

Candida and other fungi infections are often very hard to diagnose and even more so to treat (and nearly impossible to cure 100% once candida has turned mycelial). Any site that sells you a candida cure should not be taken as a source of information (except maybe sarah vaughter’s). Especially if they promise a “quick fix”.

Candida overgrowth is probably much more common that most doctors want to recognize, but surely isnt as prevalent and at the source of every disease as these spam sites want you to beleive. A “candida” google search yields 99% of crappy spam/scam pages, which is probably the reason mew thinks it cannot possibly be a legitimate concern (a logically flawed way of reasoning).
Basically, you should only use pubmed when you want information on candida…

Also, I do not beleive that candida is a problem for every PFS sufferers. Other pathogens and/or autoimmunity, along with dysbiosis, are other likely culprits for the persistence of our condition in the “iPFS” theory frame.

like i said…
we had a intestinal infection… because this … our body produce a lot of cortisol… that lead… to sympthons like impotence… because the first thing that the body cut is sexual hormones in case of infection… after a time… our adrenal became tired… so we had… adrenal fatigue too… this complicated the things a lot…
and that’s it folks… … with the leaky gut… our strogens… back from bloody because… the liver discharge the estrogen in the intestine… with a inflamattion and posibly leak gut… the estrogen… back to our bloody
thats the healing theory

candida is not the cause, in the blood is just a symthom of a leaky gut
if we heal the infection… and cure our intestine… candida is easily killed in the blood… so candida don’t worry me

I just want to express agreement with Venceremos’s nuanced view: it doesn’t help the ImmunePFS argument to cite weak sources. And many quacks abound who make claims regarding candida. But their lack of integrity does not rule out the validity and seriousness of chronic infection, chronic inflammation or the power of pathogens to wreak havoc. I get daily emails of studies and case studies of guys with chronic symptoms who’d been using antibiotics until they discovered that their prostatitis symptoms were gut/fungal in nature and then were healed by switching meds. I can’t wait for Venceremos to present some of the studies and links he’s found. They’re evidence that we should be taking a more synergistic approach with Awor’s theorizing, there should be more data-sharing (NOT LESS), 'cause these concepts are not mutually exclusive.

I also applaud Florindo for keeping it simple and focusing on his gut-feeling. :wink: We do tend to over-complicate things under the false pretense of science. You could do a lot worse than attempting to rid yourself of infection, strengthening your immune system/gut. Good luck Florindo!

guys… in my biology class in the school i learn that when the hemaceas are agrouped like a single file is a infection… and i had a big one… i saw in the microscopy toguether with the doctor… i put my blood in the glass and saw that… a saw candida too, ok everybody have candida… but in the bloody?!

guys i don’t know if is in the gut or in prostate… i’m waiting for blood test and psa tests… 10 days… but i can say with 99% that we had a infection… cortisol up… sexual hormones downhill… logic…
adrenal became stressfull and after the next step is cortisol down toguether with all other hormonies… so if you still had high cortisol is a good thing here…

ihp give me a light… now i’m looking for proofs… for treatment i become use probiotics 10^6 lactobacilus rammnosus… and vitaminis, C, E cooper and zinc…
l-glutamine… i believe this helps a little…

when my blood tests arrive i will talk to my doctor… and add more things to this salad…

i think the solution is near… my doc said to me that in 9 months i will be fine… if it happens… i can proof that ihp is right… and i can rest

Xhorndog we will win this battle!

Has anyone other than IHP made this stuff yet? Where did you buy it and what type of milk did you use: Coconut, WHole, Lowfat?

IHP didn’t make it, he used store bought. Full fat/whole milk w/o any hormones or b.s. would be ideal. A lot of people advise easing into Kefir (consider reading the GAPS book or website) and fermented foods. You can also make non-dairy Kefir. Or use fermented veggies as a source of probiotics (homemade as per the same above link if you navigate around their how-to vids). Whole Foods sells organic fermented veggies like Ginger Carrots, Sauerkraut, etc.

Here’s a kefir “grains” starter kit: culturesforhealth.com/starter-cultures/kefir-cultures.html

It keeps regenerating, so you don’t ever have to buy more.

Drugs behave as substrates, inhibitors and inducers of human cytochrome P450 (CYP3A4)
http://www.ncbi.nlm.nih.gov/pubmed/18473749

Finasteride is an inhibitor of this enzyme. This enzyme is in the intestines and liver and is responsible for processing xenobiotics and drugs. Turnover of gut CYP3A4 is likely to be a function of the rate of enterocyte renewal. What are enterocytes? A type of digestive enzyme: en.wikipedia.org/wiki/Enterocyte

What can undigested food lead to? Putrefied bowels. Dysbiosis. Pathogens. Chronic infection/illness. Etc.