In reply to Sonic
I think the best place to start with is the truth. The problem here is that we have our own versions of what the truth is. If that truth starts with reading about Arjun in India who cured PFS with fasting then that is your truth. Maybe it is Chao in China who cured his PFS through a clean diet, lifting heavy weights and a positive attitude then that too is your truth. I like the saying “if something sounds too good to be true then it probably is”, sorry Arjun and Chao.
With respect to cdnuts he has dined off the back of his recovery story for over 7 years and made himself available online. He took up positions as an administrator, which allowed him to operate from a position of trust whilst being able to delete any posts that questioned his ethics or the money he makes from PFS.
Dr. John Santmann lost his son to PFS, set up the Foundation and put $500,000 of his own money into the charity. Dr Santmann has not asked anything from us but instead works hard on bringing awareness to a condition that many in the medical industry have chose to ignore. Cdnuts has rubbished Dr Santmanns efforts and shown only hate towards this man, that really tells you everything about his character.
His actions only serve to generate fear and make people believe that they have no other option but to believe in his protocols, which seem to grow each year. In turn he pushes people away from donating in research and public awareness initiatives pursued by the Foundation. It’s a clever strategy designed to keep people afraid and turning to him for help. When the protocols don’t work people still think he’s the only one who can help so they say nothing. He is using fear to control people and an administrator’s position to control what is said about him. Control, manipulation it is what it is.
So when you buy into his protocols you are allowing yourself to be controlled and manipulated. In some ways it is no difference to bullying, using a perceived power over a weaker person to control them. That is the person you put your trust in.
People are willing to believe the recovery stories promoting his protocols. They are willing to believe in someone who posted a recovery whom they have never met. They are willing to believe in cdnuts who has kept his identity a secret yet has enjoyed the fame at every opportunity using a false name.
Cdnuts has proven over the past 7+ years that he’s a one trick pony, dining off his alleged recovery protocol but unable to figure out the universal cure. If he could have he would have because he is someone who loves the attention. He does not have a background in medicine surprise surprise but rather a background in sales. It’s the art of selling that he excels in.
The fact that cdnuts has been around for 7+ years proves that there is still a demand for whatever he is providing. In truth many of those natural therapies have been around longer than 7 years. I have always said they are worth a try but be realistic in your expectations. If you are doing them because you are pumped up from reading a recovery story then you’re being driven by emotion that clouds your objectivity.
In the end we come full circle, people choose their own truth. History shows that people will follow those who give them hope in difficult times. Until we know more about PFS and the route cause then I don’t see much changing. I prefer to make my own choices, remain thankful for the things I can still do, donate to the Foundation and share information with others. GL