JN's story -- former 2001 Yahoo Group Member

General Discussion
#621

Oscar, please go away. You’re an angry, silly fool. Off you go to waste your time on androgen receptor theories and on pointless discussion on testosterone metabolites. I’m telling you now that such things are NOT central to our suffering, and at best, peripheral. I’ll go as far as to agree that, for example, Vitamin D and 3 HSD enzyme upregulate AR and are involved in T and DHT activity, also at the AR level. Finasteride would not have caused a direct configurational change in receptor morphology. It acted as a precipitant to a litany of health problems, placing us in a ‘survival state’, and taking away our ‘health’.

I have genuinely made myself hugely better using the 18 points I have made above, am totally drug free, very happy and very functional. I am proof of a full/near-full recovery; the improvement I have made has been remarkable, especially over the last 6 months. Where I was a depraved shell of a human being, I am now more healthy than an average 32 year old. You only have to peruse my previous postings to understand how far I have come. Moreover, I have a huge library of scientific evidence from Medline and PubMed to support every single one of those 18 points I have made.

Those 18 points take everything into consideration, and have foundations in the human body interacting with his/her environment, which is basic common sense. It’s all clear to me now, and my understanding of the human body is excellent; as a slightly disillusioned doctor, and as someone who has suffered my own version of chronic fatigue syndrome.

Furthermore, I am probably a lot more healthy, sporty, functional and sexually active than you and your mate Awor!!

Have a nice day! I know I will! Enjoy.

JN

#622

JN, thanks for the further info!

Can you be more specific on the level of your sexual activity at this point after your improvements?

Specifically, how often do you ejaculate, how many times a month and is it often on consecutive days? What percentage is with a partner as opposed to solo?

I’m curious as to the state of your sexual refractory period after your recent health improvements.

#623

You said that 6 months ago.

In fact you have claimed to be almost recovered so often that i’ve lost count.

JN, I am sorry that you have been driven totally insane, but try to imagine what a doctor or scientist or somebody that could really help will think if you start having long discussions about ‘household mould’ or ‘parasites’ causing our problems.

#624

Please, Oscar, stick to writing theories that nobody cares about in the relevant forum section and refrain from posting elsewhere on this forum. JN has been tirelessly battling PFS for ten years and has tried pretty much everything in the book, not to mention that he is a doctor himself. His personal experience and eventual recovery are an example of THE most valuable thing this forum has got.

I can’t say that i am convinced about the ‘chronic fatigue’ label he has applied to PFS, neither do i believe that the 18 points set out are relevant to everyone on this forum, but in this thread alone, JN has contributed more to this forum than you ever have. How can you possibly sit there and criticize this man’s opinion when he is BETTER after 10 whole years while you sit behind your computer still suffering?

#625

Oh the irony :laughing:

I suppose scientific theories being made up by amateur nobodies like yourself don’t deter researchers or doctors do they?

Just for the record; i am well aware that JN has claimed recovery on numerous occasions throughout the years and for that reason i will take this most recent recovery with a pinch of salt. I am just shocked as to how somebody like yourself can come into this thread and criticize him.

#626

Thanks for your input slap-head. Joe, you are PRETENDING to have post-finasteride health issues because you are depressed about hairloss. Suffered2001/Recovered2009 doesnt care about what i’ve got to say, and Joe, I just dont care about you either. Stick to your geography lectures.

#627

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#628

Excellent post. That’s an extensive list.

I think the main issue of incredulity from “experts” like Oscar (who has made some of the least progress on this entire forum with his own condition, coincidentally) is a failure to distinguish the difference between the intricate processes of finasteride that will have triggered these symptoms and the fact that these symptoms are here regardless and thus need treated. The novel obsession of trying to trace back a root cause is proving disruptive to the actual treatment processes required. That’s a medical crime in itself. Even to this day doctors don’t know the specific in’s and out’s of various complex conditions but yet can treat it adequately with different treatments on a “what works” basis. My endo has explained situations just like this in patients he treats for diabeties for instance. I trust JN can vouch for this in modern medicine.

Nothing JN is saying goes against anything i’ve said. In fact, it is entirely congruent. Our bodies are designed in a way to “help itself” - but finasteride in our cases has caused a deep rot that needs ebalorate reversal to the point where we “give our body a chance” to repair itself to a satisfactory level. As someone else said on this forum - a specialist doctor explained to him that the body loves automated bodily processes athat it does without “thinking”. E.g. Being able to type without looking. Our new PFS state is generally rather “stable” in its newly compromised state. I believe this. To successfully reset, in light of how our body works i.e. by habit, it can take a while to aid the body into an upregulated i…e normalised, state again. This will most likely required a multi-faceted and tailored approach.

#629

So this is the Oscar everyone keeps talking about…

Now I know why.

Dr Emerson is a great Doctor and a genuinely good and compassionate guy. He is leaps and bounds ahead of 99% of doctors out there when it comes to knowledge and forward thinking.

I’m surprised that Oscar can’t fathom how zinc deficiency alone, (Pyroluria) could be responsible for a good portion of our issues. Add in the host of other metabolic issues that were uncovered and it comes as no surprise JN had poor sexuality.

#630

What is this horse-shit? JN is reported a sustained recovery (90%+) which is someone most of us can only dream of right now. Whatever you say abot his various recoveries the reality is he’s living a very good lifestyle and is enjoying physical, mental and sexual health. Moreover, he’s liaised with more doctors than you and has spent unprecented amounts of money on his own condition. Not to mention he’s a medical professional himself.

It seems you are more worried about coming across in a certain way to ‘scientists’ instead of actually curing your own somewhat unique set of problems, Oscar. If you really believe there’s a blanket cure coming out in your lifetime then you’re sincerely deluded. This is as good as it’ll get for many a year so i suggest getting serious about your own condition and trying some things that might give you tangible recovery.

What is so hard to understand? Even if a scientist deciphers the very last detail of the crash and finasteride’s triggers, treating the actual myriad of symptoms that have arisen as a result is another thing. Right now, id rather skip on to stage two.

#631

That’s a big call.

Would you please list why each one of these 18 points is not vital to your health?

I agree wholeheartedly with JN, that this PFS problem could be “simply”
a complicated metabolic issue. Also I was DIAGNOSED with chronic fatigue syndrome before I took Finasteride, though at that point, I didn’t suffer any sexual dysfunction. I am very open to the idea that Finasteride was simply the straw that broke the camel’s back.

IMO you can’t underestimate the seriousness of being deficient of essential vitamins and minerals. For instance, if you are allergic to wheat, you will absorb very little of what you eat and the knock on effect of that on your overall health can be very bad. Add in Pyroluria and it could be catastrophic.

#632

Quoting this purely because all of it is brilliant.

Has anybody else noticed that it’s users such as Oscar amongst a few other names that constantly criticize others when they haven’t made any progress themselves? this sort of thing speaks for itself.

#633

JN,

i know you are busy but perhaps you could address this when you get time.

What do you think of reported recoveries relating to dexamethasone and even prednisone?

My interpretation is two fold in that mainly it’s due to a potential autoimmune element of PFS which some people will have inherited/developed from fin or its after effects. The second is, obviously, the adrenals being suppressed and then, i guess, resetting in a pre-fin manner. I reckon some guys got lucky here and happened to do one of those two things right to a point where it gave their body enough improvement to “take it from there” and repair itself.

Thoughts?

#634

The mould thing that’s mentioned is interesting - something that I seem to have and seeing the doctor about next week. This list though doesn’t seem to address things like prostate pain or shrunken balls. Where do they come into play?

#635

Prostate pain could be from zinc deficiency, making you susceptible to prostatitis. They go hand in hand.

The small balls? I’m not sure. However I wouldn’t disregard this angle if one or two pieces don’t fit…yet.

#636

[Size=4]PLEASE QUIT HIJACKING JN’S THREAD! [/size]

I suggest someone create another thread to discuss JN’s condition for your chatter. [Size=4]The only posts here should be from JN about his condition and those asking direct questions about him and his methods.[/size] This thread keeps getting taken in the direction not of JN, but rather of THOSE SPECULATING AND ARGUING AMONGST THEMSELVES. It’s getting so muddy you can no longer see JN or his condition through the mess.

#637

JN - thankyou for all this info. Can i ask you. Were one of your side effects penis numbness. If so how has this improved?

Thanks

#638

He’s got something here because I felt like a GOD when I did my heavy metal detox. I crashed again 2 weeks later for some inexplicable reason, probably because the detox was just one of the 18 points he is talking about, but for a while I felt better than I ever felt in my entire life, even better than pre-finasteride.

Faster than a speeding bullet, more powerful than a locomotive, and able to leap tall buildings in a single bound, that’s what I felt like during my heavy metal detox. I just wish it lasted.

#639

Oscar is a little harsh in choosing his words. With all respet to all over here I disagree with this theory yet I would like everyone who agrees with it, follow it whole heartedly so that no stone is left unturned.

#640

already covered, read through the last page or 2