I am Canadian too . I will probably send to Quest.
There is a ton of symptoms related to myopathyā¦
Hello everyone I want to reply to this post because I share similar beliefs that PFS is more of an gut microbiome/Immune system related. I donāt know for sure if I am right or wrong but, I want to tell you why I believe this way.
So my story started on February 2017 I started noticing hair loss and I didnāt pay attention to it until February 2018 when I decided to do something about it. You see I thought I was very smart person and I could solve my hair loss problem in a natural way. Long story short I bought bunch of over the counter supplements saw palmetto and nettle root.
So From February to May I took saw palmetto on and off so in 4 moths I took 20 pills of saw palmetto. I was too busy with life and I would start on Monday and forget to take them so 20 pills in 4 months On/Off.
On the end of May I started to take saw palmetto again but I took 1 pill/1 day and on weekend I took 2 (450mlg saw palmetto) one in the morning one at night. On Sunday I was alone a I thought I would go online to look at some girls. I when I started watching porn I didnāt feel as interested as I use to be. I was little bit off.
I stopped saw palmetto I let one week pass and i started taking nettle root. 1 pill a day from Monday to Wednesday. I noticed increase in libido I was thinking about women all the time like a maniac. By the way this is how I how I felt when I was on saw palmetto it increase my libido I was a monster.
So on Wednesday June 2018 I felt that the increase in libido wasnāt normal so I stopped libido stayed with me Thursday to Saturday on Friday night I googled saw palmetto side effects and I found out about PFS. I got scared so I started fasting right away Saturday I exercised. I got friked out because I did 300 push-ups in 10 sets and I felt that I could do 300-200 more. My muscles where burning but slightly. I was a fit guy always I used to exercise 2-3 hours a day 5 times a week. I was into sports Judo. When I came off of saw palmetto and nettle root, I felt different. I felt cold always, in summer day 80 degrees I would feel cold I used to walk with my jacket. Emotionally I was okay but I felt this calmer sensation, like I was at peace. In 2-3 months this sensation went away, I felt emotions slowly and I feel like I am recovering every week.
Me sexual side effects were at first it was hard to be sexually aroused I had to watch porn. Other than that, I didnāt feel interested in women, no spontaneous erections and nocturnal erections. My balls where always hanging down but after saw palmetto they are up very close to my body.
But 2 months ago my balls started to come down more and more. My spontaneous erections started coming back here and there, one time I was speaking with a girl a work and my dragon got up. Yea I was happy and ashamed.
Now 2-3 weeks now my nocturnal/morning erections started to come. I feel very happy that my sides are going away. They are not so strong but, I feels itās getting stronger more and more.
I didnāt want to write this log of a comment but I wanted to give hopes to other people. This forum helped me a lot and this is my thank you to you guys. I feel more recovered like I can feel my prostate now funny to say this but yes. I have stronger heart beats, before Saw Palmetto I had could feel my heart pounding after saw palmetto I have rhythmic calmer heartbeats sometimes I would thought that I was going to pass out.
So why I wanted to write my comment here:
In September I got tooth implant and doctor gave me some antibiotics when I started taking these antibiotics, I felt very horny, I wanted a woman. I didnāt know that it was my antibiotics that where causing this so I did an experiment, I sopped taking the antibiotics and I stopped feeling horny I had 1 more pill of antibiotic and I took it and that afternoon I took a nap and my dragon woke me up it was drilling the mattress. I donāt know what the name was for the antibiotics.
Other thing that increases my libido is garlic after eating it at night I felt strong morning wood. So yes this was on December 2 this month and I have morning wood almost every time I wake up. I didnāt eat garlic for past 2 weeks and I am feeling better.
I exercise time to time 2-3 days a week and I eat healthy I donāt smoke or drink alcohol I never smoked a cigarette in my life I tried it once (in 2012) but never a smoker. I am 25 years old.
I think PFS could be cardio vascular, gut related, immune related or combination of bought conditions. Just google how big of an impact does gut bacteria has on human body.
I will stay here and answer any questions that you guys might have.
I hope that you all get well soon
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thanks th0r_nike
Maybe you are lucky one but there are many who never recovered. I have been suffering for 9 years. Many times I felt recovered but then come back to square one again. Recently I have started feeling worse again. This is why I started my research and came back to this forum again.
It would be better for you to start your own thread and leave this thread focused on HMGCR.
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Which antibiotic were you taking specifically? I have been on Bactrim twice daily for about two weeks now that was prescribed by an urologist and havenāt noticed any improvements in my symptoms
I believe this condition has sometihng to do with autoimmune
I developed this condition from anastrozole not finasteride or other 5ar inhibitor but symptoms absolutely idendtical
anastrozole used to have only estrogen lowering effect but the time i developed āsyndromeā it was differentā¦ I had weird flu when I crashed didnāt think much of it but never had flu like that beforeā¦Since flu I became passive individual with 0 libido and interest in sex as well as emotionally blunted and no personalityā¦ It was like a light switch turned off in meā¦ At the time of crash I was on anabolic steroid cycle and that day I stopped having any positive or side effects from anabolic steroids (which are hormones)ā¦ also complete lose of libido, brain fog, shrinkage of genitalie and other symptoms. its if immune system attacks the hormone upon returning to normal after stopping medicine instead of accepting it and letting it workā¦ in pfs case its dht in post anastrozole syndrome case its estradiol (E2). I am not scientist nor I have medical knowledge but I think DouglasMich was onto something with autoimmune theory.
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i dont remember but i can find it out for you give me 1-2 days. but please remember that, it was my dentist that prescribed it to me not the urologist.
I wanted to give you guy the link that I was reading the other day. It was about a study that cured illnesses like depression using poop transplant. not just depression but other illnesses as well, you can find articles about Gut Microbiome and its affects on immune system. I could be that hormonal changes affected bacteria in our gut that is why its causing problems. I think that is the reason some people recover and some donāt. gut bacteria can cause autoimmune Disorder.
so what happened was I wrote a comment and got deleted. any way I believe that gut bacteria could be responsible for the PFS symptoms.
more I research about gut bacteria more and more I believe that it could be the reason why some people recover and some donāt from PFS.
I think this links will interest you guys.
Hey man,
Lately, itās been trending on this board that fin and statins both are doing something to the liver and it may be causing our symptoms and condition through unknown mechanisms.
https://www.nature.com/articles/srep17493
This study shows how anastrazole (adex) in rats caused significant changes to cholesterol compared to controls. Maybe all these drugs are working similarly, who knows! Iām not saying Iāve figured it out, or anything, just showing slight evidence towards a trendy theory.
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Accutane, Fin, saw palmetto, Beta-sitosterol, Arimidex,statins etc all mess up with your cholestrol. Anything messes up with cholestrol will cause trouble. Unlike media propaganda Cholestrol is your friend not enemy.
please stay on topic and get the tests done.
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I agree. Body uses cholesterol to make the hormones. But its not hormones that is the cause of our problem. Its very simple to verify this. if you are PFS guy and take transdermal testosterone applied to scrotum your dht will be over physiological range but you will have either 0 improvements or worsening of symptoms
Guys, I never took fin, prop, accutane, ssri but I have very similar symptoms to you guys, numb genitals, no libidio, scortum feels like rubber, no body odor, no sweating from armpits or genitals, no morning /spontaneous erections in 2 years. Low semen volume that just oozes out.
Abnormal tests:
DHT 220 (300-850)
Spina Bifida l5-s1
Herniation at l1-l2
LDL CHolesterol 190
The body has 2 types of sweat glands eccrine and apocrine. Apocrine sweat glands are the gland in your armpits, genital region, that are triggered when you are stressed/ sexual arousal. They are essentialy the same as eccrine sweat glands however they are dependant on FAT APSORPTION!!!
Anyone feel very empty in the prostate area as well? Also feels like my testicles have completely failed despite a total testerone level of 650 at age 24.
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Have you taken an SHBG and Free test lab? Youāre SHBG May be very high causing low free t causing your symptoms.
Also, check prolactin. Thatās where I would check right away if I hadnāt ever taken these drugs!
My SHBG is high and free test is low, but what can I do about it ? Do you know of anything?
SHBG is 20 , and Free test was normalā¦
My prolactin was on the high side it was like i think 310 ā¦Range allows up to 350 or somethingā¦
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Hey Romney!
Are you a victim of SSRIs, finasteride, etc.? If you are, TRT may not help you, and may only make symptoms worse. Everyoneās different.
If youāve never taken any of the above, Iād recommend setting up an appointment with a TRT clinic (I can help you if you personally message me). Proviron also lowers SHBG and can lead to higher free t levels.
Again, if youāre a victim to the drugs many of us suffered from, TRT May not help you or you might not respond to it as most people would. Weāre all different in the way we respond.
Guys, could you please stop bumping this moronic thread already? It makes me want to stop coming here every time I see it. The stupidity on this site is shredding my already broken heart to pieces.
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I donāt think itās autoimmune. Iāve been taking the biologic Remicade for years because of ulcerative colitis caused by Accutane. It makes no difference in my PSSD.
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agreed. donāt believe itās auto immune what so ever. i also donāt think anyone here knows what auto immune actually means based on the content iām seeing in this thread
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