@Henchman21 Did you ever take prednisone? I unfortunately gained tinnitus from Cialis and will most likely be prescribed this.
I did take it VERY early on, while I was recovering from my first crash but before my second most severe crash. This was right as I was figuring out what was going on. I went to the ER because of all the muscle seizures I was having and I thought I was having a stroke or something because it was on one side of my body. Of course now I know it was PFS. I have not taken anything like this since though.
Thanks for clarifying. Yeah, urgent care didnāt prescribe it to me and its efficacy for treating tinnitus drops a ton after 72 hours which is lovely.
They referred me to an ENS. Iām hoping it just goes away with time. The half-life of Cialis is really long.
My mom got permanent tinnitus from Meloxicam. Its amazing how much pharmaceuticals can mess you up if youāre one of the unlucky ones.
Sorry to hear that and yeah itās wild. It seems to be getting a bit better. I noticed a window this morning where it fully dissipated.
I will note that I have had periods of tinnitus, the longest of which lasted around 3-4 days. I didnāt think it was related to my PFS fluctuations, but now Iām questioning that.
I was mild for me and unnoticeable. Within like 15 minutes of taking Cialis, it immediately got worse.
54 months post fin:
While this month had its flaws, this was a VERY good month. Bren a while since Iāve had one this good. I took another leap mentally at my last peak. I feel like I gained 20 IQ points for that week, just such clarity of thought. Music continues to have more color, but VERY slowly. I have not had anxiety or akathisia bad enough to force me to do my running or intense exercise for some time now. It happens, but I can control or suppress it.
Main issues Iāve had are minor anxiety issues, vision issues and dryness. My eyes are so dry I canāt really see upon awakening, nose is so dry inside that the skin cracks and splits, hands are dry and itchy. Vision issues are fluctuating a lot where some days I wear my glasses all day and theyāre needed, some days I donāt wear them at all. This could be related to the dryness. I donāt think so, but itās possible.
Sleep has been good. For the most part I still hit that 6 hour minimum before waking now (initially) and the other day I slept all the way until 11 AM (10 hours total), which I simply donāt sleep past 8AM anymore no matter when I go to sleep usually. I generally feel rested most every day now, so I donāt care too much anymore, I keep track just for record keeping purposes. I still would like to hit close to 8 hours straight every day. Thatās my ultimate goal back towards normality.
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Just record keeping. Have been doing incredibly well lately, especially since my last post. I just ācrashedā last night. Normally I have an anxiety spike when I crashed, but this time I didnāt feel it. I simply felt a little more wired than normal annd had a ravenous appetite. When I laid down I simply could not sleep. I just laid there until 4am or so before I could sleep and then woke up feeling crummy and with no appetite. I want to make it clear, I am NOT complaining. I am thankful every day that I have my life back. Iām just keeping track of my recovery in detail in case it ends up helpful in some way.
Looking back, my last real crash was October 26th I think. Thatās a solid streak. Letās see if I can beat that.
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If I could give you a cash prize for having the most fluctuations of PFS I would. I donāt have much to offer these days haha.
Hang on as long as you can man. Thatās all you can do for now. Hoping you find relief. No change in your condition anymore? For how long?
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Iām holding on for dear life taking hCG. I unfortunately do not get windows or relief from this condition.
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personally i think drugs like hcg etc are useless for this condition. if the receptor is fried, you can blast more gear than a 90s bodybuilder, it doesnt matter
I agree that for most hCG is probably going to do nothing. Iāll be adding more into the mix as well. Iām at the point where I donāt care anymore. Well, I respect the PFS Network research efforts, thereās only so much a person can take sitting around suffering to no end.
So this time I had the anxiety/depression/brain fog spike separately from the sleep disruption which is odd. Lasted approximately 24 hours and recovered two days ago. Not back where I was completely yet, assuming another slow ascent back to my peak from here.
End of month update. 55 months post-fin.
Great month. Had one or two days of mild sleep disruption and 24-36 hours of anxiety/depression. Other than that Iām doing very well in all aspects, especially mentally. Just more drive this month, everything is clicking. Skin issues have gotten worse though. My dry skin on my hands is the worst itās ever been. My knuckles are splitting and bleeding and peeling. Itās usually constrained to only my knuckles, but itās all the way to my wrists now. The backs of my hands are red, dry, and painful. Skin around my wrists is cracking some too.
I need to use some lotion or something but Iām scared to. I have seen stories of people crashing from lotions and sunscreen. Does anybody know what has caused these crashes? What should I look for and avoid in lotions? Anybody have similar symptoms that can recommend something?
End of month, 56 months post-fin.
Overall just a great month. Minor anxiety fluctuations, but essentially 7+ hours of sleep every night. Mental state is great, thinking clearly and my dry hands has slowly almost resolved. I now have dry eyes instead, but only mild. Libido has been up and down, and thatās really my main symptom right now, but couldnāt care less. Hoping I can keep it going.
Howās life in general?
For me, life in general is very good now. I have my life back and Iām doing most of the things I used to do. Itās not the same as pre-PFS (yet), but itās still great.
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Good stuff to hear. In a similar place myself - still not 100%. How does the libido affect relationships, better to just be upfront and honest?