You are my hope!
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Hereās @Henchman21 routine and where he was currently (approximately 2 months in):
Exercise: Daily - Wake up 7:30AM and run/walk 2-3 miles depending how I feel. Shirt off always, full sun. 4 days a week of heavy lifting, rotating muscle groups - immediately after my morning jog. HIIT Sprint training twice a week when Iām not lifting, one day of light cardio. Afternoon around 5-6PM - I walk/jog another 1-2 miles when Iām not doing HIIT.
Edit:
After two months I couldnāt leave the bed, only for a few hours. I was shocked and crying all the time what the pills have done to me. But yes there is a good chance to recover in the first year period. Just donāt make a joke of this horrible disease.
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Hi Exsexgod, I would never make a joke of this disease. I am lucky to be alive. It literally almost killed me and Iām thankful now every day that it didnāt win. What you listed was before my worst crash, but regardless exercise was the only thing that got me through the worst. The only thing I could focus on besides the endless suffering. I 100% recognize that it is not for everyone and would not work for many or even most. However, it worked for me and I want to share that.
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I know two guys personaly who solved their symptoms in the first year. And I saw many who made an account here, increased with time and closed the book of pain and stigmatizing and disappeared.
Best thing can happen.
For me and many others it has been a hard time to see all the timelines passing by. The normal two weeks, four weeks, than panicking, crossing the two months line, loosing hope, crossing the half a year line, first yearā¦
Than the last resort is hope for one of the recoveries or long time improvement. For our souls itās a game for an acceptable life or zombie state and a stolen life.
So every recovery story is a very sensible story.
There are really some milder cases without hard ED, shrinkage and muscle atrophy who find back to an acceptable life or even a recovery.
So I believe your story with all the ups and downs. Like some others how report their way out of the hell back to normal. Even family life and normal sexuality again.
For a twenty year old young boy the last resort.
But over the time I found many unfair fake accounts and fake recoveries from a well known and blocked herbal reseller rising hope in desperate humans just for selling his herbs. Totally unfair for the severe cases who try it all and get disappointed.
Same guys suddenly appear with a wonder healing by a Hormon or a protocol never seen before. The rising hope for a quick fix for so many desperate young men than probably bitter disappointed, if this is the next train leaving and your not one of the passengers.
And in this atmosphere, we - the severe cases - sometimes think, if we suffer without injecting and recovering, we are guilty not willing to get cured than.
And there are so many suicidal cases on the borderline to that a man can stand a torture - with a silenced voice and they lost their forum, lost their space in any chatroom, because no one wants to hear what a disease our shit is for the severe sufferers.
But itās an ugly and life changing syndrome. For all the very severe cases with no hope for a recovery. But with the hope sometimes a cure for all will be found by research.
Some stronger natures have the power to fight out the mess. Some hidden in a life situation starting now with accepting the handicaps. Others crashed from a high level to the groundless. Some could hold their social background to fight, some like me lost their pride as a man totally. Some have muscles and the will to work out, to go outside for a walk or a run, some can work, some like me are totally switched off in their brain, no fun to stand up, no fun to wash, to cloth, to buy groceries, to leave the house, even to see the light, who feel the sun now as a laser weapon, themselves as bum zombiesā¦ neighbours staring, forgotten by all their friendsā¦
For us not you but some MĆ¼nchhausen syndrome Accounts with feeling better than ever, looking so good, incredible sexlife hurts us with shrunken, vibrotic dicks forever, wasted faces, thin legs, lost relationships giving a shit for us, neurotic looking into womenās eyes nowā¦
So we the severe cases are often even the younger cases total obsessed by any recovery story and so itās very responsible to be true.
After reading your story I think your up and down story is real and can give hope to others
After all itās time to find a cure for all by understanding the disease and raising awareness to warn the next generation of Organon, hims, keeps, my spring (homicide) victims.
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Thanks for posting. I assure you that my story is real, and my only goal here is to give some small shred of hope to the relatively few that are able to claw back their life from the depths of this disease.
I make no claims to have a cure and also believe that the only true cure can lie in supporting the research.
I shudder to think about how many victims will be in this next generation as you have said with increased access to this drug through hims, keeps, etc. so many more lives lost.
That being said, I had most all symptoms I believe except atrophy and gyno and somehow made it out to the other side. When I got this, I essentially thought it was a life sentence (or death sentence) depending on how you look at it. That may not be the case though as there are some who have recovered, those that you knew personal and also myself. I just want to make sure people know that recovery is possible so nobody ends their life before theyāve given recovery a fair shot.
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Iām glad to see you feel good. Iāve also been experiencing crashes and recoveries repeatedly (Iāve been off medication for 10 months).
This is how I rate myself every month after my breakdown.
January average: 10
February average: 13
March average: 66
April average: 100
May average: 78.2
June average: 85.2
July average: 76.1
August average: 59.8
September average: 89.2
October average: 63 (as of today)
I was planning suicide every day in January and February. There are about 16 symptoms on the body. A miraculous recovery started in mid-March and was very close to 100% until mid-May. Itās been good and bad since then.
Every time I feel pretty bad after a breakdown, I start slowly recovering. When it returns to 100%, it usually gets worse again in about a week. In general, a bad month is good for a month, or a bad two weeks is good for two weeks. But I havenāt felt any improvement over when Iām feeling bad right now. Have you also experienced this kind of stagnation in your recovery?
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@HOPEQ Yes, this sounds very similar to the patterns in my recovery. Now think about this hard, your perceived 100% recovery. Looking back did it seem more like mania to you?
I thought I was fully recovered around Christmas last year and it actually was mania looking back. I went on an uncontrollable shopping spree and some
Other things that were not exactly like me. It was like my body went to correct for the horrific downswing and over corrected. After this I swung back down and stagnated, but was much more stable for some time before I very slowly started improving again.
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Man sorry but you said you were pretty much recovered since your very first post. It doesnāt feel like what PFS and other similar syndromes feels like, really.
I know your intentions are the best, but there a very tiny amount of hope here, at least IMO.
Congrats anyways.
Yeah, I donāt think I need to justify myself and my story to you, but Iām pretty sure most people with PFS have the initial false recovery. Which I had initially, followed by a HUGE crash to a much worse state.
The state I was in for the past year had its up and downs yes but by and large I spent the last 12+ months actively trying not to kill myself because I felt so horrible. This disease gives the phrase āfates worse than deathā meaning. PFS is such a fate. I never really knew what that phrases meant until experienced it. I wish I didnāt, but 100% had PFS and do know what it feels like.
Believe it or not, your choice.
Edit: I didnāt understand why people that recover would ever leave the forum and wouldnāt stick around to try and help others in the same boat. This post makes me understand that thought process a lot more.
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dont disapear
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End of October update.
Crashed once more this month, one night of extreme anxiety, no sleep, anhedonia, loss of sexual function, the works. Recovered mostly within 24 hours and have been fine since. Recovery from each subsequent crash like this takes me to a higher level each time. I still would not say 100% recovery but closer than ever before. I still am slightly up and down, but itās harder and harder to notice as I become more stable. Iāve almost entirely stopped any protocols as well. I exercise sparingly like normal. Still avoiding the same foods though, but thatās really it.
My main remaining symptoms are sleep disturbances and libido, but I slept 8 hours straight recently which was amazing and I can regularly take naps now, but not always. Libido is good enough, but noticeably not 100% as before. Most nights I do not sleep well, but I sleep well enough. The rest of my symptoms fluctuate, but more often than not I am pretty close to recovered. These include sexual function, anhedonia, and anxiety.
Iāll keep updating monthly until I hit 100% or thereās simply no further changes.
Hope everyone else can make it here one day as well.
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Tested caffeine the past two days, maybe half a cup of coffee/espresso and it does not seem to affect me negatively anymore. Moved pretty much up to 100% except sleep past 3 days. Yesterday took a 1.5 hour nap and slept 9 hours broken at night after introducing caffeine back into my diet. Stopped probiotic for a few days, and if anything I seemed to get even better. I highly doubt it had any effect on me. Iām going to finish the bottle and stop that permanently. I will try to reintroduce minor soy and chocolate back into my diet next, just a small amount probably next month. Alcohol will come last and I will probably wait a long time for that one and reintroduce that VERY slowly.
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Every time I climb to 100, or close to, it seems I crash. This crash was again less intense than the last. Still was able to get about 3 hours of rough sleep and woke up with morning wood. Function seems fine this time, but libido is shot and mental state definitely took a big hit. Anxiety is back, anhedonia, fun stuff. Iām definitely still doing ok, just noticeably down from where I was.
Every crash has brought with it more improvements though on the rebound, so trying to look forward to that. I hopeful after a good nightās sleep tonight Iāll be back close to where I was.
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Have you been doing anything regarding lifestyle etc? From your first protocol, what did you keep nowadays?
Btw, sorry for being an asshole with you the other day, I was just too bad cuz all of this. Sorry.
Lately Iāve been feeling so good I havenāt been doing much of anything. I avoid soy, chocolate, caffeine and alcohol and I take a daily probiotic. Thatās it. I donāt even exercise regularly anymore as Iāve been so busy with work lately. I do go for runs as a way to manage my anxiety when that returns, but thatās it. I stopped probiotic for a few days and saw no difference so Iām gonna stop that too once the bottle is done and Iāve already slowly been reintroducing caffeine.
I suppose I eat very healthy and pretty much only organic ingredients, very little premade food but I do that normally. Lower carbs and very little sugar except fruits. I suppose that might be different than others. Same with anything I use, detergents, shampoo, deodorants, all as ānaturalā as possible. Mostly my wifeās doing, and I just tag along as it wonāt hurt me. I donāt do it because of PFS, but I suppose it might be worth noting.
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Also, no worries about that. Itās hard to put myself back in that position already even though my recovery is recent. Iām really sorry youāre going through this and if you ever need someone to talk to Iām here for it. No hard feelings, truly.
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Super happy for you bro. Believe it or not, when I first crashed I would read your postings and it gave me a ton of hope when you would speak about having windows of recovery.
Crazy how sharing your experience can help someone you donāt even know huh? Lol
Iām now about 80% recovered and it will have been a year since my crash in December. I had severe symptoms almost all of them. Mental and physical.
What remains now, is low libido, and some physical sides:
My face fluctuates from looking normal and healthy, to sickly looking lol.
My face also recently started producing oil again 3 months ago, but fluctuates from oily to dry for a few days.
I have the same ups and downs as you, and my experience is very similar with yoursā¦ My downswings/crashes have become not only less difficult in the last few months, but also they seem to be lasting less and less time.
In the past it would be weeks of a downswing, now itās like 1-2 days. Even when Iām in one Iām still getting 7-8 hours of sleep, I might wake up 1-2 times and go back to sleep when Iām having a downswing but thatās it.
My question to you is, I see you mentioned in one posting that your libido was 95% recovered, but now are saying itās lower. Do you think it will every fully recover?
Also did you ever have any physical sides?
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Iām so happy to hear that youāre doing much better and that all my ramblings did some small amount of good. Iām sure your post here will help give some others hope as well. Thatās crazy about your face structure fluctuating, I canāt imagine what thatās like. This disease is insane.
I never really noticed the oily to dry skin thing, but it was probably happening to me as well as I developed on and off horrible back acne and on my shoulders as well when my recovery started accelerating. One thing that Iām noticing this month is when I am hitting a really high peak, my armpits will sweat a little all day. Not sure what thatās about. Iām also shaving and clipping my nails more often which I didnāt really notice before (had bigger fish to fry I suppose), so I think I had slowed beard and nail growth. I saw a few people reported that before.
My libido and sleep I would say are my last significant remaining symptoms both of which are still fluctuating. My libido will drop pretty significantly in a dip still but will recover in 1-2 days. Iād say generally Iām around 90%. My sleep is less far along, but is good enough for me and still improving. The way things are going I have every reason to believe Iāll fully recover given more time. Every month has been progressively better since May and Iām still seeing significant changes, so Iām not yet stagnant in my recovery.
I did not really have physical sides other than maybe genital shrinking. I had muscular problems, twitches, weakness and loss of control but that seems all neurological to me. Did not have muscle wastage or facial changes that I could notice. I lost like 35 LBs. but that was due to the exercise I feel sure.
Thanks so much for posting, hearing that someone else is digging themselves out of PFS hell has made my night. Keep going, I want to hear about it when you fully recover.
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Iām also experiencing back acne as well lately. Some deep under the skin pimples as well as regular ones. Keep in mind I never had back acne before ever. Even pre PFS.
I also get body odor again. When I crashed I no longer produced body odorā¦ I would have to go like 5-6 days without a shower to have any scent. I never thought I would be happy for something like that to return lol.
I also had the muscle tremors/twitching. Under my eyes would spasm and twitch if I squinted, and if i scrunched up my nose. Sometimes when smiling as wel. That is almost completely gone.
My muscles were mush, I could flex my bicep as hard as I could, and literally push down on it and it would deflateā¦ 
This shit definitely is crazy. I never thought the little red/pink pills I got from āKeepsā could fuck my whole body up like this.
Im curious to see how far my recovery can go naturally. Itās amazing to see that almost all symptoms have went away in the span of a year.
Itās also terrifying and sad to know that there are people on here who never got better, and possibly never will. The first 6 months was the worst time of my entire life. I can say that with the upmost confidence. My whole life did a 360.
I donāt know if I would still be here if I was in the same place now that I was in last year.
Itās a terrible thing to watch yourself totally deteriorate.
My first symptom was the pink/dark circles under my eyes.
Then I couldnāt get to sleep
I also had the symptom you mentioned in your first posting on here, where as I was falling asleep, a sudden wave of anxiety would make me gasp and wake me up.
Then i started waking up every 2 hours with my heart pounding
Then the brain fog
Then the excruciating depression
Then the 20 other insane symptoms, including hearing loss for almost 3 months.
We dodged a bullet and have a new chance at life. Iām very thankful. Still annoying to deal with this shit with the ups and downs, but nevertheless Iām living a normal life and optimistic that I will keep getting better god willing.
did your biceps get hard again? My smell only returned in the right armpit, the left one has no smell. Both sweat again