Post-Drug Syndrome Survey FAQ. Survey NOW LIVE - Please Participate

[Lw77]

Done😀
Thanks guys for the effort…
Is there any researcher linked to this survey?

[axolotl]

We’re in contact with researchers who are aware of the project, but if you mean is it earmarked, no - we didn’t want to do that. We’re very happy to discuss potential publications arising from the data with professional scientists, but I expect that’s more likely to happen at the next stage. And, of course, to see the benefit we need as many patients to take it as possible. In terms of the project, our current focus is squarely on the analytics system, publicising it to the community and making sure everyone is getting their invites ok.

Thanks so much for taking it Lw77 and spreading the word to PSSD patients, highly appreciated

[pete]

More and more people are taking the survey - imagine this will be big!

[pete]

Like the @ncsugrad above, I like how the survey picks up where it left, if you close your browser. Accidentally shut it at one point - the survey re-commenced right back where it was.

[Ukguy82]

Hi axolotl, sorry to be a pain, but I haven’t received the survey, I’ve checked my junk folder, and cannot see anything. Please would it be possible to re-send.

[awor]

@Ukguy82

I’ve checked my junk folder, and cannot see anything

Do you receive any forum mails? If you are a hotmail user you need to add the following emails to your contacts:

forum@propeciahelp.com
noreply@propeciahelp.com

Mails currently not being delivered to Hotmail/Outlook accounts

For some reason mails are currently not going through to Hotmail/Outlook.com accounts. If you would like to receive email alerts from us (for new private messages, etc.), please add the following email adress to your contacts: noreply@propeciahelp.com forum@propeciahelp.com How to do this: Step 1 [image] Step 2 [image] Step 3 Add the following email address to your contacts: noreply@propeciahelp.com [image] Click “Create” and you’re done. You will now receive our emails again. I hope…

[Len]

Mine was in my spam folder with the sender marked as “administrator”. It is possible people are not finding it in their spam folder because they do not recognize the sender. Not sure if it will be the same for others but maybe double check.

Thank you again so much.

[Ukguy82]

Thanks Awor, I’ve now added the contacts to my hotmail account.

[Ice]

@axolotl

Hi @Ice - could you please check again later and let me know if you havent received an invite 6 hours from now? As you have not been very active since the relaunch the system may have just picked up on you and may have queued you for an invite since your last post. Thanks.

@axolotl I still haven’t received an invite for the survey

[axolotl]

Have now sent a reminder email to both @Ukguy82 and @Ice. Please take a look in your emails and spam folders.

[Ukguy82]

Sorry it’s still not come through, I also checked junk folder.

[Ice]

Same here, still nothing

[axolotl]

Will follow up in pm with you both.

[trav]

I still do not see it in my junk folder either.

[axolotl]

Hi @trav, I have issued a reminder. If you have not received it in around 10 minutes or so, this may be due to unsubscribing from emails in the past. Please follow these instructions (from the first question of the FAQ):

@axolotl

• Fill in this form by entering your email in the email field and your username in the first name field. Leave the last name field blank.
• Post in this topic to let an administrator know you have not received an email and have completed the above step(s).

Thank you

[awor]

@Ukguy82

Sorry it’s still not come through, I also checked junk folder.

Can you and @Ice please try this:

How to Add Approved Senders to Hotmail: 7 Steps (with Pictures)

add forum@propeciahelp.com to approved senders

[trav]

Okay thanks, i just re subscribed

[axolotl]

Thanks @trav - Can you please check your emails now and let me know if you’ve received the reminder?

[axolotl]

Update 26/02/19

Project progress

We are extremely pleased by the strong start of this important project. Over 50 users have either made progress towards or submitted their survey already! Thank you so much to everyone who has participated thus far.

Spread the word

If you would like to help move things along, please encourage fellow patients across the forum to participate who might not have visited this topic or noticed their invite email. If you are affected by a listed drug other than finasteride, please endeavour to make fellow patients in your respective community aware of their opportunity to register and participate. There is, as ever, power in numbers.

hotmail problems

We are having some trouble with delivery to hotmail addresses. Something on microsoft’s end must be preventing delivery in some instances. Normal reply notifications are being delivered to these addresses, so for some reason the content of the invite message must be triggering something. All mails go out via the same mail system.

As such, if you have not received the invite, please follow the steps in the first answer of the FAQ. If this doesn’t resolve the issue, you may be issued your unique invite via private message from an administrator.

Thank you and best

axo

[jinstewart]

Hi - not got mine, hotmail user. Just added the contacts in. Thanks guys.