Please pray for me . Sodium Butyrate warning ****HELP me with my labs****!

Symptoms
#206

I’m totally fucked. I’m like a zombie. I went from feeling very much not like myself but had energy to.now I feel absolutely shut off and I can barely keep eyes open
Like under extremely heavy sedation and I’m derealized out of my mind
The nightmare never ends. Iam mentally demented I have nothing to say to my friends . My best friend was over and I was acting so weird and detatched and out of it she said she had to leave. I know it is because vibe is so bad

This is hell. I feel like a junkie nodding off here in the library right now. Injist want to go home.and lay in bed and that’s what I will do.now.

:frowning:

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#207

I’m so sorry dude

You will bounce back soon enough
It may take a bit of time

Was it anything in particular that set this recent bad stint off?
If you told I apologize I didn’t see and asking you to repeat it

#208

Nothing set it off I did nothing different. This is the crash setting in that I knew was coming and its setting in deep. This is a nightmare I am on derealization acid trip from hell.

What are we when not connected to out memories? I can’t remember anything. Literally Zero connection to myself or the world around me. I am far back deep in hell after being okay for a little.bit. my body and mind are buzzing with derealization and visual snow. Tinnitus screaming
Iam so mentally destroyed. God fucking damn it all.

I swear man this disease wants me dead. I can’t believe people can feel like this

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#210

Im so bad

The hell has no bottom. There is no bottom. I’m only falling further and further into a nightmare I never could have imagined.

#211

My dude you’re gonna have to see someone and get some kind of blood panel

Ya can’t suffer with this alone

Have you looked up and PFS doctors around you?

Or get on a Skype call and work with one of them

There’s gotta be something you can do in the meantime to take the edge off

If it’s as bad as you describe I’d be trying all nuclear options like TRT and such

#212

I only see the frantic faces of the roche family. They are the evils faces sucking thousands little childs lives. A normal murderer goes to jail. A pharma cartel family stands over the law, politics and ethics.

#213

Tried trt gel it blew me apart and that was years ago. My body can’t handle androgens being touched or it violently reacts. I’m pretty stuck. Luckily I had somewhat of a sleep last night woke up 4 times but got something in.

I need help yes. On the list for cheap therapist for 5 months now. Also Need a full blood panel done and gut biome. Hundreds of dollars i don’t have tho

#214

They are too powerful to touch. They will never face penalty for the lives they have ruined

#215

Kenneth Kaufman and Roy Vagelos, who well knowning the evil tortures caused by them and started the finasteride apocalypse, look like normale people. No one could measure that they still driven by evil energy. But the Roche family are the fiends spitting image and they let them go!

I’m homebond. Sit in my chair. Look at the wall day in day out. Manus story on Moral Medicine.

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#216

I’m
Concerned about me being androgen sensitive too

I do TRT years ago and was totally fine
But that was back when food didn’t bother me
Nothing

Now the wrong food can fuck me up so I’m cautious about androgens
I kinda wanted to start the t gel

Your sleeping is a good sign
Perhaps it’s the turn of good things and healing pal!

#217

Inused th t gel a half smear and it fucked me up good. But thats me I am a very very bad case

My sleeping pill no longer works. At all. Not eve a hint . I am an absolute fuckning wreck of a human. I can not believe I uave deteriorated this poorly. My disgusting mushy skin flops over my pants I’m.constantly in pain and swollen. I can not related to anyone or anything . I am ashamed of my body and appearance.I look absolutely disgusting with my clothes off. My skin is horrid and mushy and fasting does nothing. my penis a chewed peice of gum. I am so delrealized and depressed and lost. I CaNT FUCKING THINK. NO HUMOUR NO PERSONALITY. This diseases strips you of so much you don’t even understand.

Even a few weeks ago I was doing okay. Bad but not like this. Now I can’t even deal I so just want to give up

For those of you who don’t have it this bad I beg you to please not jeopardize what you have. I was bad but I’m like a different person now

Blah blah blah ill shut up. No where to vent. No one who understands I’m alone except for my dad who lives in Toronto.

I’m.not all doom and gloom pserionally but I have experienced things of such horror only a small handful of people who have ever existed would even be able to relate. Like my mind and body feel dead . Minority of a minority of a minority of someone who was once human

2 Likes
#218

You have the right to vent. It is a very very severe disease and many feel bad and totally bad. And many are housebond, totally lonesome and even bedbound. Yes there seem to be some spontaneous recoveries in the first two years, but there are so much infantilism too, who think, if they deny it and tell about fake recoveries and fake protocols, the syndrom will not exist anymore.

And the serious cases like me and you and many other old fellows here have to excuse themselves for a bad state, awarness and research boycotted and activists like me have to consult layers and law enforcement agencies to protect against pro pfs stalkers, it’s important to fight for patients rights here to speak out how you feel. And that it is not fine what Accutane did to your life.

I feel with you. I lost so many friends and social connections. Only daily helpers for a care level three patient help me to survive here in my house. And there are others good friends meanwhile sitting in their chairs derealized and depressed. We all have the right to vent. Maybe good to sprak out in a podcast, to show how severe the post accutane syndrom is, to get more awareness.

2 Likes
#219

Still here freinds. Still fighting Still wasting away. Very crashed right now and have a newish symptom unlike I’ve had before. I’ve deal with constipation and diarrhea but never constipation at this level. My stool is literally like hard rocks. Pebbles and fragments that sink to the bottom. It will not come out of me either ad my asshole has sealed up and is a swollen feeling. This ain’t good. Will be buying an enema . But ya still here suffering daily:)

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#220

I understand you, its totally evil what this drug have done to us. For me it’s only surviving, no life

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#221

I keep crashing. Can hardly get out of bed these days feel so beaten down.

My memory and brain is like someone with dementia. Everything is a fog. I scroll my phone all day in bed. Digestion is shutting down big time. I used to take giant hearty poops if i ate certain foods now it’s like rocks squeezing through a hose the past few weeks. I feel awful.

But most of all right now I’m lonely. I need a woman bad. But feel I’m so far gone in every way it won’t happen again. Even when I was bad years ago I had some girls who wanted to date me but now its like any sexual attraction I had has vaporized. Women don’t view me that way. I don’t view myself that way. I crash bad now when I cum. I just leave my dick alone or masturbate a bit but never finish. It doesn’t feel that good anyway when u can actually get an erection.

How will i ever date again?

Hey im on disability have no money no job cant eat anything will be bed bound if we have sex my memoery and mind are terrible my skin is turning to mush and I’m in a constant state of existential crisis and suicidal ideation. What about you?
Fuck .

I know this pails in comparison to my actual physical symptoms but it’s been really weighing on me lately. Anyway ya still fighting for some reason. Don’t know what to do next.

Maybe I’ll try eating just meat and black beans and see what happens

Idk

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#222

My digestion is fucking destroyed. Whatever I can pass is like curled hard macaroni and I can feel my intestines are hard. I’ve taken 4 enemas now and out still feels like I’m stuffed with shit. This is bad fuckn news.

Also I love the conflicting treatments. I read I need to eat more fiber so I ate a whole can of black beans and some steel cut oats. Today I read to avoid fiber at all costs because it clumps up and makes the blockage worse.

My intestines are for sure partially blocked at least. I press my stomach and can feel how hard it is in there. Wtf do I do now.

I swear man. Never . Fucking. Ends

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#223

Sorry things are this bad k however black beans have helped me to a degree I’ve been on them since May prior to which I was compacted and in extreme pain (i have 2 tins per day but soak them for 24 hours before consuming over the course of 6 hours, quarter of a cup per sitting)) , i also have steel cut 1nce per week. I could also feel compacted waste in the colon. At the time I was resorting to regular colonics. At one point I was having them twice per week. I believe they saved my life it was that bad. 7 weeks without a bowel movement. If I hadn’t done these the shit would have literally hit the fan. A consideration maybe. Thinking of you as always my friend. Additionally b beans are high in butyrate something I think the majority of us are v low in. A recent biome test confirmed my levels as very low… B beans are also good for reducing allergic reactions.

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#224

I used fibercon before PFS but I also read that it can make things worse. I take miralax as needed now, mostly for lactose-related backups or opioid constipation and it works well enough.

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#226

Thank you bro b beans are a staple and i wont at at all.be removing them I think they are an excellent source of nutrition and do not cause a reaction for me. Once I get cleared up I’ll be back at it and maybe do a can a day aswell. Oats I may hold off on until I can see if things are moving . Toying with the idea of a colonic but it seems to be trapped in my upper Intestines idk if a colonic would reach this far. I have to struggle to even push out a fart. I’ve had so much weird GI issues come and go. I’m hoping this clears up I’ll be buying magensium citrate today to see if it helps. I take Mag bis glycinate with zero issues hopi g this is the same

2 Likes
#227

Thank you for this. If by the end of this week I have not moved the contents then I’m going to a Dr. My Dr doesn’t like me tho and thinks I’m.a hypochondriac but what can ya do

Going to gym.today too to move around as much as I can

I think earing a ton of pizza did this too me and I over did it I should have stopped when I saw the hard signs thi sg were getting bad

Hoping this clears up

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