Over the 2 and a half year mark now. Will be 3 years in October. Been filtering my water for going on 2 years now, taking vitamins and supplements consistently, eliminated cow dairy, gluten, some other stuff. I don’t drink alcohol and use dip sparingly. I go for walks every day 20-40 minutes outside. It’s done nothing lol. Skin and muscles are still saggy, swelling belly and thighs, vascularity and leanness disappeared, still have cognitive disconnect from everything, crippling anxiety. It’s probably permanent honestly. Just haven’t been able to come to terms with possibly living the rest of my life like this. I’ve talked to so many guys who are just like “live the healthiest lifestyle possible and move forward, stop thinking about it, etc” but I mean that’s pretty much what i’ve done. Do I just try HCG and progesterone or something? lol I’ve lost most of my friends, I have a couple family members I still talk to. Everybody else in my life has moved on with their lives. The day after I took finasteride back in October 2018 my life came to a halt. Now it’s just me, almost 3 years later. Still dealing with this somehow.
Like what could have a single 1mg pill possibly have fucking done to my weak ass body to permanently shut shit down for almost THREE YEARS now. Was my body that fucking pathetic that it just hit the “OH SHIT” button and just started shutting shit off? I don’t understand. I could have literally taken any other drug known to man-kind. I could’ve injected heroin, I could’ve drank a gallon of shroom tea, snorted meth, etc and I would have been FINE. This is absolutely fucking riduclous. I’ve watched this forum and other group chats on and off for this entire 2 and a half years, and I have the utmost respect for all of the administrators here, but guys we are in quite a pickle here lol. There’s been some wicked shit that has happened in our bodies and it may take quite a while for any research to come up with anything conclusive about a possible treatment for any of this. I mean, this is honestly some of the craziest shit there is as far as modern medicine goes.
Sorry man, you’re suffering and fallout in terms of losses is far too common on here. Consequently It continues to amaze me that this is not all over the news and media.
However PFS sufferers always end up being characterised as bald limp dicked hyperchondriacs.
Beating my usual drum I know but changing this false perception and a journalist, channel that will report the true horrors of this drug is key. Because your right it is the craziest shit in terms of modern medicine. No one gets it apart from the poor bastards that experience PFS.
Its the same here its an existence at best
I had labs drawn on 8/7/21, Cortisol was the only thing out of range.
DHEA: 625 (147-1760)
PSA: 0.4 (<4.0)
Progesterone: 0.6 (<1.4)
Estradiol: 34 (below or equal to 39)
HDL: 70
Triglycerides: 61
LDLs: 101
Total cholesterol: 186
TSH: 1.33 (0.40-4.50)
T3 free: 3.7 (2.3-4.2)
Glucose: 81
Total Testosterone: 938 (250-1100)
Free Testosterone: 126.7 (35-155)
Cortisol: 22.8 (4-22)
The MD didn’t want to test IGF-1 and IGFBP3 unfortunately, but my hormone levels have stabilized with zero improvement in my condition. All the symptoms still remain the same and my body is on a gradual decline. Not sure what to try at this point. Going to try to do a post-workout cortisol test, as I am screwed up for hours and often into the night if I do a light workout session.
It’s getting to the point where climbing a flight of stairs or going for a walk just completely wipes me. I get out of breath with anything. Even a light weightlifting session leaves me feeling sick for hours.
friend，I can’t believe what you are experience，I’m experiencing depression， this shit makes us like shit，but you are strong man.everyone are looking you！
you edited the post 14 times lol. What did it say?
Oh yeah, I write so much comments and make so much topics because I’m so desperate about this condition, the urologist who gave me the pills just to try and my self harming behavior to toke the pills after quitting with my girlfriend, after two years in the sideboard, never check the internet.
Now I think no one here wants to here about me anymore. The all bored by my case.
You @Dknighten Damon and @Papasmurf Ryan are beaten so hard by muscle atrophy and other symptoms.
When I read your stories from the beginning it’s a kind of Masterplan for all that I experience myself starting up in my own body. These horrible feeling of melting muscles after the daily Nordic walk through the forest, these permanent creazy aroused tingling hot / ice cold feeling from the calves over the entire body to the neck and the throat makes me 
fear.
In the supermarket I began trembling over the whole body holding a cartonage with only some bread and cheese 
in it and like an eighty year old man I put the carton to the cash register conveyor cause I couldn’t hold it anymore.
I see your brave fight with workout and walk with doctors and healthy food and than I read your desperate comments.
You and Ryan are so sympatic young guys that I ask myself what have they done for this lot. If you experience only one side going better, one supplement supporting, I am so happy for you guys and it seems to be a lookout in this what could happen.
I’m much older but I love my live like you. You Damon and Ryan are so brave fighters to beware other guys from this faith in your videos.
Till the truth in the landmarking Baylor Study we all were hopefully that only one gene one Molecule was the problem to be edited and that there technics like crispr coming soon. Now we have to accept all is much more complex than we thought, no easy cure available. But after all we have the master study now for effective research. And enterprise of penicillin was not based by a plan it was a laboratory side effect, so there is still hope for a unsuspected goal.
This community gives me and I hope you so much hold, because real live outside is going on without us. Partner’s we thrust cut us away from their lives like cancer. Some friends are still standing, some in the neighborhood and the friends of my child stay to me. But live outside all the parties after covid, tinder date, secret affairs it’s all going on without us. Mercked away. This poison sold over twenty years, we all are ice cold calculated collateral damages. This is really hard to.
Now what about optimistic comments, like all went good try the potato diet. It’s nice, it really helps because of the weight loss for someone with overweight by loosing estrogen producing fat belly.
Seeing all the young guys here struggling with their young lives it seems to be creazy how an old guy like me going mad and going totally insane over this new condition. But I let it out and don’t lie!
So after all you are the young boy in this video, we all can see whow such a sympatic young live is attached by such senceless withdrawals of such a criminal drug. And I’m very interested about your way out of this condition.
I got the first dose of the Pfizer vaccine today. Will update if anything weird happens.
After First dose nothing. After second dose I felt bad and fatigued for one week. But is gone away.
believe I’m experiencing the same thing after my 2nd dose, kind of regretting it
It’s still going on for 2 week s now
came down with a headache, sore throat, and runny nose. I haven’t been sick since about 1-2 months after PFS, so roughly 3 years now. Getting a covid test tomorrow and scheduling a doctor’s appointment to try and get ahead of it.
I hope it’s not COVID-19, but a common cold, and a cold is good news.
I believe it was just a sinus infection. COVID test was negative and i’m a lot better now.
Yes, I have not been sick since the very start of PFS so it is very interesting.
Checking in on my thread. In the past 2 months, my bowel movements have become less frequent, consistency has changed, and more constipation. In the past couple of weeks, I’ve had really bad constipation to the point I went to see a doctor. I’m currently on laxatives, a fiber supplement, and a shit ton of water. I have pins and needle sensations all around my rectum/perineum, and it feels like rocks are in my ass. It’s super scary and I had no GI issues prior to PFS. At all. In fact, I had no health issues of any kind whatsoever. Fucking unbelievable all of this is. I’m about 3 and a half years into this now and new shit just keeps popping up.
Getting an MRI of my lumbar spine tomorrow. I’m truly scared that it’s nerve compression or irritation of some sort. Cauda Equina syndrome is devastating, it can result in permanent damage. I’m hoping that’s not the case.
MRI was fine, looking like some sort of muscular or structural problem. Feels like a narrowing of the anus somehow, like an anal stricture.
Unbelieveable, praying for you.