JN's story -- former 2001 Yahoo Group Member

General Discussion
#601

This is dangerous talk, JN. The last time I suggested that the sensitivity may be determined by hormones and can be reversed, awor invited me to leave the forum…

I agree 100%. Actually, there is enough evidence that the AR downregulation theory is indeed a joke: your (and others’) case contradict the theory (eg moonman1 grew muscles on TRT, but still has pfs). Hopefully, awor’s experiment will invalidate this theory, but I fear that no definitive conclusion will be reached… In that case, he will want to organize other similar hopeless experiments.

#602

We should be happy that testing is taking place and not calling them hopeless experiments. Any knowledge gained is valuable is helping to finding the true caause of PFS.

#603

Just to clear it up; am i correct in thinking that you attribute your recovery entirely to holistic treatment under the care of Dr. Emerson? so, the cocktail of hormones you were previously taking did not help this sustained recovery?

What aspect of his treatment do you believe has been the MAIN player?

Congratulations - it is good to see that your constant efforts towards recovery are finally paying off.

#604

Not hopeless if it completely proves a theory invalid. Also, they have samples (including mine) for other experiments too. To say that this hopeless is a stupid comment and should be removed. The whole reason why we are here is to find answers and we won’t find answers if we don’t experiment. Anyway, let’s keep the thread on topic. Good work JN.

#605

It’s always interesting to see how people with the biggest mouth around here have the least impact in real life. Instead of posting useless crap in this forum all day, why don’t you get out there and organize some scientific research yourself? You claim to be in academia and seem to think you’re a really smart guy. So why don’t you get out there and do something about this problem? You seem to know it better than everyone else, including the 10 odd scientists working on this problem. So move your butt man, and prove your point in a lab! As I said before, it’s really sad to have people like you hang around this place and waste precious system resources (which by the way, you aren’t even paying for either).

#606

I’ve read several books outlining papaers proving the environment can cause epigeneitc changes. I’m not just blindly saying this out of desperation for a cure. It’s in the literature. You just have to read it. I think JN is a very bright guy and I wish I had the ability to understand why he so adverse to this theory. I hope he will expand a bit further as he has much he can still contribute to our understanding.

As always, kudos to Awor for all you do. And, great to hear JN is feeling “recovered”.

#607

I may be wrong but I doubt that either of you have taken JN’s approach…

#608

Yes, and even better would be a doctor who practices “Functional Medicine”. That is what Dr Emerson does.

functionalmedicine.org/findfmphysician/index.asp

#609

Moonman took saw palmeto. Perhaps there needs to be an option for this in the user profile, any thoughts mew?

#610

There once was, but this forum is no longer accepting membership from SP or Accutane users, nor anyone who took anything aside from Finasteride or Dutasteride.

Moonman1 chose “Propecia” when he signed up, since there is no SP option. However, he is the last SP user this forum will accept. This forum was never meant to be for anything other than Finasteride, however it was broadened for a time to include other users. However, for both medical research and legal reasons, membership restrictions have been put in place going forward once again.

#611

There seem to be quite a few ex-SP users here now. Is this not a bit rough on guys like kermagd and sps, who both took a 5AR inhibitor for hairloss, are suffering and have contributed in their own way (maybe not sps…jk). Will these guys and the accutane users be allowed to stay?

#612

I understands Mew’s concerns and I am more than willing to take down any Accutane research. I am also willing to deregister, but, I would miss no access to the theories section. I don’t believe I am a prolific poster, but I would love to be kept abreast of the latest developments. In a word: I wouldn’t mind gagging my mouth, but, I would still love to read.

#613

Current users for now are allowed to stay, yes. If this should change in the future, an announcement would be made.

#614

I think Awor’s theory makes a lot of sense. what do you think tons of research and studies how 5 ARIs affect cells are fruad? m_81 how come you are agreeing now with JN you have been advocating Chilln’s theory and now turning to this holistic approach. what JN is telling has been discussed before (I don’t rember user ID but it was about Candida and leaking gut etc. the user was banned).
If you take bunch of vitamins you will feel better any way, that is how I am doing these days and it has increased my total T level as well but it is not a cure.
Instead of encouraging Awor and other guys who are approaching this problem from scientific point you are insulting these guys. I remember you have been claiming to have recoverd 90% after following Chilln’s Cortisol’s management protocol. Am I wrong?

#615

if you have not allowed saw palmetto users there was no way for you guys to confirm that your problems started from 5ARIs. you would be circling in candida, pitutary shut down, HCG or TRT replacements. Saw palmetto and accutane have helped you narrow down your approach.

#616

I’m sorry but this is just a dumb statement and untrue…

#617

Anyway, to be proactive. There are loads of questions I’d like to answer, but I don’t currently have time. At the weekend I will answer them.

I believe PFS is essentially chronic fatigue syndrome. Chronic fatigue syndrome is essentially an umbrella term to describe some or even all of the following problems, each to a greater or lesser extent:

  1. Suboptimal thyroid functioning (or reverse t3 issues)
  2. Suboptimal adrenal functioning, or ‘adrenal fatigue’ (cortisol, DHEA, aldosterone)
  3. Suboptimal vitamin status (A B, esp B6 and B12, C, D, E K)
  4. pyroluria
  5. Suboptimal mineral status (notably zinc, magnesium, selenium)
  6. Suboptimal androgen status (T, E2, SHBG)
  7. Gastrointestinal parasites
  8. Yeast or fungal infections
  9. Concurrent medical problems (eg) ulcerative colitis
  10. Food allergies and intolerances (eg) gluten, wheat, cow’s dairy
  11. Lack of grounding/earthing, thus accumulation of negative electromagnetic forces
  12. Inadequate sleep/poor sleep patterns
  13. Inadequate love/pre-existing pschological and behavioural problems/unresolved childhood issues
  14. Household mould (affects 25% Australian houses)
  15. Malnutrition (Dr Emerson and Dr Gupta both believe that 99% of people in Australia are malnourished. Thinking very deeply about this, and having read masses on this in the last 6 months, I agree).
  16. Polluted water supplies (eg) with fluoride
  17. Heavy metal toxicity (notably with copper, lead and mercury)
  18. Lack of exercise (aerobic and anaerobic)

Our answer lies in this list. It’s exhaustative to the best of my knowledge only. I essentially fully advocate the methods of Dr Greg Emerson and Dr Sandeep Gupta in treating the cause of an illness.

Don’t be overwhelmed by this list. I think a recovery involves an ‘odds game’. It is important, over time, to swing all the 18 odds mentioned above in your favour. It will take time; months to years, and will basically involve the slow restructuring of your life to accomodate a favourable healthy lifestyle. I learn something new every week and try and incorporate it into my life. My life is great; I’m in control of it, my health and my happiness. A certain structure allows me even more time for enjoyment; surfing, tennis, yoga etc…

As for finding a doctor, yes, a Dr Emerson is ideal, but you can get different tests off different doctors to complete a thorough investigation in to your health. And yes, naturopaths will offer a lot of useful tests.

In my next post, I’ll write a list of all the investigations that need to be done for each point above.
In my post after that, I’ll write a method on how to get better for each of the 18 points above.

As Dr Emerson says, ‘the body is designed to win’. That’s certainly the situation for my body. That’s how it feels for me.

JN

#618

Utter nonsense. You have clearly lost touch with reality. I hope nobody believes a single one of these ‘18 points’ have got anything to do with our situation.

#619

Please don’t hijack my thread again. All the best to you. Thanks.

#620

Fair enough.

But if you are now going to go into some detail about these ‘18 points’ its only right starting a new thread, hidden in the theories section, where it belongs.