Well said. Let’s try to keep this thread constructive.
I think it would be a good idea for the next person to report on the treatment in Greece to create a new thread in which people ONLY discuss improvements from the treatment. This thread has become too much of a mess. The ad hominem attacks are not helpful and we all have a commonly shared objective.
I also think it is reasonable for people to not publicly report on treatment until after its completed. It is normal to have fluctuations in function, but only after the treatment is complete will we have an idea if anything will take hold. That way the given patient will not feel the need to hedge the report of their experience in case it ends up eventually missing expectations.
Gefinuser’s report was very ambiguous. I gathered from his statement that he is done or almost done with treatment and has had mild improvements in erectile function but it is still far from normal. After treatment is complete, a very simple and explicit comparison of symptoms before versus symptoms after would be very helpful.
this is your assumption.
every ones situation in here is different and we are not urologists or andrologists to assess how one was before , what pathogens are out of his prostate, how he is now, or where did the inflammation subside or how much is left, or which nerves are affected or how will neurotransmitters produce during or even post treatment in such a short time, or even if his hormones started converting in a healthy prostate epithelium.
You seem very eager to trying to make conclusions for what reason??
Medicine is not mathematics. Stop playing and provoking anxiety in this thread and making out things that want to suit your disbelief. Are you some sort of anti-urologist or work in some medical field? Why do you keep constantly interfering with this treatment?
Do something some searching around for your own problem rather than interfering with ours. Since you don’t believe in this approach why do you keep commenting in here?
You are not here more than a few months and want to show us that you have learned it all. What have you tried in treating your self till now? Give us some of your magic pills to see how they work.
Last but not least, you don’t want to understand it that for some of the people here this problem is severe, it manifests mostly and around their urogenital region. For you it may be mostly psychological or hormonally based (i doubt its only there but lets hypothesize).
Since some are questioning Dr. G, and since so many are in the US, i just wanted to suggest that their is a clinic in new york city for prostatitis evaluation and treatment.
fertilitysolution.com/Treatment-for-Chronic-Prostatitis/
Also, since propecia was just said to be a potential cause of prostate cancer, please see below - taken from Dr. Toth’s website.
you dont say…
Also, here is a potential cause for our issues.
jimmunol.org/content/173/10/6098.abstract
[b]
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Generally i am noting that androgen levels (which fall with fin, rise when it is removed) can directly effect immune response.
Also, I pulled this from a page written by A PhD in Molecular, Cellular and Developmental Biology
"it is hypothesized that the cryptic bacteria remain in tissue, because they are able to induce a hibernation-like physiology in the tissue. Disruption of the hibernation would initiate an immunological assault. "
Oh wow…
On a side note: is there anybody else who simply won’t be able to afford this? i am looking at around 6.5k including flights and food, plus the possibility of further treatments make it a complete write off.
Good thread guys. Its stuff like this that either will fix us of this, or get us closer. All of the guys going to Kos, I personally thank you. I have no idea why certain people are continually attacking you guys and this theory. You have not said it IS THE cause/cure. You simply feel you have weighed the pros/cons and the pros outweigh the cons. I agree. You are about to prove/disprove another theory, so if anything, EVERYBODY should be happy that progress is being made in one way or another.
These people who attack you guys in this thread are the same ones who were attacking JN before his recover (assuming he did fully recover like he said, its been months since he posted here). They do nothing to try to help there/out cause but look at research. Looking at text books and asking Drs to do studies is not going to do much. Where has it gotten us in 10 years?
Some people have stated that Mew is “dressing this forum up” to be suitable for lawyers. The thought has crossed my mind that he is actually a Merk employee, trying to keep us from finding a way to fix our selves. Yes, this is laughable, but the way he conducts himself and treats others is sad. WE KNOW, YOUR THEORY ON EPIGENTICS/ANDROGEN INSENSITIVEITY/ETC! Prove it is true or stop throwing it on down our throats in every thread!
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With that all said, I want to discuss the prostatis theory. It appears a few have made progress. From the way I read it, SOLO was 95% fixed? It is hard to tell though, because the posts have been so vague.
Personally, I really like the prostatis theory. I think it very well could explain our SEXUAL and PROSTATE symptoms. However, I feel that there is another piece missing. I have posted what I think this is in the RECOVERIES section, but Mew has still not approved it (almost 24 hours later?). I will summarize it here.
Guys who have been to Kos for this treatment. What do you think of the island? Pure paradise? You guys probably had a lot of free time, did you spend a lot at the beach? I personally think the Greek Islands is on of the prettiest places on Earth.
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So anyways, I partially recovered. I recovered from all of my mental symptoms as well as the fatigue/weakness/lethargy symptoms. I did not recover from sexual and prostate symptoms. So that is where I feel the prostatis theory completes the puzzle.
I did this through the same means that JN did. Treating adrenals and thyroid. It took me years to do this though, because my thyroid labs and adrenal labs always came back normal. However, there are ways to see around this and discover that even though certain labs make it appear that way, they are wrong. There is a reason for this, that I explain in my “partial recovery +theory” thread.
I believe the theory I present (and others have indirectly) explains.
-The “crash”
-Why so many of us have infections, rashes, food allergies, etc
-How we lose so much muscle so fast
-POSSIBLY why the prostatis occurs
-The mental effects
-The lethargy, weakness, etc
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I have more to add to that original post as well as some edits I would like to make. So hopefully Mew approves it soon.
BTW, please do not take this as me saying, I know the cure and the cause. I am simply stating that I am partially fixed, here is how I did it, and here is my theory. Take it with a grain of salt, but I think it could help the majority of the people here.
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One more thing I want to add (which I explain in my thread), is that my crash was pretty bad, a little worse than most here. Like others though, my crash had rashes and other infections involved. Also my sexual and prostate issues literally came on full force overnight. This was 6 years ago. With the new “Propecia can causes prostate cancer” headline out. I think back to my genetic test a few months ago, saying that I am 2x as likely to get prostate cancer. I was obviously genetically exposed to prostate issues. You guys prolly were too.
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I will post the thread here when it gets approved (if it gets approved?). Hope it doesn’t seem like I am trying to hijack this thread!
its a struggle for all of us UK20, as I have mentioned to you before you can seek a loan if you want treatment. Prioritize your health over other things, save. Not sure what else any of us can say.
You truly have no idea. The thought it laughable, absolutely, and I can 100% guarantee I am NOT a Merck employee. I can assure you this is not the case whatsoever. I am just a regular guy who took this drug at age 25, got decimated by it, and have been struggling to figure out why and how to fix things ever since.
A drug company would never setup a website that goes against one of their own drugs, which could lead to litigation. I appreciate the thought though, as it is amusing.
I disagree. On the whole I try to be as balanced and fair as possible.
I do have my own opinions on things which may go counter to those of others, and get into debates about things, but so do we all.
Who said I was throwing it down your throats? I stated my position that I believe the issue is androgen mediated, likely at the androgen receptor or possibly failing that, perhaps 5AR2 or 3a-HSD enzyme activity has been persistently affected.
Anyway, Awor’s study ( viewtopic.php?f=33&t=5282 ) will hopefully provide us some answers one way or the other.
well said, solonjk.
Ugh, another speech (i mean several in row! all are reasonable but don’t tl;dr on me…) but:
moonman1, I think it would be a good idea to link in here but perhaps not paste the discussion in it’s entirity in this thread - as you can see, it is already cluttered by hypothesies, comments, quotes from various studies, reports from Kos, arguments and whatnot.
Making a new topic for prostatitis is certainly not a bad idea but i’d rather see that happen much later when there is a circle of people who have already gone through the initial treatment plus more people going for his treatment. Right now the topic is on the standstill for people that wait that we post improvements all the time. 'Tis i cannot do of course and like venceromos said, it is already tasking to focus on the treatment itself.
Time moves slowly for us, too, if you haven’t realized. And there’s a lot of questions hanging in air. You think we don’t realize this? I know solonjk is a pretty smart guy + has lot more medical experience and wisdom than i do and i haven’t directly supported his hypothesies in this topic (more like silently murmurring and nodding behind the screen lol) but i wouldn’t wonder if his theory is true. At least the closest educated guess you can have from the prostatitis angle! I just don’t know yet. I don’t even know my own body in it’s complexity jesus christ, i don’t know if things improve from this or not.
Actually, at this point i’m not even that concerned of PFS right now. I’m just trying to focus on clearing the prostrate infection, that’s a hard task in itself already. I’m a human, give me a break. I try my best to live. At least no prostrate infection for me in the end, that’s for sure.
If we keep a positive mind and have p a t i e n c e, we might see the outcomes surely in time from both this and awor’s study… so i guess the best advice for now is to go out of the internet and enjoy your lives until then or something along those lines. I kind of mean this, you aren’t going to get any insightful/new information for awhile from us.
Couple of guys only just started their treatments, two guys had finished initial therapy and are on the post-therapies/recovery phase and i’m “quarter past” the initial treatment treatment. This is NOTHING. We need more months and time to see the outcome of this.
For prostatitis patients at Georgiadis, the man is a lifesaver but we are trying to see if/what part of the PFS & recovery puzzle this just is. Might be big, might be small, maybe at the end of this we’re at square one but god damnit, i’m have gone All-in with this one and i’m not regretting a one bit so far.
I think we and solonjk have given a fair arguments for this so far and i’m really not going to apologize to any random anonymous internet fucker that i have made a calculated, educated guess and put a lot of resources to see if this helps me AND you (due to information).
Don’t worry, i know there’s still people interested of this despite the vocal minority. Please do keep supporting us if you wish to do so but the call-outs are deteroiting/humiliting for both sides. This is not what this forum was made for! That is what keeps people out from this forum always.
Mew: Do not take it personal. I know and appreciate the hard work you put into this. I was merely making a joke at how it appears you and so many others (always the same people) always show up to crash the party. Just let the theory play out. P.S. is there a particular reason it is taking so long to approve the post i made yesterday???
Solon: I may be wrong (because your posts are semi-vague), but it appears that you have fixed a good amount of your sexual issues. However, you are not happy because, your testicle are not dropping as much as they used to as well as not as big as they used to be. Why not just take a week or two of HCG @ 150IU EOD ? This surely would make your balls work again and could be the “kick” the need to restart total function. It also in practically harmless.
Also, what is the possibility that the resistant staph flares up the prostate? Did the Dr discuss this with you?
Your post was approved by an Admin and merged to your Member Story.
Weird that a recovery of ALL mental sides as well as weakness, fatigue, brain fog, etc. would just be added to a member story, where no one will bother looking.
If anything, why not move it to the theories section? It is after all theory as well as a recovery (in half the symptoms, including the most debilitating ones). 
Anyone interested its here
viewtopic.php?f=3&t=5286&p=39682#p39682
Mew has done a great deal more then many of us trying to bring publicity to the issue, the only reason that Merk changed some of their packaging I believe was a result of Mew’s work. I also know the effort Mew spent into putting up the forum, his time and money to try to get things going and the countless hours of background he’s done get to the stage we’re at. He’s done an amazing job for us, although he may disagree with some of the theories.
On one hand some who are going for treatment in Kos (I also believe in the prostate theory, and believe it’s worth looking into) are telling people who don’t believe in the prostate theory to not contribute negativity to this thread, which I agree they should do, because people have already made up their minds, we should all hope this is part of the solution.
But some are still bringing up names and calling people out from their previous comments, which stirs the pot and brings back arguments etc…
So let’s bring an end to this, and make this thread useful again. No more more calling out names of anyone, and let’s keep our support for those who have made the effort and sacrifices to go to Kos and let’s hope they have positive results if they do it’ll be an answer to some of our problems.
Moonman their is no point in antagonizing mew - everyone In this thread has already asked that we stop the jabs at eachother. you’re recovery does not include recovery of sexual function and therefore is not a 90% plus recovery as required by that section.
Here is a link to a list of U.S doctors specialising in prostatitis for those interested:
chronicprostatitis.com/clinics.html
Dr Richard Alexander from the University of Maryland School of Medicine actually studies/treats prostatitis from an autoimmune standpoint and has patented a new technique for diagnosing and treating prostatitis.
umm.edu/doctors/richard_b_alexander.html
The patent
Just thought it was an interesting angle that hadn’t been discussed so far.
Have any of you guys that have had treatment thought about making extra efforts to help the healing process?
Hot epsom salt baths, cialis to increase blood flow, fish oil to reduce inflammation? maybe these might help a little bit. I would at least start a diet that is based on reducing inflammation i.e. cut out any processed crap and sugar if i had just shelled out 6k on treatments.
If i had 10-15k to blow i would get hold of a few month’s worth of GBL/ GHB to boost neurotransmitters/ hormones and give me that healing/ HGH sleep bodybuilders talk of. Plus book a month’s treatment or more with Georgiadis, assuming a TRUS would show inflammation. All alongside a very healthy diet and lifestyle.
If only i could rewind time and get my savings back!
Just to throw it out there:
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when i ejaculated through passing stool, i had taken proviron (DHT) the night before - this could be a perfect example of how strong hormone treatments further inflame the prostate
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2 brief 100% recoveries (3-4) days after heavy alcohol consumption - possibly a link with immune system? supressing the immune system?
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weeks before i crashed i was under a lot of stress and anxiety, i then went on a week’s holiday with friends where i drank more than i probably ever will in my life again. i probably left my body open to infection when it was already very vulnerable.
I apologize if all of this isn’t very useful, i was just brainstorming ideas because i really believe that we are on the right track here. This will be my last post in here for a while hopefully, i am just eagerly anticipating feedback from the guys that have finished treatment in a couple of months.
Some interesting reading here though:
Has anyone else tried Dexamethasone?
1 guy completely cured from using it after T4 treatment, and ihatepropecia? surely it’s worth more of us giving it a shot.
If it pans out that a lot of the gents who are seeing dr. G, start to recover then I’m going to be in between a rock and a heart place, because I really would then like to go see Dr. G, but the amount of money it would take is immense. Not the treatment… the treatment is actually reasonable… Its the travel and lodging expenses that really rape you… The alternate route is too treat it by an american doc, such as the ones that you have listed. The problem there lies is that it appears that a lot of them don’t know what the hell they are doing…And canadians are even in worse shape because of their free health nonsense. I’ve seen two Uro’s here in the US, and they both said you can just take antibiotics for a couple months… Obviously, if this is CP, it definitely isn’t your typical infection, and just taking AB’s will just make you more resistant. I guess i’m just impatient.
I asked this question earlier, but has any AMERICAN who is maybe considering going to Greece, talked to their health insurance provider about them covering this treatment??? I guess it’s something I could look into, but i’m not the primary person on my plan and I am under my mom…