Apparently, only 141 people are really sick … The rest are just charlatans. I think the survey is one of the most useful things to do to help our community. If you are consulting the forum without doing the survey, you probably don’t deserve to be healed. I don’t say it with malice, but it’s not right to cry on yourself, without helping those few people who try to do something to help the search. If you feel too bad, if the brainfog is too strong, let someone help you, like I did. There is no justification for those who do not take the survey.
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Support from me! We should try to help each other! This survey takes 30 minutes out of our time, everyone can separate 30 minutes to do it, there is no excuse for that!
I will pledge to donate $100 if we can get three more people to take the survey and confirm completion in this thread. Additionally If you are pming with people please help them complete the survey if needed. Be a squeaky wheel and make sure everyone and anyone you are taking to has completed the survey and follow up until you know it’s done.
Edit: I am not trying to be preachy. It took me forever to get it done and I had to be reminded multiple times.
@Greek, @Dubya_B, @awor - does the site offer badging functionality? Could we create a badge or a “membership level” that indicates the community projects that were completed? Not to alienate those who haven’t, but to celebrate those that have?
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When and if you donate, could you update it onto my summer fundraiser topic? I’m trying to raise 2,000 this summer and have members update on the thread when they donate 
Coming soon (ish)!
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I can’t believe, guys. I never had dry skin before. Even after PSSD.
My hair and my skin are dry and my hair changed texture.
I don’t know why it"s happening before 10 months. Only think I used in last two months are NAC and Tribulus
I used NAC 700mg/day
Tribulus 700mg for 3 week (cycling 1 week on and 1 week off).
I doubt NAC can reduce DHT. I think is Tribulus.
Any opinion?
I’ve read a lot of research on Tribulus Terrestris, most of them shown that Tribulus don’t increase levels of Testosterone or DHT. Maybe is just placebo effect.
Little update
I did simple blood work (I’d really like do complete blood work, but is too expensive for me) on July 25th. Yesterday, I had the results:
. Prolactin 10,73ng/ml… Range 4,04-15,2
. Total T 5,93ng/ml… Range 249-836
. Free T 45,00pg/ml… Range 40-200
So far, the Prolactin issues seem fixed after Cabergoline using. But I don’t see improvements.
Total Testosterone and free Testosterone, are litle increased, but are still on low range, especially free T.
I’m still worsening and I never felt so bad before. It’s like my baseline is this.
Bladder pain, frequent urination, testiucular pain, pelvic pain, penis pain, anal pain, dry skin, dry hair, hair easily breack and TOTAL impotence (before, i can easily reach 50% of erection if I was near my girlfriend, now nothing. Even if I try manual stimulation).
I can’t understand why, all this symptoms came later 10 months from the crash.
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My family believes it’s depression, but I’m slowly dying.
I continue to deteriorate drastically. My muscles have totally disappeared, my weight has dropped a lot (I haven’t changed my diet), my hair is falling fast, my skin is dry, my joints are very bad, my fatigue is debilitating, I get injured with extreme ease, my libido is completely non-existent, the tissues of my penis is getting smaller and smaller, my nipples are increasingly swollen. My memory is bad, I forget everything, it’s like memories are dreams. I can not concentrate.
My hands tremble.
I fear that I will soon end up on the “In Memoriam” list too.
I want to live, I want to enjoy the beauty of life, I want to run, laugh, drive, fix cars, play computer games, work, make love. I’m not a depressed, I love life. I want to live!
I love my family, I love my girlfriend, I love my pets.
I don’t want to die.
I repeat:
I WANT TO LIVE.
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You’re young.
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Progress is slowly being made toward determining a therapeutic target.
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You still have a girlfriend.
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Your pets still need you and don’t think any differently of you after developing this condition.
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As the PFS Foundation annual announcement stated, we are coming to the point where there will be irrefutable evidence of this conidtion and I think having proof of the existence of PFS will do worlds to help those of us who landed here after using different substances.
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In the grand scheme, you are still in the early days of suffering from this condition and I hit my high-point 7-8 years after crashing.
Just a few things to think about.
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Do you think the tribulus could be making you feel worse?
Reading about your desire to live in the face of such symptoms is an inspiration to everyone here. You are incredibly strong. I will pray for you tonight.
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Yes, I think yes. Maybe also the sun exposure.
I tried NAC, Tribulus and sun.
I would drop the tribulus first if I was you. Despite some claiming it gave them long-term improvements, there are also a few who say it made them worse. Not sure about the nicotinamide. I personally hate afternoon sun exposure since Accutane, but can only say it makes me feel gross and overheated while I’m in the sunlight. I’m fine as soon as I step into the shade.
Try extra hard to be kind to your girlfriend if she is treating you well and sticking with you through these tough times. It’s difficult to not be easily aggravated and cranky when you have to deal with this shit, but even more difficult to replace a good partner.
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My situation has deteriorated drastically. My penis is shrinking terribly. It has changed shape. The glans is tiny and soft, it hurts a lot. I’ve been taking nothing for months now. I slowly reduced Clonazepam to sd eliminate it, hoping to improve memory symptoms, but nothing has changed. I don’t want to die. I’m scared.
I tried Cialis. It has always worked until June. By now it has totally stopped working. By now my case has become like that of @Demon…
I lost every kind of connection with my penis.
I don’t know what I did to destroy my situation. Maybe sun exposure or tribulus.
I think is an AR overexpression, not hormones.
On jenuary, O tried one shot of TRT and I saw a little improvement in my penis (bigger).
Now, I’m pretty sure that if I’ll try TRT I will crash.
My anxiety is come back again!
I can’t get up from my bed…
It’s a nightmere!
Why?!
I don’t wanna die. Why?!
It’s over a month I stopped Clonazepam (slow taper off), but my mental symptoms is going to worse.
My memory is fcked up.
My visual elaboration is sit.
On 15th august, my family went to launch to my home. I couldn’t make out the faces…
I remember calling my sister, but I had it in front of me. I couldn’t see her.
I feel like a computer without RAM memory.
I can’t process the data that my eyes capture.
Maybe was better when i took Clonazepam. I though that Clonazepam was blowing my mind up, but it wasn’t.
I keep getting worse. I have pains all over my body. The testicles and the penis are bad; they have become much smaller. I keep losing a lot of hair. My cognitive faculties are continuing to deteriorate. Anxiety is back too. I have tremors all over my body.
As soon as I crashed, I didn’t have all these problems, I only had erectile dysfunction and low libido. I had a second crash since May.
I don’t understand what hurt me. I used NAC and low doses of tribulus that month.
I booked a visit to an endocrinologist who works with Melcangi. I hope to solve the physical and mental problem. I no longer even think about sexual problems.
I would like to give advice to anyone who approaches PSSD or PFS for the first time:
do not follow what users say about supplements. Any substance is potentially fatal in our condition.
Just follow the admin tips. Complete the questionnaire and participate in the YouTube project. Put your face on. People need to see that we are not just an avatar on a forum.
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Didn’t you say in August that Benzos helped your mind?