GI stuff started to get somewhat better but I tested positive for Covid this morning. I’ve dropped so much weight. I weigh 138 lbs now. All of the strength and some muscle i’ve been able to slowly put on over the past year with healthy habits and consistency, it’s gone. And it vanished in the exact same pattern as when I first got PFS. I was talking to a girl for the first time in a long time and things were going good, but that went downhill also. I may try to just finish school, get licensed, and move out to some random state. Practice for a few years and try to OD out in a vacation cabin or something. That truly feels like where my life is headed. I believe i’m going to be alone the rest of my life and just constantly battling PFS and other health issues. I’m not strong enough to handle it
You are not alone with your state and your thoughts.
I lay in bed till midday and than I stay totally isolated on my chair, starring bad videos and try to chat with other sufferers. My muscles all gone. Fatuige kills me. Under the shower I’m trambling like a 99 year old man. My business makes a supervisor. I can’t even pay one bill, list the orientation over my whole life.
Only the weekends my house is full of children, but more and more I can’t connect to them and they recognize that I m not in a good shape anymore. My own child stays to me.
But now I go to the psychiatric hospital and this period is over for a longer time. Get no pills again I insisted already. Don’t think therapy helps any PFS patient.
Without a few old friends everyone is gone. Believe me the fiancee and ex affairs are the first give a shit for you. So if you can’t buy a woman with anything like success, money, good looking, making jokes, sexual fitness forget them.
But may be life has one chance for me and you for a new start up…
I feel the exact same as way you (1 pill as well), I can’t go on any longer with this. I’m probably gonna end up oding within the next week or so.
I sent you a message. Here to talk if you need to.
i’ve experienced a second crash. I’m down to 137 lbs, my skin is worse and more elastic and stretchy, my digestion is completely wrecked, and I’ve lost all of the strength and muscle that it took me 6 months to a year to gradually build. My dick is more floppy again and my sperm is complete water. It’s happened so fast and i’m completely devastated. I can’t get muscle pumps anymore, my vascularity is gone, my hair is fucking dry again. I’m back to square one. It’s unbelievable man. I was making progress and just like that, I’m fucked. I didn’t take anything new or any changes, I just took miralax twice, a half bottle of magnesium citrate, and did 2 enemas. My bowel habits changed a couple of months ago and then I had severe pain while having a bowel movement, and my rectum was completely numb and tingling for a week. I freaked out because it felt like I was shitting through a straw. All of this happened over the course of about 6 or 7 days. Guys, be extremely careful with laxatives, enemas, or anything that can significantly change your gut biome.
I’m gonna point this out every time I see it. If this was posted in big bold letters on the front page in…when was this posted 2018?.. it would have saved my life and several others. We know this is a thing, let’s pin a warning and save some lives.
I didn’t take Minoxodil.
I sent you a pm. Also here if you wanna talk.
Mental issues have steadily gotten worse over the past few months. I don’t know if I’ve had a ramp in inherited mental illness (multiple members of my family have it) or if its PFS related. Probably a combination of both. It’s a fight between me and my brain on a daily basis. I go on long walks outside when it’s sunny, lift weights when I have the energy, etc. But it only keeps it at bay temporarily. Man I guess next month will make 3.5 years of what has felt like a constant battle every day. I guess it’s worn me down to this point. I’m just tired I guess. I guess we all are. There’s only so many albums, so many TV series, so many walks, so many workouts until you realize that shit may just not get better. It may just be what it is. It could be worse and It could be better; I suppose that’s the gravity of most peoples’ lives. PFS or not. I hope that you guys are all still fighting the good fight, whatever that looks like. One foot in front of the other, or whatever they say. I’ll be 28 in June and it just seems that my 20s have been sucked up. Like they were here and now they’re gone. In my gut I know that it’s probably time to begin searching for a relationship and building a future in some way, but I’m not sure what that looks like for me. Maybe it’s still in the cards.
We guys still fighting every day. To stand up in the morning, or in the early afternoon. To force ourself to go for a walk, not to loose our calve muscles, to force ourself to live on with this condition.
Some say hello here and than symptoms go away after some months. They are the lucky ones.
And you are one of the straightest fighters here on the forum.
I am absolutely positive that there is a girl out there who will love you no matter what, as the totality of you, despite everything pfs has done, is still incredibly strong, intelligent, thoughtful and caring, and so much more, and any girl would be lucky to have you, seeing you as a really decent guy who’s been given an absolutely shitty hand through no fault of your own.
You are the first PFS patient I saw. Although we come from different countries and races, I see that you have a long lost feeling. You are very sunny and look like a teenager (you were only ill for more than ten months at that time). Your story inspires me.
For 8 months, I’ve also been trapped in this ridiculous joke. Like you, I have serious mental problems / brain fog / headache / head pressure. I also need to constantly plan my work, and my family also has a little mental history. I can’t even get into what it feels like when I’m healthy.
At this time, I will think of you. In this dangerous battle, no matter how painful I am, there will always be someone who has lost more and stronger than me.
Even if we are murderers and Nazis, we should not be subjected to such torture. We have paid enough. “It’s not worth committing suicide after holding on for so long.” that’s what you said, “put one foot in front of the other until you go to the other side”. I don’t know how far ahead, but we still have time. I was ill at the age of 22. I believe everything will change when I was 33, I will look forward to my 44 year old life. Like exsexgod, the first 59 years of his life are so wonderful. I look forward to that day. I hope we can see the end of the story together.
not an option man. It just isn’t. There’s so many better ways to handle this bullshit than that. As horrible and draining as this condition is, it could be worse. It could’ve been a horrible car wreck or fall & we could be in a wheelchair or something similar. I’ve tried to keep looking at it from this perspective because that is the ONLY way I’m able to find any peace. Exercising, studying, cooking, enjoying things all looks different now. But we can atleast still do those things to SOME extent. I couldn’t imagine if I was in a wheelchair or paralyzed the rest of my life, or had ALS.
Also, I only have myself to look after. I don’t have a wife, kids, a mortgage, etc. Shout out to all of the men dealing with this and still supporting the family dynamic.
hit rock bottom after a girl I was seeing broke things off with me. She said she was 100% confident I’m on the autism spectrum and I have communication issues. I took the Lexapro my MD prescribed months ago, at the lowest dose possible (5mg). Within 3 days my dick was completely numb and a shriveled noodle. Constant tingles like somebody was zapping it. Couldn’t get erect for shit and It felt like I was jacking off a random part of my body. Threw the pills in the trash. Over 7 days since taking it and dick’s still the same, minus the zaps. So yeah, stay away from SSRI’s I guess. Go figure.
I don’t know, how I should write it. It makes me creazy because your behavior is so related to mine.
Before taking finasteride you have been desinformated by the criminals like Kevin Mann and the hairloss doctors but I think you saw the critical comments about the danger of finasteride too.
And after all you throated the ugly poison like me. I read the gaslighting leaflet, but ignored the warnings too.
I think you have been well informed about the risks of Lexapro too and you took it. A behavior which I know to well, lacking an inner self protection program, witch says default NO to every unnecessary risk.
What the hell. Although at this point we might as well be. Androgens are thought to have a role to play with autism. I honestly wouldn’t be surprised at this point.
yeah my skin and muscles are back to square one. My skin is something out of a sci-fi movie. It is completely stretchy and elastic, like full Ehler’s Danlos. I wonder if I should actually get the genetic tests for EDS. Skin patches on the back of my tricep, on my bicep, and other areas are completely numb and rubbery again, my thighs are completely pale and look like flabby child’s legs. It’s just unbelievable. Thin, numb skin all over my legs that I can press together and it wrinkles like an old person’s skin.
@Dknighten I got the testing done but was negative. My neurologist ordered it.
https://www.invitae.com/en/providers/test-catalog/test-02313
I’m asking my provider to order the test next time I see him.
I think it’s certainly worth it for you. Insurance will fully cover and it will check all the genetic permutations that can cause EDS. Hope you get some answers bro.