Stem cells as a therapy

I’ll get the bloodwork and you can look at it if you want but I’m not exactly sure what you’re looking to prove by it. I can give you my before and after shoe size too. I’ve always had pretty decent bloodwork with good testosterone levels and suffered from impotence. Ive supplemented vitamin d and still been impotent. There are plenty of people all over the USA with poor vitamin d levels who don’t exhibit PFS symptoms.

Anyway I really don’t give a shit if you believe me or not. I just tried something that I thought might help and am reporting my experience here. The more I recover the more emotional I get and the more emotional I get the less tolerant I’m getting of your posts.

Even WITH supplementing D most guys can’t get in range. That’s the point.

Emotional sounds like high e2, maybe you’re going in the wrong direction? With the history here of these types of threads and the complete absence of any proven PFS treatment in 10 years I’m surprised you get “emotional” when some of us ask for more information. For me that would seem to be the first thing I would do if I thought I was onto something instead of attacking anyone who asking for usable data. There are alot of desperate people here who would shell out any amount of $ for a “75%” improvement. You yourself even said you wanted guys to procede with extreme caution after the Kos disaster.

It’s emotional in a good sense

A year ago someone could walk up to me, spit in my face and I would probably have no reaction, maybe just sit there and wipe it off. I’ve been feeling more aggressive lately, more like my old self.

My issue here is that your “proof” is not proof at all. It’s a load of horseshit. I have been to doctors who have brought my vitamin d in range and my T in range or even at the highest levels of the range. Guess what? I was still impotent. The only difference was I was an impotent guy with great labwork.

In the beginning I was very cautious because of the mess in Kos and also from my own personal experience of only being able to feel better for a week or so no matter what I tried. I think at this point after seven straight months of improvement I can recommend the treatment without hesitation. The price is steep but it’s a bargain compared to the money I have blown over the last ten years on “PFS doctors” and various supplements

Stop being combative just to add credence to your argument. I could throw a hissy too but I’m not sure that’s proof I’m responding to androgens again. You well know I mean vit D, 3 adiol G, neurosteriods, and so on and more for research purposes than my purposes. Would be interested to see the other four or so guys who have had the treatment comment or provide lab screen shots as well. Obviously if most any of us were onto something so big (75% improvement) we’d be doing everything in our power to lend scientific evidence to it. If you don’t want to publicly post your labs then forward them to Awor with a description of the treatment. He certainly has more knowledge to interpret them and is privy to findings the rest of us arn’t.

Joetz -

I can totally relate to the emotional aspect that you refer to. My current state is exactly what you described yourself as a year back. I feel completely disconnected emotionally. Feel nothing for things that used to matter to me in the pre-fin state. Like you said - I have great lab work - My total T, Hormones, Glucose level, cholesterol, Thyroid, etc. is fantastic, but I know I don’t feel right and I’m not right. I have the built of a solid athlete, but none of the aggression or emotion I used to have even three years back. I’m seriously looking at Stem Cell therapy as an option, and doing my research on clinics.

Please ignore people who will always find a flaw in whatever you say…I’m sure there are many of us here who find hope in your success and wish you the best.

Joetz, I’m not sure why you put “proof” in quotes. No one asked for your labs as proof you are feeling better yet you keep posting as if someone did.

Many people found hope in one member’s “success” from a Greek doctor’s Prostatitis treatment.

Let’s not forget that we’re all on the same side on this issue. We’re all glad to hear that Joetz is doing substantially better.

This isn’t so much a matter of people not believing in your improvements. Rather, I think things are just getting to the point where it helps to be more systematic on evaluating what works and what doesn’t and what the symptoms are. It would also be nice to go beyond the outer symptoms and see where things stand on the inside. Joetz, maybe there has been some hormonal shift or neurological repair that has led to your improvement and that this could be seen through before and after blood tests. If you have insurance or if there’s a doctor you’ve worked with, see if you can’t do one more round of tests for the usual suspects (+ adiol-G if nothing else, that was probably low for you). If nothing else, it would also quiet down any naysayers. And if nothing changes, then no big deal, at least we know.

Again, thanks for coming back and posting updates.

Can’t really compare. Desperate people find hope in a lot of things…but some options have known scientific basis and some don’t.

  1. There are Stem Cell clinics all over the world and a lot of people are benefiting from numerous ailments. I lot more research is being done in other parts of the world compared to the US. I’ve not heard of a Kos-like “Prostatitis treatment” anywhere else in the world.

  2. Kos was widely publicized in this forum - it was almost like the intent of the poster was to send people there to chase this treatment. Joetz has not publicized the clinic or its location even once.

Believe what you choose to believe…no one can stop you. I believe what joetz is going through is real.

Huh? Who said what he going through isn’t “real?” Some have made the request to get bloodwork because if he is, in fact, recovered post-recovery bloodwork could be extremely beneficial to the community. Not an unreasonable request given the amount of suffering on this board. I have no idea what the strawman arguments or the indignation is about.

I came to the same conclusion.

Second-

Some have made a request and some members have demanded “proof”. Same have implied that they don’t believe what joetz is sharing unless they see bloodwork and other tests. I personally don’t need to see “proof” in what is being shared. I’ve done my research and I believe the scientific basis behind this therapy. The biggest hurdles are of course the cost and the confidence in caliber of the doctors and the clinic. When I can overcome these hurdles, this is a treatment worth considering.

On his part, joetz has already done all of us a big favor by sharing his experience - there was no obligation on his part to do this. There are many posters who visit this site when they are going through the pfs symptoms and then disappear completely when they get better. To me those are experiences and data points that could have helped the rest of us immensely. Whether joetz shares his bloodwork or not should be his decision - if he chooses to…great, it not I’m still appreciative of the effort he made in sharing his experience.

Because stem cell treatment centers are widely proliferated (in your estimation) they must be successful and must all be ethical. By that reasoning since every city has at least two or three Reiki practitioners it must be a successful and ethical practice. As has been already stated top tier research institutions such as Harvard and Duke have been very vocal about the completely unethical and dangerous nature of a vast majority of these completely unregulated clinics. All use basically the same business model btw. Selling hope to the hopeless with little to no basis in science.

I think there is some confusion here between research and clinical application. Yes, there is a large amount of promising stem cell research going on. But, for now, the clinical applications seem limited.

Kos - Unsubstantiated claims ran wild while documented facts were hard to come by. Exact same situation here, to this point.

I don’t really care if Joetz or anyone else find my posts difficult to “tolerate”. We are a large group of highly desperate people who do not need to be victimized all over again in terms of lost time, money and hope. If you are going to make such claims you should be well prepared to back them up with scientific evidence particularly if you’ve made similar claims in the past.

I hope that something out of the field of regenerative medicine can help all of us someday but it would seem to make sense to seek out a treatment under the care of a well known research hospital and not a completely unregulated clinic. Several major universities have regenerative medicine centers now. I’d hope anyone here considering such a treatment would consult with them before listening to anyone here, including me.

John Hopkins Newsletter
Stem cells from fat may target brain cancer.

Stem cells can track migrating cancer cells and are used to deliver treatment therapies directly to them. Scientists commonly use stem cells taken from bone marrow, but commercial bone marrow stem cells are difficult to extract, making it a dangerous process.

Taking stem cells from adipose tissue, or fat, is typically easier and safer. The process is less invasive and expensive than the process of extracting stem cells from bone marrow. There is also evidence that stem cells from fat are more resistant to malignant transformations that can occur in transplanted stem cells.

This new study doesn’t just explore the possibility of using stem cells from fat, but from fat taken from the patients themselves. Doctors like Quinones can be excited for possibility of moving beyond one-size-fits-all treatments for brain cancer.
jhunewsletter.com/2013/03/28 … cer-62387/

Problem with just picking out a paper is that it might be a good amount of time before these findings make it to the clinic. There was another recent study creating new blood cells from stem cells. In that study the normal damage your DNA goes through wasn’t corrected but epigenetic changes were reversed. It would be interesting to see what sort of treatments schools like Johns Hopkins and Wake Forest are currently using.

I know BP said he hasn’t had much improvement but I wonder how the other guys who had this treatment are doing. Would go a ways to make the case for this if two or three had verifiable and lasting improvement.

I may have missed something, but what does this have to do with us?

artipot.com/articles/532276/ … y-life.htm

best colostrum ive found because it filters out casein, a protein in milk that many people may be sensitive to:

marysgarden.com/colostrum/mh … psules.htm

I did a pubmed search on colostrum and stem cells and couldn’t find anything. Don’t forget these people selling natural supplements will make wild unsubstantiated claims just to sell their products.

Also, be careful with stem cell transplants. Doctors are finding that people who undergo stem cell transplant are experiencing sexual dysfunction as well and they don’t know the cause.

Also, did BP and Kentucky ever update us on their progress? Hasn’t it been many many months since all three guys have had their stem cell procedure? So far only Joetz has reported back with positive results, where are they other two?

This is the article dgreene is referring to. mdsbeacon.com/news/2011/09/1 … lantation/

It states 48% reported dissatisfaction with their sexual function after stem cell transplantation. That’s a shockingly high number. In light of that I too would be interested to hear how Kentucky, BP and whoever else has had this procedure is doing.

A lot of those studies were done with stem cells harvested from a donor so I’m not sure how relevant it is to the discussion. That’s not the type of therapy that Kentucky, BP or myself did. We had body fat liposuctioned and the stem cells were created from our fat and then put in an IV.

It states 2 studies were done with the patient’s own stem cells, 5 were done donated stem cells and 7 were done with either/or.

From the article -

“In one study, patients who received stem cells from a donor reported more changes in sexual function and experienced more hormonal disorders, compared to patients who received their own harvested stem cells. However, two other studies found no difference in the ability to have sex between these two treatment groups.

It’s also important to note they are saying both those treated with donate stem cell and their own stem cells experienced lowered sexual function after transplant.