Yeah im pretty sure i speak for 99% of the guys here when i say i agree with the above comment.
Testicular size is of zero importance in comparison to erectile function, and you have completely avoided mentioning this issue in all of your recent posts… which sounds a little strange to me. If smaller testicles were the worst of our problems im pretty sure this site would no longer exist.
Maybe he doesn’t want to face the music should this Dr. be found to be conducting medical fraud and people have wasted their time, money and put their health at risk, if that’s the case.
Think about it – why would someone go through all this effort and then remove any evidence of such? Would you trust someone who states they are actively invested in this cause, actively ENCOURAGES members to go see a specific doctor and spend money, put health at risk etc, and then disappears at the end ( only available by PM all of a sudden), all after claiming he didn’t have the success he expected? Is it a matter of one’s (anonymous) credibility being called into question?
Someone who then DELETES/REMOVES EVIDENCE that they ever encouraged such a theory/medical appointments, after spending all that time and energy writing so much to convince us all of “prostatitis” and to spend money and see this doctor?
This behaviour is COMPLETELY SUSPECT.This is exactly what I was afraid of – people being led down false paths once again, if this turns out to be the case (I recognize there are other users actively in treatment/booked for treatment, however I hope they do not feel compelled to publish “I feel better” simply because they have spent vast sums of money on a theory/treatment the ORIGINAL AUTHOR no longer wishes to publicly discuss (and has removed most public records of past discussions)).
[Size=4]Solonjk, please reply to mine and user’s threads since your last post on all of this to clarify WTF you are doing/thinking, as this decision to “leave the forum” and removal of post history at this stage is SERIOUSLY impacting your credibility of not only this thread but potentially beyond.[/size]
To Mew / I’ll let Solonjk reply to your posts, but I have to react to the one you wrote before that last one… Mew, you really seem to have something against the prostatitis theory…
[quote]
You are clearly misunderstanding what solonjk wrote there, because it is clear that at least in his case fin has caused prostatic and genital inflammation AND, consequently, hypogonadism and drop of total hormonal status… The thing is hypogonadism and drop of hormonal status post finasteride cessation are occuring probably not anymore directly because of finasteride, but because of the inflammation of the prostate and genital area. We always talk about HPTA (hypothalamus pituitary testicular axis) and HPA (hypothalamus pituitary adrenal) without ever mentionning the prostate but it seems that its role is much more important that we think in the male endocrine system. All your research on the consequences of androgen deprivation and 5AR inhibition seem to actually give weight to this theory, since when you talk about DHT and 5AR, you should never forget the importance of that gland which is one of the most important places of T reduction to DHT via 5AR 2, and is one of the tissue with highest concentration of androgen receptors. An inflamed prostate means impaired “androgenic action”. Also, don’t forget that inflammation of a gland so close to the testes where 80% of our T is produced can’t be good for them either and is very plausibly a direct cause of testicular atrophy and hypogonadism.
As for “prostatic and genital inflammation is much more critical to ones health than [just] hypogonadism or total drop of hormonal status.”, well google “inflammation cancer” and you will find LOTS of scientific papers about this.
Well same thing here ; first, these all are part of the list of symptoms displayed by sufferers of chronic prostatitis… Then, prostatitis can lead to hypogonadism and impaired “androgenicity mechanisms”, which cause these symptoms…
Again, YOU seem to conveniently ignore that the prostate plays an important role in the endocrine system (main place of T reduction to DHT via 5AR 2), is shock full of androgen receptors, and about the hypothalamus/pituitary I also have posted there a scientific hint that people with prostatic diseases seemed to show inadequate LH response to pituitary stimulation by clomid. Claro has shown inadequate LH response to LHRH, and has confirmed prostatitis.
Solonjk started the thread, yes, but you can’t hold the fact that it became “monster” against him!!!
On the other hand…
To Solonjk
Yes, it IS really suspect that you deleted all these posts from you… I really can’t understand why (or rather dont like what I think about it). Please explain that.
I still beleive in the prostatitis theory 100%, but this behavior makes me now doubtful of Dr Georgiadis treatment… Please, please say something. Im going to Kos next week. And Im unemployed, getting money from my family… If you think it isnt worth it for us to see Dr G, please tell us now, it isnt too late.
This is still the million dollar question – why do many men who take and quit fin end up hypogonadal within WEEKS OF QUITTING (not during, as FIn elevated T levels by 20%)? That’s what this entire THEORIES section of the website was meant to be about.
What you have proposed is a theory, but it would need to be tested somehow. Fortunately, we have one theory currently in testing with research scientists, which may finally provide some REAL answers, either positive or negative:
Yes, according to following, the prostate involved in hormonal loops, I have already recognized this myself in the past: propeciahelp.com/forum/viewtopic.php?f=9&t=3207 (see images and original paper etc)
This is where it gets tricky. What is the hypothesis behind this? Timeline? Are you suggesting that every man who was previously healthy, say a young 20 yr old kid, already had chronic prostatitis? If so, how? Statistically, how probable is this?
How do you explain that many men (not all) who quit feel a surge of DHT within 10-14 days upon discontinuation of Fin, which only lasts another week or two, from which point it feels as if something “switches off” in the body and those feelings of androgenic action fade away and we are left with low T/LH/FSH going forward/persistent hypogonadism?
How do you disregard the comments of Doctors such as Traish, Irwig and Jacobs as to where the problems may lie, based on a Dr. claiming every user that emails him has prostatitis – a Doctor who’s credibility has been called into question, as has been the user behind this entire theory? How does prostatitis explain gynecomastia (documented from Fin use), depression/anxiety (documented from Fin – loss of allopregnanolone/THDOC, interference with GABA-A receptors), muscle atrophy (loss of T) etc?
As I have mentioned before in this thread, I’m not discounting prostatitis as a symptom of this syndrome. But as a “root” cause, I just don’t see how it’s possible, especially as many guys get side effects within days of starting (ie, depriving their body of androgen/5AR) and others are fine on the drug and then become hypogonadal only after quitting (when prostate should be recovering).
I suppose I should have made myself more clear in that I was directing my comments to solonjk in general, perhaps a bit too harshly.
I am in the same boat you are in that I am trying to look out for people on this site so that you are not scammed or otherwise harmed. We’ve had posters in the past claim all sorts of nutty things and some people are ready to try just about anything in desperation, even if it might cause them significant harm.
However, it is not up to me to police people’s decisions, there is a disclaimer at bottom of this site and everyone knows that what is posted here does not constitute medical advice. Hence why it is important to critically evaluate all sources of information, especially when it comes from anonymous posters online. Hence why published scientific research is so invaluable when trying to prove one’s case/theory, vs. anonymous anecdotal reports/emotional selling.
Anyway, I too wish to hear from solonjk so we can get some answers about why all of a sudden he has decided to remove his presence and history from this thread, at the exact moment many men are seeking treatment from the doctor (who’s methods I have tried to bring to your attention as possible red flags) he has continuously recommended up till this point.Solonjk, please UPDATE US.
Cheers.
PS: just in case – should someone accuse me of deleting solonjk’s posts myself in an effort to “thwart the prostatitis theory”, I can assure you I have done no such thing (nor would I ever), as I and the other Admins have always striven to maintain the highest level of confidentiality, professionalism and ethics while running this site.
We dont know what hes going through at the minute. So lets all take a think about that first.
Mew, I totally take everything you have said on board, always have. I think most here understand your dedication to sailing a steady ship here.
However, I still have hope in the prostatitis theory and personally want to see Georgiadis.
But before I or anyone does so, SOLON has a MORAL RESPONSIBILTY to come back to this thread and answer questions as peoples’ money and health are on the line.
Sure, but to remove all of one’s post history from the thread one started and a Dr. one recommended… an explanation should be given for this, regardless of “mental state”. Otherwise people will make up their own minds about what it means. Not to mention he was able to write 3 coherent posts stating he was leaving the forum, without disclosing why, and then took extra time to remove his post history afterwards.
Agreed 100% – we await his reply, morally speaking. I’ve said my bit, as have you and I’m sure others will too. Let’s see what transpires, hopefully he has some very good reason(s) for what happened.
guys,
there are other people already in treatment with Dr. Georgiadis as we speak. Let’s ask them how they are doing and if they are recovering. Can anybody list the people who are already at Dr. Georgiadis’ treatment, I have lost track.
Please share with us the research papers you are talking about. We need these to convince our GP and urologists to really investigate the chronic prostatitis angle with us PFS sufferers. I talked about this to my understanding GP and he listened (even though he was sceptic at first), but it would have so much more weight if I could provide the scientific evidence behind my theories.
Mew, you are literally out of your mind and blowing this completely out of per-portion…The guy has done all he can to try to convince us/you. IMO he doesn’t have to say anything else, because there’s not much else to say…He’s answered every ones questions and now we have a bunch of others going to see him, so the feedback will be immense whether or not this is a potential treatment… I’m pretty sure he has gained a whole lot of functioning back in every aspect but as he said his testicles have not regained their natural size, and so what if they haven’t as long as he can get hard on command…
I do admit that deleting his posts were anything but sane, but honestly half the people on this bored are fucking insane, so he fits right in with the rest of us… There are plenty of others who have done super weird shit once they found recovery so none of this surprises me in the slightest, its just another twist in this screwed up situation we are all in.
As far as your million dollar question is concerned, why is it that I find quite a few peoples experiences who have recovered from such things as shrinkage within a day of doing a certain therapy on other sites of prostatitis patient testimonials? Perhaps because they’re just lieing just like everyone else … I realize you’re a skeptical, and as you should be, but expand your mind a lil for everyone’s sake.
As for the scientist that are working on a theory, I doubt they will find anything good or bad… I cant except that this is just some freakishly weird switch just gets turned off in our bodies… It sounds about a ridiculous as lockness monster IMO…I was completely normal the first time I quit taking this drug, and many others were as well, there’s no switch that got turned off. If youre trying to find something that is so concrete that has is a flawless theory I can tell you right now you will NEVER find one…
I don’t see how questioning why someone starting a thread about a theory, then selling to the forum this theory and doctor to provide treatment for his theory, and then removing all of one’s records of such at the end about the theory/doctor (after stating it didn’t fully work out for him) is blowing things out of proportion.
People are risking time, money, health to follow what he has proposed. If that doesn’t matter to you, that’s fine. For others it does and they deserve to get as much info as possible so they can make an informed decision, including any positive/negatives about such treatment or the doctor himself.
Such initial info has since been removed by the original author, for reasons unknown.
No, sorry… perhaps you consider yourself insane (I highly doubt it though ), I do not nor do I think many others do. And it is exactly that type of self-description we do not need, as most in the medical world already label us as “hypochondriacs” and that this syndrome is “all in our heads”.
Calling yourself insane is to agree with such views, which we collectively have fought LONG AND HARD to overcome, thankfully moreso than ever this year via publishings from Dr. Traish, Irwig, increasing media awareness and now litigation.
If you believe we’re all insane, that would imply you don’t even believe this condition exists in the first place. But I know this isn’t the case since you have put yourself out there for Media Awareness purposes (and major kudos to you for that), so I’m puzzled by your response here, man… I really am!
Finding the root cause will explain why we have experienced this problem, and hopefully open the door to a treatment(s) which may provide a cure. The attitude you display here is completely pessimistic rather than optimistic – what, so we should just give up and NOT try and get research done, to hopefully unlock answers/narrow down areas of investigation? Give me a break!
The problem as outlined at propeciahelp.com/symptoms is what I and others who fit this pattern/timeline have experienced. If they did not, perhaps Finasteride affected them in a different manner, or dare I say it – are they even sure Finasteride is their issue in the first place, or could it be some other unrelated problem?
Again, I’m 99% sure you know Fin is your issue or you wouldn’t have participated in recent media awareness initiatives, so I don’t understand the pessismistic attitude towards trying to get research done on the matter. As you know, for those affected, it is night and day before/after drug use and there is no questioning it.
a)prostatitis theory as the real cause of PFS
b)Georgiadis is the only person in the universe who can treat prostatitis, with an unteachable technique.
To me, the really strange and suspicious behaviour of Solon attacks mostly b), but not a).
You can’t deny that there are bigger coincidences (for some cases at least) between what some urologists call prostatitis syndrome and what we call pfs.
Actually Mew, I’m one of the very few is quite normal (sane), and I live a perfectly normal life outside of having these side effects, probably because mine are mainly sexual in nature. Perhaps I have a vested interest in this theory because I have become a believer, I guess that is where my pessimism comes from.
That’s great to hear, and inspiring for many. I think that’s what many people want to have at a minimum, too.
It’s all good. Everyone wants the same thing – to find the root cause and cure it. Hopefully with the various research initiatives in play, we will have a starting point.
For the love of God solonjk, you need to clear this mess up.
This is one of the bigget ever (biggest?) threads on this forum. It’s been labelled as a potentially ground-breaking solution that several guys have already undertaken massively inconvenient steps to try follow up on via Dr G.
I know you said you’re only going to answer PM’s but i implore you, as a friend, to make a public declaration of what the hell is going on.
Listen: There is no shame in backtracking a little. We want the truth. If you were a little over-confident about this whole treatment then tell us. You’ve put so much time, effort and money into all these different treatments and we respect that deeply. Up until now you’ve went beyond the call of duty. Please don’t feel you need to live up to a false name to save face - there’s far too much at stake here. I personally have been looking into going over in August - this would entail me spilling my guts to my parents, getting time of work and spending so much money. As a learned friend from these boards, please tell us if you are doubting things.
Personally i am very sure the prostrate is strongly connected to all of this but im not sure if the pathways are as straightfoward as normal chronic prostatitus or if it’s the only element to PFS (I doubt it). Accordingly, I’m not 100% sure if this can be completely corrected by massages, anti-biotics, anti-inflammatories, hormonal treatment or a specific combination of the lot.
Please man, save this thread and post your thoughts. There’s so much on the line here for all of us, it’s just too serious of a matter to shy away. You are in a position of great power right now and you know the cliche - “with great power comes great responsibility”. You’ve never given me a reason to doubt you, so please step up to the plate now and sort this mess out.