There used to be a recovery sub-forum, I can’t see it. I haven’t been here in a long time.
I wonder even whether by now there are any breakthroughs scientifically, or experimentally.
I came here to say, I recovered enough to live a life not thinking about PFS anymore. Hopefully that would be encouraging news for some.
Is there a magic formula? No, I think time was the most important factors. It has been 7 years of misery, but each year I got about 10% better, and somehow the last year I improved better than any year.
I want to keep this post on the shorter side. I had virtually all symptoms back in 2013: brain fog, numbness (thus my handle), ED, 0 libido. Libido and occasional numbness are the ones that stuck the longest. It only got better a year ago. Perhaps I am not 100% of pre-PFS libido, nor do I want to be. I am 7 years older, and don’t want to be spending my time watching porn or chasing girls. I have a girlfriend, and our sex life is normal.
I used to (and sometimes still) takes Cialis, but it is more of a confidence booster, and enhancer, but as of this year I feel I don’t need it anymore.
Here is what I have done, and this is not an advice. Except for a couple of items, highlighted below:
1- 2013: Panicked, took T took supplements, took vitamin D, exercised, everything backfired, even exercise.
2- 2014-15: I did occasional progesterone, once every couple of weeks. I had researched it a bit, beforehand. It helped.
3-2016-2019: I started decreasing carbs systematically, going occasionally on pure keto diet. I was able to go back and exercise. But I still had symptoms, they wax and wane, 2 good months, 2 bad months, and so on. Taking any supplement would backfire (even Vit D!).
4-2019-2020: I removed all estrogenic items and foods from my house and my diet. Shampoos, soaps, … everything that had paraben went into the trash. Since then, I don’t recall having bad months. I continued with low carbs. Then I started to notice that when I took Vit D it helped! Somehow in the beginning it doesn’t, but now if I take Vit D, my libido is just too high (as in pre-fin) and I don’t want it to be that high. So I only take it occasionally.
I can tell physiologically things have changed. I used to get pimples from every drop of sugar, couldn’t handle many foods, and so on. Now this has not happened since about a year. I binged on carbs the last few months (quite stressful) and did not get worse.
All in all, I don’t think about PFS anymore. I think just like most recovery stories, everyone wants to hear a 100% and I can tell you 95% is as good as 100%. I wasted too much time in my life thinking about sex. Now I feel I can control that.
I am curious: Did anyone file a lawsuit against Merck? I know a lawyer who has filed lawsuits against pharmaceuticals in the past, but I am not eager to disclose my problem unless if I feel it would help. I am assuming some have tried. Just wondering what happened on that front. I hear in Canada and other countries they were sued?
Thanks for listening. While I don’t think about PFS, believe me I still think about you and about my long fight with it. No one deserves this. I Just wanted to wait many months of fully recovery without making such a statement.
PS: my hairloss stopped for all this period, and now I can see a tiny increase. But it doesn’t bother me much. I try to forgive myself for taking a hairloss drug, it is hard to go bald at a young age.