no not yet.
If things continue at this rate, i’ll be mostly bald within 6 more months. Had zero hair loss or thinning the past 4 years. Perfect hairline and had to be thinned at every haircut. I can’t even brush my hair or touch it now without it falling out.
How are you going Damon?
no improvements. Hair is thinning and receding rapidly, anhedonia, massive depression, thin skin, muscle wasting, etc etc.
First of all my most sincere pray goes to you Damon.
I probably could not begin to comprehend or process what you have been through all these 4 years. My objective opinion is that I knew past people from SSRI (not PFS patients but still) that crashed bad when stopped used them. Only lots of times no meds and good surroundings allowed them to be in a pre SSRI state. Yes, you may have fucked up, but that only means more time is required first to get out the SSRI and then to return to your post PFS path towards recovery.
Focus on the little things you have, can you at least sleep? good, go for 10h or more. Is there a good day outside? Go out, look at the sky, look at the tree, look at the birds. You have to try anything that helps you forget your hole of misery, even if it is just cope. This way the time will pass easier for you. Give it 1-2 years for your body to overcome your SSRI crash. Learn things in between.
You know more than anyone there’s no instant pill or solution to this, our only hope are very long term behaviours and environments where our bodies are able to figure out how to get to a new better state, regulate it and make it the new baseline, we should aim for this while scientific research is done in paralel. You are having it harder probably than anyone on here, yet I see you young and 10 years would mean nothing for your life. Give your body that opportunity, give it 10 years. Don’t worry about getting too old, what is too old anyway? someone in their late 30’s can redo their life perfectly. We should not compare ourselves to others in society because our pace is set in a very different way where things are a lot slowlier than for other people.
And I know I am by no means anyone to tell you to give it time, since I am only a 6 month supposed PFS sufferer from covid / BPA exposure (still to be cleared) but ey look at me I’ve never ever had sex, I am 32 yo man who never had sex and I am now in a PFS state where I am impotent, my penis and testicles have shrunk I have done a seminal test and I have very low sperm count, probably atrophy in my sexual apparatus whatever… like how could I overcome this? well I just coped immediately that I won’t be having any libido for say 1-2 maybe 4 years before maybe a miracle happends so I abandon all women desires and worries until that time had pass and then I will reasses my situation. If I keep being like this I will just get a low libido gf and use cialis and the likes each month or so and that be it. I will use artificial fertility to help get my gf pregnant and have a family and that be it. My gf may left me because I am impotent and cialis may stop working and that be it. Whatever I will do anything I can to get a grasp of life things that are available to me one way or another and then I will be old and I will feel release because I would not care anymore about it and do hobbies and shit until I die and that be it.
It may not be the life I would have wish before, It may be a miserable life for some but with the things I currently have and probably the permanent damage I have it is what it is available to me and I am by all means going to squeeze out all the juice, whatever it is left of it.
Sorry for my english, spaniards are naturally bad a it.
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It is such a nice and encouraging speech, I pary for all of us,hang in there,live day by day.
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My atrophy was getting worse, my hands could barely pick up food, he was sore and tired, and I was disabled
And you know funniest thing of it all? My hairloss is non-existent like wtf, I have brain fog, insomnia feel like 70 yo but I have a head full of hair, my existence is God’s comedy at this point.
Damon, you pointed that your hair was falling again? how’s that? I supposse the AR in the scalp is working again (DHT doing it’s things), however I have found severe cases also with complete hairloss stop so I am stumbled upon this
Got a B12 shot from the doctor because I’ve had many, many labs drawn (Lyme, STDs, autoimmune markers, Hormones, Iron, ferritin, copper, etc etc with nothing abnormal besides:)
low range copper, low range ferritin, low range B12, and low range vitamin D.
B12 shot has me feeling notably more numb and anhedonic, I feel zero emotion, apetite, libido, desire, etc. Nobody knows whats causing these issues. Chronic telogen effluvium hair shedding, all of the hairs have the white bulb attached, and it’s over the entire head.
I’m sorry to hear about what’s going on, Dknighten.
Feeling worse from the B12 shot could be due to them using methylcobalamine (which I believe is common in shots) instead of the inactive, unmethylated from of B12 cyanocobalamine. Others have had similar reactions to the methylated form.
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lol yeah i’ll check which one they used. My life is over regardless, my symptoms are so severe that I know my body and brain aren’t coming back from this. Too far gone man.
They used it as a methylation treatment. Together with S-Adenosylmethionin, called SAM or AdoMet.
And a normal butcher medical doctor reacts like:
“Oh hormon paneel lacking just give it an overdose” Total full honks. Like psychiatrists too. No matter what they are doing. Only stressing a destabilized system, going more worse.
With causal gene treatment a metamorphosis from the butcher in the slaughter house medical doctors and lobotomizing psychiatrists to a little bit more intelligent and empathic medical scientists will come.
To late for us, the medical mainstream fucked!
I payed 2700 € to a so called pfs recognizing doctor and at least he wanted to treat me with B 12 and B Complex Mega Infusions.
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I said this back in July and I will say it again:
Our condition is not currently treatable. People have been trying supplements, herbs and protocols for decades to no avail. Often times trying different things makes people much worse.
We have to accept that currently there isn’t a fix for this and move towards a scientific understanding and targeted treatment. It’s not what you want to hear but it’s the truth. The sooner we all accept this the sooner we get out of this.
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Agreed. We WILL figure this out but we can’t stay complacent. We must do everything in our power to get our lives back
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PFS.
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In my first crash the very first symptons to ease with time say 3-4 months were anhedonia, mental clarity (I was sleeping like a champ dunno) after that I was left in a bearable state of being, you know… even if no libido or penis bullshit who cares about that at this point, my muscles keep twitching and articulations crack here and there plus my skin was getting a mess due to lost of collagen but who even cares about that anymore. Being able to feel little emotions + mental clarity + sleep 7h(ish) oh man… it was heaven.
I’m at my second crash right now, zero everything, can’t even read a book, no mental clarity, I am totally dependant, sleep is gone, averaging 3-4h per night and God knows if my muscles and articulations are going to vanish from here… It’s a torture… I know friend.
We can only pray to return to bearable state of being let’s resist 4 months of this in hopes sleep or mental clarity come back
no improvement.
Has anyone had rapid hair thinning and hair loss from PFS/PSSD? It’s been over a year now, I can’t even brush my hair. Hairline has receded badly and constant itching with severe dandruff. All hairs that fall out have a white bulb on the end.
My digestion is completely ruined, and my stomach and thighs are swelling. Since taking the SSRI back in April 2022 i’ve developed the following:
I have constant brain fog, derealization,
Swelling in midsection, butt, and thighs despite zero appetite
joint pain in knees, wrists, ankles
anhedonia
constant, foul smelling gas after eating
moderate/severe bloating after eating any foods
foul smelling breath, gum recession, and sensitive teeth
numbness/tingling in hands and feet
burning sensations all over skin
dizziness when turning directions rapidly
Constant hair shedding, severe scalp dandruff
zero libido, erectile shrinkage, and loss of structural tissue at base of penis
poor muscular support when sitting, standing walking.
Does anyone have advice for the gut and immune issues?
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I know u cant turn back the clock but wtf did u take a ssri for, given your knowledge and understanding of this condition…
All of the symptoms u list have been with me since I fell into the same trap when I was trying to hold on to my career and marriage. I developed these sides overnight, while some were already working their way jnto me.
What has helped, intermittent fasting, omad, white potato only diet, carnivore, water enemas, colonics, ditching sugar and processed foods in every form.
I cycle all of the above as nothing sticks but I’d say things have improved slightly over time. I’ve even had brief returns of my physique which had basically disintegrated along with everything else.
Hope this helps a little
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