I was on Cyclosporine, I’ve asked for pills. I was also in the eye drops for shortens/dry eye. Do you think the pills would be better as drops too light IE won’t get into the body. Thinking that’s what you mean by systemic. Cheers
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Sjorgens
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Hairyscalp I just spoke to the Proff and he is unable to prescribe cyclesporine it’s now off limits because of its toxicity. It’s prescribed occasionally only now with lots of monitoring. Because my RA is in good order he couldn’t push it through. So a none starter unfortunately. Im really deflated because my situation similarly to a few others is one of continued deteriation. 'll push it with the endo next time I see him. Post lockdown.
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Well yes, ask about if cyclosporin is safe for you to try, since you have autoimmune it would probably help. Ill try to get some minocycline and try it just to see what it does. Don’t try minocycline if you have autoimmune disease it will mess you up.
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Cheers mate, let me/us know how it goes
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Did you have an official Sjogren’s diagnosis?
Asking because it is supposedly uncommon among men and there have been many anecdotes of post-Accutane patients being diagnosed with Sjogren’s or a Sjogren’s-like condition.
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25% of patients with sjogren syndrome are men… Not really uncommon.
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Yes officially diagnosed, linked to long-standing RA
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Totally contrary to the 9:1 to 7:1 female/male ratios usually cited.
There has also been a correlation found between Sjogren’s and sex and adrenal hormone levels.
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What were your main symptoms that made you get tested on Sjorgen’s syndrome?
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This was before PFS and was linked to rheumatoid arthritis. It got worse when I developed PFS. I was tested due to deteriation
Oh shit sorry to hear! Btw I got my blood works, they still suck the same (low free T’s ,high E2 and SHBG)
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How long have you been fin?
Off fin sorry
Well fin just 4 pills, I quickly recovered from its major sides though, I just scrammed myself to this situation with 2 pills of tribulus terrestris 
This last was on March 19
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Ah sorry man, still time for a natural recovery though
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Yeah hope so! I visit i a PFS acknowlidging dr in Germany soon 
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Fingers crossed
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Hi notna. I have read your complete story and I appreciate that you took the time to expose what propecia actually does to the bone structures of our faces. Before I took the pill I had no idea what it was going to do to me. So I took the pill for 12 days. And then stopped and never went back to it. Discovered this forum, became aware of PFS. It did to me the exact same thing it did to you. Bone loss, chin density loss, eye socket depletion, jaw line dissipation and that fat swelling accumulated under the chin (not sure if this has happened to you but its called a bull frog neck) … I am sorry this has happened to you and to all other PFS sufferers. But I am also now hoping that one day we can reveres this bone loss because appearance is very important and I know how devastating it is when your face looks so abnormal only due to what propecia did to it.
Hi Lazarus. Iam sorry what the pill did to you. The exact same thing happened to me. I see in your pictures over the years what propecia has done to you. You have that fat swelling and drooping under your chin called a bull frog neck. I have the exact same thing. And its really frustrating not knowing what to do or how to treat it
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