oh,thanks!
but I’ve felt worse since taking mixed supplement(magnesium calcium VitaminD).
I will not take it for a long time…
If taking,would take the only form.
By the way, I found symptoms were based on candida problems.Maybe related to GABA.
(This is why borax or baking soda makes some feel better?)
Then do you think borax will make symptoms fade away?
I think it’s much more complicated than just a candida infection. If it was, we would have found that a simple fecal transplant would have cured us (yes, it’s as bad as it sounds, and by the way some have tried and felt better.)
I’ve taken very heavy antibiotics, killed all my guts biodome and replaced it with probiotics. I’m still sick.
But you’re right, candida worsen our symptoms and gut biodome has to be addressed.
What works for someone does not for another. You can try baking soda, but be careful with borax. I use it to solder silver jewelry and kill ants. Along with boric acid, it’s a Boron compound and large doses can be lethal (coma, death etc…)
We’re all in a delicate balance and it doesn’t take much to throw us off balance.
No I don’t recommend to take that supplements, go for Butyrate.
You just said you’re still sick but didn’t you previously say you were basically better?
14 months ago I could barely walk and stand up, had anxiety to die for, was sexually and mentally disabled and now, even if I don’t take the supplements and cheat on my diet with pizza and shit, the only thing I get is more insomnia (and brain-fog if I didn’t sleep or, apparently, if I didn’t have caffeine). The other symptoms are gone.
Plus I had a belly pot which turned into a well defined 6 pack, almost an 8 pack. I look like a thin, muscular marathon runner and I’m more in shape than I’ve ever been for physical performance. That’s at 51 yo. I’m full of energy and never have hypoglycemia, even if I don’t eat for 1-2-3 days.
To me, it’s obvious that the ketogenic / carnivore / almost zero carbs diet, plus the exercise are responsible for most of the changes. Without the diet, if I eat carbs normally, insomnia becomes worst within a few days. I didn’t try beyond a week of having carbs so I don’t know how bad it would get.
I think the supplements were instrumental in getting better but didn’t have as much of an impact. Without the day supplements, life just becomes more dull. I’m less enthusiastic, less motivated, less confident but that’s not as dramatic as eating carbs.
Without the bedtime supplements I just can’t sleep, especially considering I’m taking benzodiazepine which cannot be stopped cold turkey without severe withdrawal symptoms. I still cannot take a nap in the afternoon, I just won’t sleep by myself.
I took fin for 20 years. I started having insomnia 5 year ago, while still on fin. It’s the first fin symptom I noticed but in retrospective I had others, more minor ones. I went on taking fin for 4 years as insomnia was getting worst. I guess it was predictable this particular symptom would stick longer.
Now insomnia is my last symptom and it looks like I can’t eat large amounts of carbs without getting worst. So I’m still sick but I think it’s undeniable that I got better.
I can’t prove it, but I have a hunch Butyrate and Beta-HydroxyButyrate played a role in easing the long term symptoms (like the sexual ones). I get at least 2000 mg of butyrate from ghee and I get the BHB by transforming fat (into BHB) with the ketogenic diet. The neurological symptoms disappeared within a week just by cutting carbs.
Some researches hints at Butyrate and BHB working in synergy to protect from the epigenetic damage of some diseases and in some cases reversing the damage. I don’t know if it applies to pfs but I’m sure willing to keep at it in case it does.
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yeah,I regard borax dangerous,too.And this is not famous manner even here,so I don’t know how many doses I should take.
But what all I watched here shows everybody who was taking felt better and so recommended.
Although I will try something with GABA,if no effect,I may take borax.
(before that,perhaps I will try 5htp)
Well, tell me how it goes if you try borax. I know in low doses it’s not toxic and I’m curious of the results.
What results are you expecting from it ?
Good luck !
Borax kill leydig cells, If I were you I would not touch it.
I came back once again, to report that I am 100% free of symptoms.
I strongly recommend a few things.
1- Stay away from stress as much as possible
2- Diet is important but periods fasting too.
3-Butyrate ( This is incredible stuff for recovery I believe that it was what really give me the final push in combination with BHB ).
I you are planning to buy BHB, buy it pure.
Good luck.
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I know there’s no way to know this but would you say recovery or at least as recovered as you are is possible without supplements? I have schizoaffective disorder so I can’t fuck around with my neurotransmitters or take l-dopa in particular
In my opinion, it’s the carnivore / ketogenic diet, using Ghee as my main source of calories, that helped the most. Neurological symptoms mostly disappeared within a week of stopping carbs and all symptoms improved within 6-9 months.
Ghee has lots of Butyrate and Ketogenic diet transform fat into BHB. If those help, the diet has extra benefits. No matter what, In my opinion, most of my recovery if not all is due to the diet.
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awesome man thanks i appreciate the answer
I think the success stories should be put in a seperate section like the old recoveries section was.
I appreciate the rationale behind closing the recoveries section, as many weren’t bona fide, but some were and there have since been many, many others which just get lost in the mountain of other stuff in this forum. Like this sole thread has already been sidelined many times already. It would give hope to many in what can often appear as a hopeless place.
I agree. Maybe @Dubya_B or @Greek can do something about it.
Lots of this thread is on the original topic but it has derailed from its purpose sometime ago.
I also agree this thread is important. Hope can save lives here.
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thanks
But I don’t immediately try…
From now I am trying other supplements.
Thank you for your caution.
As you said,I will avoid until other supplements don’t affect me.
Here’s a video that explains in easy terms what is epigenetic. It is believed (or maybe it’s a fact, I don’t know) that pfs is a disease that is partly or wholly caused by epigenetic damages.
On the 5th of September 2019 on this thread, I posted multiple science articles that hints at Butyrate and Beta-HydoxyButyrate (BHB) possibly working in synergy to prevent or maybe reverse some epigenetic damage caused by some diseases. Again, I will state I do not know if pfs is one of those disease. However, a common element of recoveries include low carbs diet and fasting, both of which creates BHB.
I myself have had considerable improvement of my condition by cutting carbs to almost zero, therefore producing BHB, and eating lots of ghee which is considered the most abundant source of Butyrate. I get at least 2 gr of Butyrate from ghee everyday from my diet. That’s better and more natural than supplementing with sodium Butyrate for example.
Butyrate and BHB could be unrelated to my improvement, nonetheless this video on epigenetic can be interesting in understanding what might be affecting us.
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How much ghee do you consume in a day for that amount of butyrate? I did try full carnivore for 3 weeks (cooked everything in ghee too) and it honestly made no difference, but I did lose almost all my body fat. Super lean still.
70 to 100 gr of ghee.
But that doesn’t matter, you can buy strains of probiotic bacteria that will turn fiber into Butyrate. (Clostridium butyricum)
Also, being keto produces at leat 10-20 times that amount of BHB.
It took me 6 months to start seeing changes in sexual symptoms and other, more profound symptoms. Now I’m almost 15 months in the diet and I still have improvements. It may take years to get to where I was pre fin.
Meanwhile, I’m lean and muscular. I like it.
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Why not?
You said on another thread that your only remaining symptom is insomnia. So do you still have sexual symptoms or not? Also saying you may take years to get fully better is incongruent with what you’ve said on here before. Just trying to get a clear answer