You’re joking right?
sigh
Go back and read Xhorndog’s post about guys who never took Finasteride in Greece who have prostatitis and ALL OF THE SAME SEXUAL SYMPTOMS AS US. Then read how they recovered via treating the prostate.
This one shoe fits all bullsh*t of yours is utter nonsense and is only hindering this thread. If you want to preach your androgen deficiency stuff go and do it on that thread and leave this one alone.
This is the Theorys section. It is a theory and one well worth the discussion. You’ve made your feelings known and we’ve all heard your point of view so please let it go.
J89, you just made his point for him.
If they never took Finasteride and recovered by undergoing prostate treatment, yet guys who took Finasteride did not or cannot recover from prostate treatment, that likely points to other issues as the source of the problem – ie, the various effects of Finasteride’s 5AR2-inhibition (ie, everything it does when you take the drug) – not simply “prostatitis”.
You’re comparing apples (guys who took Fin) to oranges (guys who didn’t), which is pointless.
He’s not joking. As for solonjk being reprimanded, he’s certainly done enough damage to his own credibility by his own postings. However, that’s not to say that future actions won’t justify a serious look at his account.
Because of Solon, guys independently went to urologists, had TRUS scans, and were diagnosed with chronic prostatitis.
You can debate how to properly treat this finding, but it’s dangerous, Mr. Spstriken, to tell everyone that because YOU didn’t have sexual sides during YOUR “prostatitis” that other men do not have the condition. (And let’s not forget that getting diagnosed with CP is not mutually exclusive of any other health finding. This concept seems to escape all the “all-or-nothing” theorists on this board).
In fact, not everyone with CP has sexual sides, or the same exact symptoms. That’s how it is with any disease or condition. There is a constellation of symptoms, and certain ones hit some people worse, some people can be asymptomatic. The parallels between those CP guys who have sexual sides and sensitivity and libido issues and us PFS guys are astounding. But it is also hard to ignore that the PFS guys are in worse shape. The classic CP cases generally also do not seem to have fibrosis. That can be explained by the studies demonstrating finasteride’s androgen deprivation/fibrosis-inducing action. It is too premature to know the likelihood of reversal, though, even as everyone expects/demands an overnight solution.
You guys have to stop playing doctor. Mew, you admonish Solon for posting that he’s considering a prostatectomy (a crazy idea, I agree, but I can understand his flippant attitude with this forum after months of him reporting back in earnest from this environment only to be attacked for presenting a new concept. I now understand the pain, exhaustion and frustration of looking from the outside into the forum). You say that he has to be responsible for his words and influence…
On the flip side, you have directly and indirectly lead people to do hormonal manipulation, to take testosterone, and see PFS doctors who’s practice you know it is to issue hormones, when, in fact, this may be the very reason some people have WORSE CP, or not treated root causes at all, and in the process shut down endogenous production of hormones.
Which is more likely—that a new forum member will run out and get his prostate removed (as if that was even possible–it takes a month to begrudgingly get a TRUS from a uro, lol)—or that people follow your lead, Mew, and experiment with hormones. And tell me, what medical background do you have to dispense this advice? And what practical experience with treatments do you have? To my knowledge, you have not tried a single medication, hormone or treatment, isn’t that true?
Now, these may seem like sharp words, but let’s keep some integrity here. The forum has been an invaluable source of information, support, and networking for all of us sufferers of finasteride poison. But it hasn’t always been a “forum”, a free exchange of ideas. We want to hang people and ideas before their time. Luckily, some guys are finding other doctors and treatment centers and branching off with the theory, and that’s productive. Calling it quits before treatment is over, holding this doctor to a standard that no other PFS doc who’s received thousands and thousands and thousands of dollars from us with no results, is not called for. WAIT, guys. WAIT.
On the flip side, you have directly and indirectly lead people to do hormonal manipulation, to take testosterone, and see PFS doctors who’s practice you know it is to issue hormones, when, in fact, this may be the very reason some people have WORSE CP, or not treated root causes at all, and in the process shut down endogenous production of hormones.
I and others have advised many times there are treatments out there that can manipulate hormones (ie, TRT, clomid, hCG, tamoxifen, arimidex), this is common knowledge. There are links to scientific papers about these treatments on this forum which are freely available to download. However, we are not doctors, nor should our advice be taken as such. There is a disclaimer at the bottom of this site on every page outlining this. In fact, it’s probably best if guys looking into hormonal therapy visit sites like Dr. Crisler’s forum or Anabolic minds, since those are generally the guys who have first hand experience with these treatments. I have suggested this in the past, as have others as well.
Further, based on my understanding of such treatments, generally I provide my opinion with regards to TRT as a “last resort” and that it generally probably should be taken with hCG to maintain fertility, and try to warn against the dangers of its use as it otherwise may shut down endogenous T production. You of all people should realize this, considering you’ve been around here for awhile.
I’m sorry if you think the existence of this website has “directly or indirectly lead people to do hormonal manipulation”, considering there is a section for natural supplements and other regimens, and various Theories abound. People are free to do as they so choose, based on the information they have available to them; but we do have a responsibility to each such that we should not promote dangerous advice. A prostatectomy is quite simply dangerous advice, considering its effects, especially for men like ourselves who likely have already undergone damage to our prostates via Finasteride and can see what this can do.
or that people follow your lead, Mew, and experiment with hormones. And tell me, what medical background do you have to dispense this advice? And what practical experience with treatments do you have? To my knowledge, you have not tried a single medication, hormone or treatment, isn’t that true?
In general I believe in the following approach: propeciahelp.com/treatments
That is, a 4 step process – wait to see if symptoms resolve, if not, try natural supplements, dietary changes and excercise. If still no improvement, there are hormonal therapies available to try and correct documented imbalances. If no success, the last resort is hormone replacement. As noted in the link, each of these has its risks and needs to be discussed with a health professional before underdaking such treatments.
I never claimed to be a doctor, and am simply a university educated layman suffering from PFS who has poured all of his energy, time, focus and significant finances into research Finasteride, trying to get this problem as much medical and media awareness as possible, and to get the scientific community interested enough so we can be investigated in the lab and get answers as to the root cause.
If that’s not good enough for you (and you know I’m a helpful guy… considering you asked me to send you the various PDFs you attached in your previous long post, so you could even forward them to Dr. G, since you told me he was interested to learn more about Finasteride’s effects on prostate and penile tissue/erectile function, and so I sent you tons of info to pass on, irregardless of everything that has transpired here)… well, then I’m not sure what your problem is, but I guess we’ll have to agree to disagree on whatever the issue may be.
I shouldn’t have to defend my actions for running the very forum you are posting on or in devoting my time to trying to help people since 2006 here, especially considering you seem to be the only guy passionately “defending” solonjk, a user who through his own posts, has destroyed his own credibility in not only my eyes, but the eyes of many others on this site.
Yes, he brought up the suggestion for people to get TRUS scans etc, and to investigate the prostatitis angle, which is great; but it is only part of the picture, and his suggestions of radical prostatectomy really detract from anything else he’s had to say, especially considering his deletion of his entire post history to remove all traces of discussion. For many, this is not some trivial thing, it’s actually quite critical to his credibility, especially considering the anonymous nature of this forum.
When people are influenced by a user to believe they should take a month off work, take out loans, spend thousands of dollars, put their health at risk via black-box warning antibiotics, undergo painful treatments etc… you’d think the guy who is proposing such treatments would have a moral duty to ensure he acts in a truthful and transparent manner when posting on this site. Unfortunately, many feel this has not been the case considering what has occurred, by his own actions (deletion of posts, taunting of users, joking or serious (?) suggestion of removing one’s prostate etc.). I’m not sure why you are defending this type of questionable behavior, irregardless of your personal situation and financial/time investments in going to Greece, but it is puzzling.
Anyway, I think you completely took my last few comments way out of line and are severely overreacting. I’m interested to hear more about what the guys who underwent treatment in Greece have to report; unfortunately, thus far the reports we’ve received have not been the most encouraging. Good luck to you and the rest of the guys over there who have ponied up the money, time off and effort… hopefully something will come out of it, for better or worse.
Did ANYONE that got a prostate ultrasound show no signs of infection?
Mew, my issue is that you keep hinting at banning Solon. And you’ve banned others that do not agree with you in the past, so I wouldn’t be surprised if you took this drastic and unnecessary step which discourages so many of us from posting our valuable ideas and experiences. From talking to the guys at the clinic and members of this forum offline, it’s clear that this sentiment is shared by many. I really think you must not be aware or must not care that you discourage so many from posting.
I find the manner in which you question/vet/interrogate/attack people with progressive ideas to be counterproductive. Here’s an example where you scared the guy away with overly-aggressive e-mails:
viewtopic.php?t=2262
I’ve thanked you many times for your tireless efforts at accumulating finasteride research and hosting this forum, but I’m just frustrated Mew. I’m a finasteride patient, a sufferer, and I’ve shelled out lots of money to proactively treat. And I and others like me find the forum to be a hostile environment to report back to. Spstriken can talk about testing fiansteride on goats and constantly suggest that we’re suffering from multiple sclerosis (did you click on his last link??) and suggest that it is upon us to explain Osteoporosis (wtf???) in context of “The CP Theory” and it’s Solon (who raised awareness of chronic prostatitis and got us thinking) who is being threatened with banishment? And then people wonder why guys who recover just disappear from the forum. Who needs the constant agony??? If I were healed today and tried to report back, I’d be crucified! How long could I try to make my point before I tired of the process??
The tone of the forum is informed by the administrator, and the message is always the same: if your new theory or treatment doesn’t fit in with the establishment’s decided narrative (AR desensitization or whatever), if a mainstream doctor doesn’t believe in it (leaky gut, candida), then it cannot be a part of the healing process or tied to finasteride (completely misguided in my humble opinion). You chime in with the same charts and ideas (which frequently revolve around the damage that finasteride exacts on the prosate and penis organs—which is why I can’t wrap my head around why you’re so against the exploration of this topic), re-explaining to everyone that finasteride did XY and Z…but in the absence of any practical treatments to reverse this finasteride damage, what is the point of re-echoing the point in the middle of EVERY new discussion?
You only cite mainstream, “accepted” medical sources and opinions, the same ones that denied our finasteride condition, from the same system of medicine that allowed this drug on the market and dispensed an endocrine-disrupting pill to teenagers and men in their twenties.
Furthermore, you and loads of people on this forum are looking for one, single, solitary “eureka” cause or reason. You don’t seem to grasp that different people may heal in different ways. Yes, the root cause is hormonal disturbance beginning with finasteride, but there may be a dozen (or thousand) different profiles of finasteride-damaged patients and thousands of manifestations of health consequences. For some, the hormonal imbalance may have caused primarily thyroid disorders, in others, severe gut symptoms, in yet others, it may have made them more susceptible to infections, and in others, it may have really wreaked havoc on their penile tissue structure. And some people may suffer from all of these ill effects. Thus, the “CP Theory” doesn’t have to address everything. It addresses that people are getting diagnosed with CP (by multiple urologists), just as people might also have crooked dicks (finasteride/fibrosis) and peyronie’s disease and fungus and thyroid problems.
The one unifying, umbrella theory is the theory of finasteride: take it, and you mess with your hormones, your immunity, your system’s balance, your prostate and penis tissue. Now, how you go about fixing each subsystem, just how deep you have to go to find root causes, and in what order to fix everything is up for constant debate. Too frequently, I don’t observe productive debate. It’s “YOU’RE WRONG, WE KNOW FINASTERIDE DID THIS, YOUR CONDITION DOESN’T EXIST, I’M RIGHT, YOUR’E WRONG.” People make these comments with such presumed authority, yet precious few of us, however sophisticated we think we are in our hormonal knowledge, have any credentials whatsoever.
Everybody is quick to hang Solon, but the guy hung around a lot longer than I would have. However crazy (desperate) his prostatectomy post/call for attention was, I think he deserves the benefit of the doubt for proactively seeking treatment for so many years, and diligently reporting back, and raising awareness for CP. Despite being constantly derided and attacked by the herd here.
You can post all the disclaimers you want, Mew, but the main message that is promoted by this forum is to take hormones to make up for the hormonal deficiency caused by finasteride. You repeatedly told people that YOU didn’t have prostatitis, so you couldn’t see how this could be a PFS issue. That’s irresponsible, in my view. It’s one thing to say that you personally trusted your urologist’s examination, but it’s another to imply (with all the influence you have) that “it could not be so” and dissuade others from seeking an independent diagnosis. I’m only holding you to this standard because you’re being a bit melodramatic in suggesting that people are going to “run out” and get a prostatectomy because Solon’s frustrated with his particular resistant staph infection. (This would have been a perfect springboard for conversation about the resistant cases that the doctor sees…and what antbiotic cocktails he uses on them, and the injections he does and other useful information like what precautions to take, like not feeding a suspected infection/inflammation with sugar/carbs/hormones/dexamethasone experiments etc.).
I know you disagree, and I know you may find my post abrasive and offensive, but I really mean no harm. Perhaps you can resist immediately typing up a retort, and consider how a guy who’s been fairly level-headed, polite and thoughtful in his posting history and very deliberate and methodical in seeking treatment from highly accredited doctors (and reporting back) has come to a point where he has to be so confrontational. Perhaps you can step away from being forum administrator and your deeply-entrenched theories regarding finasteride, and look at the forum from the outside world where no one theory has any more value than another. I mean, I don’t recall there being any “I told you so’s” on Awor’s demethylation experiment, and that was some crazy/risky shit he was doing to himself!!! Nowhere near the same uproar…and now we’re talking about one of the centers of a man’s sexuality, the prostate gland, a gland so severely affected and targeted by the drug we all took, and there’s so much righteousness. Unbelievable.
Instead of building on the positive feedback (positive, but not conclusive or complete) from guys who report back, we’re harping on the lack of 100% miracle cures. If it’s not a supplement that gets you hard overnight, then it’s not as worthwhile a theory, eh? Throw out the whole concept, right? The guys who are branching off into discussing the intestines/gut, the guys who are finding other CP centers and methods of treatment, those are the ones adding value to this discussion. The guys that are looking for the magic bullet theory or cure just come here to heckle and vent their frustration with finasteride by taking down others. I guess I understand–I’m engaging in this back and forth to blow off some steam myself. I’d rather not have to visit a thread with 30 extra unnecessary pages of idle banter, though, and just get to the meat and potatoes of treatment details, feedback, and civil debate…
Flip through the pages of this thread, and count how many useful posts there are, and how much dribble/arguing…why is it like this, Mew? The guys who came to Kos are not calling for Solon’s head—why are you?
Ultimately, we’re forced to take a side, Solon’s side, or the doctor’s side, or the CP theory side…we don’t want to, but we’re forced to because the value of exploring the topic at large will be eliminated unless we represent the other side…but we’re not about taking sides, we’re just patients seeking treatment with open minds…can’t you guys just be a little more open-minded and not rush to immediate emotional judgement? It may be that treating/healing CP only prevents future risk of cancer. That’s significant in and of itself. Nobody here is going to stop looking for answers, that’s why we come back here, we can never be sure we’ve got it all figured out, and we never thought we had it figured out–it’s just that I feel an obligation to report back that I am seeing things with my own eyes, people getting independent cultured diagnoses of infection, and seeing results with this doc—so attention needs to be paid here, perhaps this doc knows what he’s doing in treating CP AND fibrosis (are there other threads on practical treatment of fibrosis caused by finasteride on this forum? I don’t know). Again, I’m far from recovered, and there’s a long road ahead of really painful treatment (this is NOOOOT a massage, stop using that word; and injecting and pumping your dick twice a day is ANOOOTHER type excruciating pain/hell).
Bottom line: can’t we be a little more logical in our approach? It’s not PFS -OR- CP. PFS could include CP for x% of the population. It’s not PFS -OR- thyroid disorders. It’s not PFS -OR- Zinc deficiency/Pyroluria. It’s the cascade of events that occurred since taking that first pill…and it’s a long, exhaustive list…but please, for the love of God, look at the very significant studies that Mew, himself has amassed on prostate and penis damage, and perhaps include this thread and theory and line of thinking in your personal health investigation. And simultaneously monitor what JN is doing and others are doing. It’s not all or nothing.
I agree with a lot of your points Xhorndog but Solonjk’s behavior has been outrageous - there was absolutely no need for him to go and delete all of his posts just after he had relentlessly convinced so many men to go over to Greece. For him to then go on to claim that he is recovering and then to come back only to say he’s going to get his prostate removed made me genuinely angry, mainly for the people that has just spent over £5,000 on treatment. He didn’t just propose this theory, he was actually forcing it upon the whole forum, going as far as to posting his beliefs in members stories. I can’t even drag up any quotes because he deleted his posts.
Banning him would not achieve anything though and would be a very bitter and illogical move in my opinion. This thread is now 75 pages long - let’s follow it through and see how things turn out. Solonjk has been a member of this forum with very severe side effects for years; i am sure everyone wants to see how things end up for him.
I can’t even drag up any quotes because he deleted his posts.
Frustrating, isn’t it?
Not really, on the whole i couldn’t give a shit.
Ok been thinking this morning of a prostate treatment that takes into account all my prior experiences:
-
Empty bladder frequently - so full bladder does not irritate things more.
-
Take mild laxative so it takes pressure of the pelvic area - constipation is something to avoid as it exacerbates
-
As i have had benefit on doxycycline - continue to take
From wiki:
In a preliminary 2005 open label study of 16 treatment-recalcitrant CPPS patients, controversial entities known as nanobacteria were proposed as a cause of prostatic calcification and symptoms found in CPPS.[27] Patients were treated with EDTA (to dissolve the calcifications) and 3 months of tetracycline (a calcium-leaching antibiotic with anti-inflammatory effects,[28] used here to kill the “pathogens”), and half had significant improvement in symptoms. Scientists have expressed strong doubts about whether nanobacteria are living organisms.[29][30] Research in 2008 showed that “nanobacteria” are merely tiny lumps of abiotic limestone.[31][32] Confirmation of the clinical efficacy of the treatment awaits placebo controlled studies.
Even if there is no infection as such the anti inflammatory actions do help relieve some people. Like myself.
-
Add antifungal that penetrates prostate such as fluconazole - again for anti inflammatory action and perhaps immune modulating component. I doubt there is an actual fungal issue but my long term use of antibiotics does predispose me to it.
-
Do not actively masturbate. What i mean is I personally find I can get erections sometimes if i don’t touch my penis. As i do it causes discomfort effectively killing the erection (probably due to prostate inflammation or spasm). I remember this one time i got aroused without touching myself and I was literally bursting. Afterwards an hour or so later i had a very good orgasm. Best to use imagination too i think as porn is not as involved. Old school photos are better too as it evokes more imagination. Idea is to reawaken those pathways. If you want to touch yourself try and delay it as much as possible. Also don’t overmasturbate as i think it can make things flare up again.
-
Avoid flaring components - crappy chairs, beer, very spicy food, horse riding,
-
Try and walk alot
-
Relax and avoid stress inducing situations - include trigger point release therapy (anyone have any good info on this?)
-
Vitamin D or vitamin D agonists as they reduce inflammation
ncbi.nlm.nih.gov/pubmed/20398021
Data reviewed here demonstrate that VDR agonists, and notably elocalcitol, reduce the static component of BPH by inhibiting the activity of intraprostatic growth factors downstream of the androgen receptor, the dynamic component by targeting the RhoA/ROCK pathway in prostate and bladder cells, and the inflammatory component by targeting the NF-kappaB pathway.
ncbi.nlm.nih.gov/pubmed/17241782
We have documented the anti-inflammatory effects of BXL-628 also in animal models of autoimmune prostatitis, observing a significant reduction of intra-prostatic cell infiltrate following administration of this VDR agonist, at normocalcemic doses, in mice with already established disease.
-
Avoid this forum and thinking about it as much as possible. Spend time with friends and doing the other things you like doing. Worrying about it may lead to low mood and anxiety exacerbating any pelvic muscle issues (if that is indeed what we have)
-
Prostate massages (this is not something i have experimented with). They have proved useful in interstitial cystitis as a means to calm pelvic floor dysfunction. I am concluding with the additional testimonies of solonjk, boston and a few others they can be useful.
Thiele massage appears to be very helpful in improving irritative bladder symptoms in patients with interstitial cystitis and high-tone pelvic floor dysfunction in addition to decreasing pelvic floor muscle tone.
- Exercise - aerobic
jurology.com/article/S0022-5347(0602153-7/abstract
-
Quercetin - 500mg x2 day - as a mast cell inhibitor
-
Don’t put laptop on your lap. Simple thing i know but trust me.
-
Keep penis up via either low dose cialis or a penis pump.
Our prostate issues are similar but not CPPS due to the greatly decreased sexual appetites and other systemic symptoms some of us have. However, it could be alot of the ideas behind that might help us at least treat the sexual issues caused by these issues.
Avoiding being cold is apparently very important with prostatitis too. It’s a shame we live in the UK, i honestly believe i would have a way better shot of recovering if i could get more vitamin D from the sun. I am still confused as to whether a recovery period during a holiday was a coincidence or directly because of more natural Vitamin D.
ncbi.nlm.nih.gov/pubmed/17853032
19, what about anaerobic exercise/ weightlifting?
Also, i heard someone say Zinc is bad for prostatitis, which makes no sense to me, is there anything else on this? i was going to keep zinc as a staple supplement.
- Don’t put laptop on your lap. Simple thing i know but trust me.
How does matter in your opinion? I did a lot of this pre-crash, among other bad lifestyle things.
I was about to say; i was using my laptop on my lap a lot. I hate stuff like this because it’s something most people do but you can’t help but start thinking about it.
Don’t know about anyone else but i have popped spontaneous erections after long walks a couple of times.
I find that a hot thing on my lap irritates.
Not sure about the cold thing. Too hot for me is worse. I always have to change into loose trousers when i can - feels better. Maybe its the two extremes. I don’t know.
I do lift weights somewhat. It can increase testosterone in the short term.
ncbi.nlm.nih.gov/pubmed/19669787
I find it can also increase pain in the short term too. As i have noted before increased testosterone in me is associated with more pain. Whether this is due to testosterone or its conversion to estrogen is unclear.
I do lift weights somewhat. It can increase testosterone in the short term.
ncbi.nlm.nih.gov/pubmed/19669787
I find it can also increase pain in the short term too. As i have noted before increased testosterone in me is associated with more pain. Whether this is due to testosterone or its conversion to estrogen is unclear.
What kind of pain 19? Is it deep muscle pain or an overall higher sensitivity to pain?
Ok been thinking this morning of a prostate treatment that takes into account all my prior experiences:
Empty bladder frequently - so full bladder does not irritate things more.
Take mild laxative so it takes pressure of the pelvic area - constipation is something to avoid as it exacerbates
As i have had benefit on doxycycline - continue to take
From wiki:
In a preliminary 2005 open label study of 16 treatment-recalcitrant CPPS patients, controversial entities known as nanobacteria were proposed as a cause of prostatic calcification and symptoms found in CPPS.[27] Patients were treated with EDTA (to dissolve the calcifications) and 3 months of tetracycline (a calcium-leaching antibiotic with anti-inflammatory effects,[28] used here to kill the “pathogens”), and half had significant improvement in symptoms. Scientists have expressed strong doubts about whether nanobacteria are living organisms.[29][30] Research in 2008 showed that “nanobacteria” are merely tiny lumps of abiotic limestone.[31][32] Confirmation of the clinical efficacy of the treatment awaits placebo controlled studies.Even if there is no infection as such the anti inflammatory actions do help relieve some people. Like myself.
Add antifungal that penetrates prostate such as fluconazole - again for anti inflammatory action and perhaps immune modulating component. I doubt there is an actual fungal issue but my long term use of antibiotics does predispose me to it.
Do not actively masturbate. What i mean is I personally find I can get erections sometimes if i don’t touch my penis. As i do it causes discomfort effectively killing the erection (probably due to prostate inflammation or spasm). I remember this one time i got aroused without touching myself and I was literally bursting. Afterwards an hour or so later i had a very good orgasm. Best to use imagination too i think as porn is not as involved. Old school photos are better too as it evokes more imagination. Idea is to reawaken those pathways. If you want to touch yourself try and delay it as much as possible. Also don’t overmasturbate as i think it can make things flare up again.
Avoid flaring components - crappy chairs, beer, very spicy food, horse riding,
Try and walk alot
Relax and avoid stress inducing situations - include trigger point release therapy (anyone have any good info on this?)
Vitamin D or vitamin D agonists as they reduce inflammation
ncbi.nlm.nih.gov/pubmed/20398021
Data reviewed here demonstrate that VDR agonists, and notably elocalcitol, reduce the static component of BPH by inhibiting the activity of intraprostatic growth factors downstream of the androgen receptor, the dynamic component by targeting the RhoA/ROCK pathway in prostate and bladder cells, and the inflammatory component by targeting the NF-kappaB pathway.
ncbi.nlm.nih.gov/pubmed/17241782
We have documented the anti-inflammatory effects of BXL-628 also in animal models of autoimmune prostatitis, observing a significant reduction of intra-prostatic cell infiltrate following administration of this VDR agonist, at normocalcemic doses, in mice with already established disease.
Avoid this forum and thinking about it as much as possible. Spend time with friends and doing the other things you like doing. Worrying about it may lead to low mood and anxiety exacerbating any pelvic muscle issues (if that is indeed what we have)
Prostate massages (this is not something i have experimented with). They have proved useful in interstitial cystitis as a means to calm pelvic floor dysfunction. I am concluding with the additional testimonies of solonjk, boston and a few others they can be useful.
Thiele massage appears to be very helpful in improving irritative bladder symptoms in patients with interstitial cystitis and high-tone pelvic floor dysfunction in addition to decreasing pelvic floor muscle tone.
- Exercise - aerobic
jurology.com/article/S0022-5347(0602153-7/abstract
Quercetin - 500mg x2 day - as a mast cell inhibitor
Don’t put laptop on your lap. Simple thing i know but trust me.
Keep penis up via either low dose cialis or a penis pump.
Our prostate issues are similar but not CPPS due to the greatly decreased sexual appetites and other systemic symptoms some of us have. However, it could be alot of the ideas behind that might help us at least treat the sexual issues caused by these issues.
19, I really welcome this progressive thinking and outlining of a strategy. Great attitude.
Regarding Diflucan–why do you say it penetrates the prostate? Because it is systemically-absorbed? Because the prostate is poorly vascularized, I question whether or not the diflucan or antibiotics would be able to penetrate it (which is the whole justification for aggressively pressuring {pressuring, not massaging} the prostate by hitting it through the intestines). Also, anecdotally, a lot of the guys on long-term antibiotics have a tougher time battling CP because of resistance to antibiotics. I’m sure you’ve heard this before, just thought it was worth mentioning again. The general consensus from locals in Kos who’d gotten CP diagnoses prior to seeing Dr. Geo and taken long-course antibiotics has been that while they can help alleviate some symptoms temporarily, they don’t ultimately eliminate CP, and they appear to make it more challenging in the long run. Just something to consider. Good luck!
Its a pain in - suprapubic region and also feel it where prostate is. More discomfort than pain but when adding hormone can turn painful.
Fluconazole does penetrate the prostate as do some antibiotics (tetracyclines and quinolones especially).
ncbi.nlm.nih.gov/pmc/articles/PMC162579/
There was a high correlation (r = 0.783) between serum (mean = 6.6 micrograms/ml) and tissue (mean = 1.9 micrograms/g) fluconazole concentrations, and these data were used to construct a model for local tissue concentrations.
annals.org/content/115/4/285.short
we prospectively studied patients treated with fluconazole, an orally absorbed triazole that has excellent (prostate) tissue penetration and antifungal activity in cryptococcal infection (2-5).
As for the massages - if it is believed there were an infection - the idea would have to be that there are areas that the antibiotics would not reach. Keep in mind massages could help for one of two reasons: 1) by allowing antibiotics to get to a present infection 2) By calming the pelvic floor muscles reducing spasm and inflammation
I have only taken doxy long term. There was a short course of cipro a long time ago which helped as much as doxy but that was not long term.
Its a pain in - suprapubic region and also feel it where prostate is. More discomfort than pain but when adding hormone can turn painful.
Fluconazole does penetrate the prostate as do some antibiotics (tetracyclines and quinolones especially).
ncbi.nlm.nih.gov/pmc/articles/PMC162579/
There was a high correlation (r = 0.783) between serum (mean = 6.6 micrograms/ml) and tissue (mean = 1.9 micrograms/g) fluconazole concentrations, and these data were used to construct a model for local tissue concentrations.
annals.org/content/115/4/285.short
we prospectively studied patients treated with fluconazole, an orally absorbed triazole that has excellent (prostate) tissue penetration and antifungal activity in cryptococcal infection (2-5).
As for the massages - if it is believed there were an infection - the idea would have to be that there are areas that the antibiotics would not reach. Keep in mind massages could help for one of two reasons: 1) by allowing antibiotics to get to a present infection 2) By calming the pelvic floor muscles reducing spasm and inflammation
I have only taken doxy long term. There was a short course of cipro a long time ago which helped as much as doxy but that was not long term.
Good info. Yes, the pressure/massages are given to help the antibiotic reach the infections, but also to soften the prostate and remove inflammatory byproducts. Even after an infection is eradicated, physical damage, and inflammation persist, which are the culprits for ongoing symptoms, and this is what is treated in follow-up treatments, this is what takes so long. The locals do an initial 30-40 treatments, then some follow-ups, then see the doc every month for 3 sessions. They slowly wane off until they have follow-ups at 6 months, then a year, then are done to the doc’s satisfaction. Not everyone can follow this precise schedule, of course, so they work around their schedule. And with the international PFS cases, he’s improvising. He can remove the infection in roughly a month (resistant cases can take more time/effort), but time and further follow-ups are needed to get the prostate healed up to his satisfaction and for symptoms to completely clear out. This just covers CP, not fibrosis or any other urological/finasteride complications a man can have. Just the other day, I met a Czech guy who’d started the process in late 2009. He could only do follow-ups during summers, and so he says he’s chasing that last 5% of his recovery, which has been the most challenging.
Lest you all think I’m a fanboy of the doc’s, I’m merely trying to relay the concepts of the program and trying to find and share inspiration from others who’ve endured the long healing process. There are a lot of success stories and improvements for people with CP and general urological problems and E.D. (people coming from all parts of Greece and beyond to see this doctor after being frustrated w/ other docs). There are also more challenging cases with less dramatic results, and of course us extreme PFS cases. And until some of us PFS guys are definitively healed by treating CP and fibrosis, I can’t expressly endorse the protocol or say that finasteride hasn’t done even worse damage than already suspected and observed. Still, the responses from some of the guys who returned home from treatment reporting return of morning erections and some spontaneous arousal (even if erratic and inconsistent) appeared to have gotten buried in this thread.
It would be amazing if we could dig up agents that were able to penetrate the prostate and prostate calcifications and inflammation (w/o the need for pressure-massages). It would also be good to start a penile rehabilitation thread if one doesn’t exist, I have not yet looked into that.