Thanks man. I’ll report back with the good and the bad 
The way i see it, even if the doctors here aren’t as competent (generally speaking), if they run the same tests then the results are the results. So at very least, it gives us something to work with.
I might be out of pocket in the coming months though. Might have to get my parents on board.
Yeah, if you can get the tests that’s great. I am losing hope here, and don’t know whether I can face doctors.
Why? It’s all about progress, man.
Update 9/5/11
Just back from urologist. Not sure how i feel about things. I’ll re-edit this later for a fuller story but here’s the lowdown:
I mentioned that the main purpose of my visit was to check for candida and prostratitus:
He said straight off the bat that prostatitus wouldn’t cause the problems i was having but was happy to check for it. I mentioned candida he said he would check for it too.
He checked for both. He took a swab from my penis and did some sort of prostate exam (took about 10-15 seconds??) and seemed to take a swab of that too? He tested both under the microsope literally right away and said both were negative.
I asked “what about inflammatory prostratitus?” …He said “you don’t have it”. Not sure if he deduced that from the exam or was just being arrogant.
When he told me about not having candida. I then asked “what about systemic candida”. He said…“if you had that you would be very ill…i’ve known some people to have it and they be very sick…and you’re not”. Shot down.
I tried having a discussion about things but he told me i was “talking about alot of nonsense since you’ve came in”. I hadn’t even started. Imagine i mentioned some of the stuff on here such as androgen resistence. He probably would have thrown me out (no joke).
So: I definately don’t have bacterial prostatitus, any uninary-tract infections or candida. Well, actually he took a urine sample which will also be tested just to make sure.
I might push for an ultra-sound at some stage though.
So, basically he told me:
I could use levita if i wanted, or the injections. I said no thanks i get cialis but i don’t use it much anyway. He said if i change my mind here he can help. Apart from that he said “you’ll improve over time”. He was extremely confident that i’d recover. He said “these things tend to fix themselves at your age”.
I mentioned the new topical drug released in Canada. Actually i think this is where he said i was talking “nonsense”. I was talking about Vitaros. I don’t know how the hell he didn’t know about it. The guy is a leading “expert” in the field. WTF? I’m considering posting some printouts about it to him address for his perusal…or would that be cheeky? 
Anyway, more boxes ticked.
My next bloods are going to be for systemic candida (yep, I’m a doubting Thomas), Reverse T3 and i’m also ordering Saliva 24hr Adrenal tests. All these and then hopefully 3-adiol-G should give me a pretty extensive hormonal profile.
I’m getting my bloods taken tomorrow morning in my GP’s too (just the standard ones). When i get these i’m going to start increasing my experimentation with arimidex dosage a little more (my estrogen is clearly STILL too high) to see if that helps.
I’ve changed my diet. Much healthier, little sugar etc. Also upped my exercise. I’ll be running most days for the next few months. We’ll see if i can expedit my natural recovery.
In terms of hormonal drugs i still have clomid and proviron in mind. And pregnenolone (a real shot at it, this time) but right now my main focus is simply living well and trying to aid my body to natural recovery.
Im not sure what hes talking about… If you told him your main symptoms are low libido, no connectiveness between brain and penis, and ED he should have agreed. My uro said those sound like prostatitus… Honestly I think our prostates are going to be the right size, but probably even smaller, so of course there going to appear to be fine…I’d push doing the ultrasound, or kick this guy to the curb. sounds like hes clueless on just about everything imo…
Ok.
Been an active week.
Got bloods taken on Tuesday.
My estrogen, for the first time ever, has fallen within range…
Oestradiol 144 pmol/L (<156)
Don’t feel much different but atleast it’s working. I’ll continue on my arimidex treatment and see how i feel in a few weeks. I’m upping treatment to 0.5mg 2x per week for 2 weeks. Then we’ll see how my e2 is sitting.
I shouldn’t be feeling like i am with the hormones i have (so far).
Today, i got extra bloods taken:
Progesterone
Aldosterone
Thryoid
and various others. I’ve requested 3-adiol-G and Reverse T3. My endo is checking with the lab to see if they will do this. I’m hopeful they’ll be included in today’s list.
I actually got a chance to speak to my endo today.
We spoke over things as a whole.
So atleast we’re moving in a positive direction and continuing to tick boxes. Slow and steady. I didn’t mention the latest fades like Dolichol or Royal Jelly to him. I think i’ve boiled his head enough will different theories…i’ll report back only when things actually work.
Are you from the UK? If so, is this doc in the UK?
I’ve always wondered what would happen if we all went to the same doctor in the UK. Shouldn’t the number of us convince him/her plus the new journal articles.
Yes. He’s leaving for Canada in August though. So i need to get all tests lined up before then. Not idea how useful the next guy will be.
Thing is, this guy is just a normal endo. He specialises in diabetes. He is just being really helpful and open to testing me. He knows of propeciahelp and PFS but will tell you himself its not his domain. We’re simply working together trying to crack this.
Well, he didn’t need convinced. He heard of what’s been going on and had one other guy before (from on here too). Most decent endos shouldn’t doubt you. They should be treating you by symptoms and hormones anyway…
If he’s giving you all these tests and doing a lot of it via the NHS, he sounds like the best option on these islands even if it means going to Ireland, which is closer than London for me. Bouloux isn’t impressing me at all.
Any self-respecting endo should be doing all the necessary testing, man. Obviously that’s in an ideal world, though. I find it hard to believe that there are not other decent endos in the UK. The trips back and forward would be difficult to justify unless you’ve been continually let down by other more local endos. That said, if that’s the case then i guess it’s necessary. It’ll depend who takes over for my guy in August though, but im hopeful we’ll be following the same path.
The wheel keeps spinning.
It’s ridiculous how deep i’ve got into all of this. I do believe i could recover if i had access to a high level of resources. There are so many avenues to explore, from subcatagories of adrendal insufficiency to variations of hypothyroidism.
Here is an interesting extract from Wiki:
I might look into this.
Also:
The connection with candida is more than speculatory. I’m still working on a blood test for this
Also:
And this.
Currently i’ve just began the Spinach diet.
It’s also my first week of arimidex at 0.5mg twice a week. Intend to do that for a few weeks to see how i feel, if i still feel the “same” i’ll simply taper off the arimidex. I would like a confirmational blood test showing that my estrogen level is mid-range first though, because if it can attain that it would confirm what i’ve came to accept over the past few months: that my sides aren’t coming from estrogen issues - atleast not as a root cause.
I’m only looking to Royal Jelly and Yobohime.
Failing all the above, pregnenolone and potentially T3 concurrently. The latter would be exercised carefully and ideally i’ll have a Reverse T3 reading.
I have various other ideas, too. Will keep you all posted. Basically i’ve the next 3 months planned out, after that i’ll be moving heaven and earth to recover if im still the same. By that i mean, i might do something extreme like visit that Greek prostrate doctor.
Just a quick update for my own records. As i’ve posted in the temperature thread. I’ve bought a digital thermometer. I’ve been monitoring my body temperature. It’s very low. Ranging from 35.4oC to 36.6oC. Very low. This is indicative of hypothyroisim (potentially subclinical) and/or adrendal problems, hence my rejuvinated focus on same. I measured 2 of my brothers’ temperatures and both were 36.9oC which is what you would consider as normal.
All this has made me realise something just isn’t right inside my body. I can feel it, and see it. My libido has flutuated from 0% to 20% in the past month, my penis size (that’s right, flacid and erect size) has also fluctuated. Mainly girth. Semen varies from almost normal to watery. Penis was looking very pale last night. There does seem to be a blood flow issue. It takes MUCH longer for my erection to come around, i kinda need to wait while it slowly wakes up. It was never like this before. The erections will fluctuate from 60%-80%. Combine that with a much skinnier penis, less sensation (yes, it doesn’t feel like it used to either) and you can see why i’m so sexually unhappy. As for the tissue change, this is one thing that worries me. When “floppy”, especially after masturbation, if i hold it in the middle by the skin, it literally droops. I can literally make an “n” shape with it. The tissue is just so unsupported whereas it used to be, well, normal. I can’t for the for the life of me explain wtf is going on there but it’s a physical change. My prostrate pains have subsided over the past few weeks but they do seem to be something that come and go spontaneously.
All these things improved when i started arimidex and they also improved when i used preg (not just as sure abotu the tissue change, obviously). This tells me they’re all connected (as we know). Something that causes all these symptoms is clearly, inherently, very complex. Oh, i should add, i also have dry skin on the shaft of my penis. I never had this before, ever.
I just want to keep a record of my symptoms so i don’t forget the severity of things if/when i do recover and also so that Oscar and other obstreperous posters don’t try belittle my case.
I have the exact same issue, this is the first time i see it accurately described by someone else here
Its like my penile skin has lost all collagen or elastine or whatever is supposed to give it its natural elasticity.
With exessive masturbation (more rough than it used to be due to lack of sensation, and absence a of real erection), it had gotten so distended and wrinkled that i decided to get circumcised.
That wasnt a very good decision because my penis scarred very badly (hypertrophic scar, im thinking of cortisol issues here) and the urologist cut most of the inner (mucous) , most sensitive, part of the foreskin, leaving me with a penis mostly covered by skin with very little sensitivity.
And with masturbation it has become distended again…
One thing I noticed is that while on HCG my penile skin looked healthier and seemed less “rough” to the touch.
EDIT
By the way I share a lot of identical symptoms with you (loss of sensitivity, lower body temperature) and I pretty much have the exact same plan (after my PCT, try Royal Jelly, test for RT3 and try a HC/T3 treatment, and maybe even go to greece if this fails. I also suspsect candida based on some other symptoms and by past problems with recurrent fungal balanitis even prior to fin). It will be interesting to watch your improvements.
No it’s not i’ve read a few people say this.
What YOU have is “hard flaccid”, i know this is common too on here and on prostatitus forums.
Some bloods back today:
Oestradiol level is undetectable, <50- ?. <---------------- What. The. Fuck.
It was 144 pmol/L two days prior. I’ll look for a retest next week.
Thyroid:
TSH: 0.765
Free T3 1.7 (0.9 - 2.5)
Free T4 15.9 (12-22)
Aldosterone 234
PSA 0.7 (0-2.5)
Hcg and afp (oestrogen tumour markers) both undetectable.
Comments???
you have artifically reduced osestradiol levels without going to the root of the problem which is treat liver which balances all hormones including estradiol.
you tamper with one hormone an that in turn causes a fake lowering and there still is imbalance. You clear the liver issues and all hormones automatically balanced in right proportions.
Perhaps so muscleman but i should have had atleast short-term alleviation of my problems. I haven’t.
I’m taking Liv52 by the way, no real effects at all.
This weekend has been bad. Haven’t taken any cialis and i can tell. Absolutely pathetic erections. There is something seriously fucking wrong with me. I cannot fucking believe i’m going through this. It must be every young guy’s worst nightmare. I am trying everything i possibly can, lets just hope something big happens in the next few months because otherwise fin has quit possibly destroyed my life. And i suffer in silence.
Bought some probiotic yogurts and supplements today. The tablets are just the shitty basic ones from tesco. I’m looking to order these:
iherb.com/Healthy-Origins-Probiotic-30-Billion-CFU-s-60-Vcaps/19518?at=0
I’m going to combine those with some digestic enzymes too. Basically im hoping for a similar response as bluejaysfan from this thread:
viewtopic.php?f=6&t=5185
That stuff, spinach diet, royal jelly and generally healthy diet should help. If it doesn’t then i guess atleast i’ll know i’ve tried all the natural stuff.
Will keep ya’ll updated.
Havr those probiotice been recommended? I did the Candida diet for about 3 weeks before having to stop before I starved to death.
Need to start again after my holiday which is coming up soon. Need to attack the bastard properly this time. I have Threelac at home. Also trie Pau D’arco which seems to help in killing the yeast.
Candida is miserable - just eats away at you.
Why were you starving to death? there is still plenty of stuff that you can eat. I will be doing an anti yeast/ candida diet, and have sort of been for a while now anyway.
Pau D arco is apparently also good for prostatis and seen as it is cheap, I am trying it, I suppose if it were to be effective in supplements form there is a chance you could be fighting a few things at one. Not that we definitely have prostatis or candida, but as always this shit is a guessing game.