I think I'm healed after six year nightmare

#1

Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.

Where are you from (country)?

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)

Been reading it for years. Found on the net I guess

What is your current age, height, weight?

40
5’8
200

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?

Prppecia

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?

Every day

What condition was being treated with the drug?

Hair loss

For how long did you take the drug (weeks/months/years)?

Few months

How old were you, and WHEN (date) did you start the drug?

33

How old were you when you quit, and WHEN (date) did you quit?

33

How did you quit (cold turkey or taper off)?

Cold turkey

How long into your usage did you notice the onset of side effects?

Two weeks but ignored it. Thought its in my head. Stupid me.

What side effects did you experience that have yet to resolve since discontinuation?

For six years I had erectyle distinction. Tiredness. No libido. Hard to remember words when I need them.

Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual
[x ] Loss of Libido / Sex Drive
Erectile Dysfunction
[x ] Complete Impotence
[ x] Loss of Morning Erections
x Loss of Spontaneous Erections
[ x] Loss of Nocturnal Erections
Watery Ejaculate
[ x] Reduced Ejaculate
[ x] Inability or Difficulty to Ejaculate / Orgasm
[x ] Reduced Sperm Count / Motility

Mental
x Emotional Blunting / Emotionally Flat
X Difficulty Focusing / Concentrating
Confusion
[x ] Memory Loss / Forgetfulness
[x ] Stumbling over Words / Losing Train of Thought
[x ] Slurring of Speech
[ x] Lack of Motivation / Feeling Passive / Complacency
Extreme Anxiety / Panic Attacks
Severe Depression / Melancholy
x Suicidal Thoughts

Physical
[x ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
Penis curvature / rotation on axis
[x ] Testicular Pain
[ x] Testicular Shrinkage / Loss of Fullness
x Genital numbness / sensitivity decrease
Weight Gain
Gynecomastia (male breasts)
[ x] Muscle Wastage
Muscle Weakness
Joint Pain
Dry / Dark Circles under eyes

Misc
[x ] Prostate pain
[x ] Persistent Fatigue / Exhaustion
Stomach Pains / Digestion Problems
Constipation / “Poo Pellets”
Vision - Acuity Decrease / Blurriness
Tinnitus (ringing or high pitched sound in ears)
Hearing loss
Increased hair loss
Frequent urination
[ x] Lowered body temperature

Other (please explain)

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?

I tried several things through the years.
I tried iodine and I had improvement for a few days but then it went away.
I tried tribulus.
I had a surgery a year and a half ago to get rid of a varicocele. It had a slight effect but not much.

Then I gave up all hope. I accepted its over. I have a friend I owe my life to.
I did what he suggested. Had to go to many doctors to get prescriptions.
I did three months on testosterone injections and muscle building. Gained 25 pounds of mostly muscle.
Then I did a pact by my friend’s instructions with hcg and clomid and tamoxifen.
I felt like shit and thought it didn’t work but I continued it
A week after I was done with the pct something changed.
Penis grew again. Erections were easy to get. Another two weeks and I started getting horny.
That was two months ago. I wanted to see it lasts and so far it didn’t. I pray to god it continues.

I was following this forum for years and decided to come write something. I had nothing important to say before but now I do. I think.
One thing I noticed is caffeine and alcohol still are bad for me. If I touch them my erections are weaker. Without them I feel like I healed 99%
Think much faster. Stronger horny
That’s all… two months back to life after being dead for six years.
I hope god allows me to fully heal for good.

If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?

I was on “normal” range on the low side. According to why all my doc said.

Anything not listed in the above questions you’d like to share about your experience?

Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.

Took it for a few months.
Poe state started burning. Then erections stopped. Doctor said just stop taking it. I did.
Prostate still burned for years. Also no erections unless I tried very hard. Tired. Can’t think.

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#2

I’ll add the pct I did.
I don’t recommend anyone trying it without a doctor.
But maybe some doctor is reading it and can use this to help someone

I did the pct for four weeks exactly.
I did the first day 300 mg clomid, then 100mg for the first two weeks, 50mg for the third week, and none for the forth week.
Tamoxifen I did 20mg during the four weeks every day.
Hcg I did 3000iu the first day then 250iu every other day for the four weeks

I didn’t feel any improvement and felt worse during that period but after that period I healed which is very weird.

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#3

Seems my second message is lost somehow ?

Anyway I said I would not suggest anyone does this himself. I’m writing this in case there is a doctor here that can use this information.

As I mentioned the first thing I did was to build muscles with testosterone and then I did pct.

Pct was four weeks
First day 300 mg clomid. Then 100 mg for the rest of the first two weeks, 50mg on the third week, and no clomid on last week.
20mg tamoxifen daily for the four weeks
3000iu hcg the first day of the four weeks and then about 250-300iu every othe day for the four weeks.

I felt like shit all that period. I healed only a week after this period which is very strange.
Maybe some doctor can use my experience in trying to help others.

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#4

Also I should mention I am healed but for some reason caffeine and alcohol can still fuck me up when I touch them.
So why is that?
I can live without caffeine and alcohol though. Finally I have erections and libido and my motivation back.
I feel I lost six years of life. But I will need to deal with this psychologically.

1 Like

#5

Congrats on the recovery, man! I hope it lasts forever. My only question is regarding the PCT. you took 300 mg of clomid?! That is so much. I took 12.5 eod and that alone made me want to cry and go watch The Notebook. What kind of side effects did you have on that?

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#6

I took 300mg only on the first day of the pct.
I was afraid of side effects. But mostly I was tired and think I had some blurry vision. Maybe the hcg would balance it?
again, I don’t recommend anyone does anything without a doctor. We were fucked up so badly, don’t fuck yourself up more.

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#7

Another thing that is weird, but I should mention.
Somehow during the pct I noticed a change in my stool. It was suddenly more normal and came out in one piece.
I have no clue how hormonal changes would change my stool when my diet did not change.
Anyone has a theory?

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#8

Did you experience dull or pleasureless orgasms? And you said genital sensitivity improved?

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#9

Yea. The whole feeling changed to what I guess is normal now.
It feels so much more sensitive now than before. Also it’s much more enjoyable

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#10

Damn can’t decide between prep or this protocol now

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#11

I don’t know if it is just the protocol or the whole package (the three months of testosterone and very heavy training and muscle building before it)
Together they worked. I don’t know which had more effect

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#12

I’ve been wanting to take the plunge with HCG for a couple weeks now. My symptoms have improved dramatically over the past nearly two years, but I am definitely not “cured.” I spoke with Dr. Bruhin in San Diego(who has PFS btw) and he said that besides time, HCG was the by far the most beneficial thing he has done. I’m just terrified of making myself worse off.

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#13

I tried hcg alone in 2014. It had a little effect on me but it passed after that.
I read an article about bodybuilders who fuck up their hormones and it said you need hcg together with seems to keep results.
I.e. ad very little though.
Most of what I did was just based on what a friend who is a bodybuilder told me to do and I followed blindly while having my doctor keep tabs on my health.
Fortunately I also managed to get the medications I needed from my doctors as they knew how fucked your my body was and I basically begged them and kept asking.

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#14

I meant hcg together with SERMS

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#15

Does he see patients for pfs?

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#16

He doesn’t

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#17

Why?

I suppose it’d be better to see his doctor instead anyway?

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#18

He does. He said he has counseled over 100 guys so far. He is a super nice dude and has a really interesting story. Like a lot of us, he stopped and restarted propecia several times. I’ve only talked to him once(he’s on the west coast I’m on east so it’s difficult for me to get an appointment time that works with me without taking off for work.)

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#19

Holy crap, that is a LOT of Clomid. I tried 25mg once and felt really, really weird.

I’m glad to hear it helped you…

I also tried HCG short term and actually felt pretty good on it. I was planning on cycling it… 1000 IU’s per week for 4 weeks then 2-3 weeks off, then repeat a few times. I felt good at the end of the cycle but was afraid of it making me worse so I never went back on it

You are def not the first to get better with this (or similar) protocol though, so I think there is something to it. Several people have done on/off/on/off Clomid, TRT, HCG… all kinds of stuff that messes with HPTA and testosterone. Something in there seems to get some people back to normal. I only wish I knew what it was that makes some better and some worse.

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#20

It looks like he’s a counselor/therapist. Would you have wanted to see him for therapy/counseling or does he prescribe treatments? Just asking because I’m planning a trip to San Diego this summer

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