Old & Recovered Members

General Discussion
#51

No one said you have to go push yourself to the max right away. Remember this: I also had bad reactions to working out, I felt dead, anxious, dark circles under my eyes, like I had nothing left in me, joints aching, your not alone In that regard. I think the key is to Start really slow and work your way up. If at first we’re reacting very poorly, then do 20 minute light workouts. If we need a week between workouts, then give ourselves a week.

I made excuses why something like this wouldn’t work, because It hurt me mentally and physically, and I didn’t get the results I wanted Im the first few months. Eventhoufh I’ve made progress, I’m still not 100 percent cured after 8 fucking years. What does that tell you? Sitting around lurking forums hoping for some other type of recovery just isn’t realistic and to be brutally honest, probably won’t ever pan out.

Since day one that I was on this forum over 8 years ago, there has been little to no documented progress made, so why are we still doing the same things? We can make every excuse in the book for why something wont work, but we owe it to ourselves to give it a shot, even if it initially makes us feel worse. I’m done with excuses. If I have to go through hell to get there then so be it.

I remembered why I left this forum years ago. It doesn’t matter what you say, or even if you made a full recovery, there will be skeptics on here doubting your process and making excuses for why they can’t do what you did or why it won’t work; or even going as far to say as the person posting a recovery is a fraud. This type of lunacy is what’s stopping us from making any real progress. I know it’s hard you don’t have to tell me that. My life was taken from me at 20 years old, but had I been more productive in my attempts, perhaps I’d be further along right now.

We’re either winners or were losers. Our fate is in our own hands. I’m not gonna let myself be my own enemy anymore. I’m done posting here for now, I don’t want to associate with negativity. We can beat this. Best of luck to you all, I’m giving this my best shot

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#52

Guys, I think the one size fits all exercise and diet regimes have been proven over a long period of time to have varying degrees of success and not right for everyone. They are not right for everyone.

I’ve tried CDnuts protocol for 7 months and felt worse, while others do similar things and have symptomatic relief. I’ve realised that for me personally, sitting on the couch eating burgers has the same effect on me as jogging daily and eating Paleo.

I’m not saying people shouldn’t try mild exercise and eat healthy (common sense), but this community has been trying this same thing for 15 years with very sporadic success.

I’d encourage everyone to try and find little things that provide some symptomatic relief, contribute to the surveys and report symptoms to your local regulatory body. The admins are working incredibly hard at taking the first steps to get us out of this, and good things are hopefully coming this year.

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#54

you dont have to jog, you have to lift heavy things. Get it! stick to it for 3 years while eating paleo and then come and speak to me. only then as I may well be wrong…

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#55

This is the winning attitude. You will get over it, You are willing to do all it takes, go all the way. All the best
you are a winner

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#56

brain fog yes, MCT oil and quality omega 3 supplements can really help you with brain fog. as far as anxiety and depression yes I did get them too but I reckon these are subconsciously related to ED and its consequences.

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#57

yoga, sun exposure, meditation, healthy eating… ecc

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#58

I lifted heavy for 7 months; it made me much worse. Severe adrenal fatigue, worse brain fog, the works.

Not sure ‘lifting more heavy things’ is the right answer for me, but if your protocol is working for you, I’m happy.

#59

@Surfer, while it is appreciated that you signed-up to answer questions and share your recovery and the regimen of diet and exercise that you feel led to this recovery, you are not welcome to prescribe this to other members as a path to their recovery.

Just a reminder.

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#60

Thanks for the inspiration boss

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#61

I gotta say, Healthy eating and proper exercise isn’t prescribing anything. These two things should be common sense for most of us, but when we get down and depressed about our condition, we forget that. This is just inspiring us to get out of the slump we’re in and be the best version of ourselves. At least that’s what I get from his story

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#62

Fala amigo! Tem gente aí de São Paulo lutando contra PFS? seria bom ter um contato pra trocar ideias!

#63

This is exactly what I wanted to say. Discipline equals freedom.
I just thought I sign up to share my story and while I see some people inspired I also see people who seem to not wanna hear it… I think I m done with this forum. To all of you I wish you the best. I am sure you can all win this battle.
Discipline and perseverance are a must

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#64

@Surfer it is not that we don’t want to hear it, it’s that this forum has a long and murky history with some members claiming cures based off similar methods you’ve mentioned, while for others they don’t get better or get worse. I understand you have conviction in your protocol, which is fine, but prescribing it broadly as a one size fits all cure is not productive in my view.

My problem with these kind of protocols, and subsequent statements that they can cure everyone:

  1. There is still no understanding of the basic biological mechanism behind our condition. How can anyone know what will cure something that we are yet to even understand?
  2. It distracts from bigger community projects, particularly those with scientific goals, and particularly for newer members who are less stable and desperate for answers.
  3. If the same energy and application people applied to chasing cures was spent on more productive pursuits, such as supporting admin projects with logical goals, raising media awareness, reporting symptoms to medical regulators, community fundraising, or countless other activities, we’d likely be much further ahead in understanding this condition and how to get everyone out of it, not just those who respond to these kind of protocols.

I’m happy that you’re feeling better, but please, understand these methods have not helped everyone.

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#65

Congratulations surfer, I’m glad the work and time worked for you, go enjoy your health!

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#66

Same

#67

Wait, what was your symptoms did it all go away with keto diet only? Penis shrinkage, low semen volume etc.?

#68

My guess is, its because nobody actually tries this keto diet for at least a year. Why? Myself included, lazy or unhopeful? I don’t know. I talked with Junkiasteride before he gets this bad, i recommended him Keto diet before trying hard stuff, he said he will do it. And now, i see his post that he used meth and all other things to cure himself and maybe he is dead… jesus. I mean, how many of us really tried this and be patient? Are you tried this diet Greek for at least 6 months? Im just curious. And if not, why you didn’t try it already? Don’t you want to recover?

I could easily give my left hand to cure my body, but even i, only did this diet for a month. I should have tried this at least for a year and im willing to try that before trying hard stuff. Im done with living like this, i sleep 10 hours and wake up tired, something is not right in me. My guess is i kept getting slowly worse, very rare seen in pfs and pas patients, i didn’t have hourglass flaccid for first couple years. I think it is all connected to prostate damage due to lack of hormones, if prostate recovery is possible i can get back my semen volume and healthy penis back. I wish all of us to see that day.

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#69

check out black maca

#70

Well, this opens the door to a conversation, doesn’t it?

If a guy shows up and says he’s never posted but he’s recovered and did it by a method which is implausible, should we all immediately jump on it? Every time?

My position remains that I don’t think this will work for everyone and I think I’m one of those people. I don’t have to justify my actions to you about what I choose to do with my body. Just as you don’t have to justify anything you choose to do. I will of course say something if I feel that something may be harmful or unlikely to be successful, as I have done here.

Note that I’ve done that without personal attack on anyone, it’s not in my interest to attack anyone. If you look back on my posts here, you’ll find that my intention was merely to ensure that people are aware that this categorically is not a cure for all, but I congratulated the poster on their recovery.

For those people who are most in need of support, those with the worst of this condition, being told that they’re being negative or that they need to try harder is not appropriate.

Ultimately, make your decisions based on what you think is best for you, but telling people that they should do the same based on your theories is not ok. Beware that there aren’t huge numbers of people who have recovered who are saying it’s the gym, or diet or Keto and now Black Maca.

If you decide to go for it @cooper, good luck. I hope it works out for you. I imagine as one of the mildest cases of PFS you’ve got a good chance of recovering naturally anyway.

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#72

Its alway nice to read about recovered members surfer. did you do any fasting? And about food did you do any probiotics or fermented vegetables? Anything to adress the gut specifically?