No particular reason for putting joekools in quotes. Successful was put in quotes because it worked for him, but is yet unproven for us. I can only hope and pray that after a dozen years of this hell that something is effective long term and works. If so, I have to do something incredible for Joe.
2 Likes
i’m confident i’ll improve our condition if we do it the right way
1 Like
There are many serious things to try besides the typical herbs.
SERMS like HCG, clomid, nolvadex are serious treatments. Just like proviron (which is not a serm btw). Maybe some need multiple cycles to recover too btw.
But these treatments are very legit and used all over the world for men with hormonal problems by endos.
1 Like
Serms give you a short term recovery but the effect will wear off once you drop out of the meds , we’re looking for something more long term , HCG ticks the boxes
1 Like
HCG does what a SERM does though. Although it’s much more than that. It mimics LH and works in a different way. Both are used for PCT and for resetting the HPTA.
The mechanism is different even though they both raise the body’s own test production
1 Like
A serm like clomid just jumps earlier in the HPTA cycle.
But “the effect will wear of once you drop the meds” is false and the same can be said for HCG. For some one PCT cycle of clomid and/ord HCG is enough to reset their system, others need more cycles.
Also thinking about a proviron + clomid cycle. (clomid raises SHBG, proviron lowers it) could help but this is just my conjecture.
3 Likes
I’ve also wondered if Proviron could be taken with a SERM like clomid in order to lower the SHBG. Or would the two drugs be working against each other at the HPTA? My guess is it’s going to depend on the individual and the doses.
1 Like
What’s also very interesting is how closely related different types of disorders are:
- Hypogonadism
- PFS
- Post accutane syndrome
- Post SSRI syndrome
- People who crashed because of AI’s like arimidex
Almost everyone has similar problems; Low/no libido, ed, brainfog, anhedonia,…
All are connected because they fcked up their endocrine system in some way.
Now what I’m trying to get at, a lot of people with these various but similar conditions have recovered thanks to SERMS, HCG and proviron.
We already know some pfs and hypogandism victims were cured with these treatments.
But not long ago a guy with post SSRI syndrome recovered from multipe clomid/nolvadex cycles. (check the pssd forum)
Not saying this is a cure for everyone, but it’s remarkable these things even helped one with post SSRI…
2 Likes
If you Google joekools and pfs, you may come across a thread with Joe and I, where Joe goes into some detail, beyond my level of understanding that I invite you all to look at and comment. I could copy and paste it, if the admins don’t mind. Joekool seems very credible, and as others have said, he has a history on the other forum. The fact he got back to my questions in just a couple of hours, with additional detail, gives me hope, and just what I needed after a very very very disappointing and almost heartbreaking day with an endocrinologist.
I don’t down what the downside is of such little hCG could be, and afraid to say that it can’t be worse than the hell i’m in, but I’m going to give it a try. If others have knowledge or experience regarding any hCG side effects, please let me know, otherwise my mission is to find a doctor in or anywhere near New York that will prescribe and administer it to me, hopefully legally.
2 Likes
In my first attempt with a urologist (with whom I’ve seen repeatedly) to get hCG, I was rebuffed and told to try 4 weeks of 1000mg natural Vitamin E and Yohimbine and come back for another evaluation.
I think if I told an MD that I’m taking those to fix PFS, I’d get laughed at. Still seeking hCG sources, so please send all suggestions.
You can try this endo. He’s aslo familiar with pfs and even made a video about it on youtube, he does teleconsultations if he’s too far away from you. I don’t know where in America he is located though.
edit; seems he has an office in Connecticut, don’t know if that’s far from NY though, I’m not american.
1 Like
You should seek an endocrinologist ,an urologist will never touch your homones
1 Like
Thank you for that advice. I did see another new endo yesterday, and on another thread, I mentioned her diagnosis, that’ she made within 3 minutes of seeing me and my labs. She suggested PFS was really “performance anxiety’ and wanted to put me on antidepressants. I didn’t bother telling her that because of PFS, when I take a cialis, I can almost always wear out a woman without feeling a single thing at all.
I have a follow up with another Endo tomorrow, to discuss labs that came back. I didn’t tell him about PFS or that I took finasteride, to let him come to his own conclusions.
And actually, before that appointment, I am seeing another doctor at his “bioage’ clinic. He provides hormone treatment and it also seems like he routinely administrators hCG for a weight loss treatment. The dosage is about the same as what JoeKools was taking, so I’m going to ask for the same.
The only positive thing that has come out of this COVID situation is Doctors are back at work with less patients and appointments are much easier to get, so I’m seeing as many as I can and hoping sometimes comes of it.
3 Likes
Don’t remember the dose but I remember just taking it a month
It’s been almost 15 years of side effects for me if it doesn’t go away in a year I think you’re stuck with it unless you use medication. Does anyone have an opinion on a protocol graph, what has worked for people and how many people it’s worked for
1 Like
It’s worked on one person (JoeKools) who injected 250 iu intramuscularly on Monday/Wednesday/Friday for 6 months. There are several other hCG reports on this forums and others of some temporary success with some who tried it. Every other story was a higher dosage and much less duration. A google search of doctors administering hCG for sexual function showed several that use it, but had nondetail as to dosage or frequency.
They are some scientific papers showing ED success without raising testosterone. These papers go back many years.
Along with the hCG, JoeKools listed taking:
Vitamin D3 and Vitamin A with a fatty meal daily.
Magnesium Taurate and Glycine before bed
And he specifically said to not add any other supplements or anything else.
I’m reaching to to him to see what specific brand of hCG he used, just in case it makes a difference, and it may because quick research shows some is derived from natural sources (don’t ask) and another is made in a lab.
I’m seeing a doctor or 2 a day until I find someone willing to administer hCG to me, even if I have to tell them it’s for weight loss, which seems to be the same dosage (at 250 iu) and also 3 days a week.
My advice would be to just tell the truth and be honest about your situation and the things you have tried leading to your position now,
Allot of doctors especially urologist and endos are aware of PFS chances are you will find a sympathetic one who will help you. I think you will have more luck sticking with that rather than making up stories. Without PFS they will probably think your sexual dysfunction is idiopathic (sexual dysfunction is very common in middle age) and therefore there is even less reason to provide you with hormonal treatment and even less chance to provide more treatment in the future. Find a doc who will work with you transparently.
1 Like
I’m sure Goldstein will write you a prescription
1 Like
Yeh agree don’t put yourself through the pain of seeing a million quacks with no guarantee of a desired outcome