中国23岁非那雄胺受害者. I need help!

[TigerK]

Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.

Where are you from (country)?
China

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
zhihu, https://zhuanlan.zhihu.com/p/392800732

What is your current age, height, weight?
current age: 23
height: 183cm
weight: 70kg（now I’m becoming thinner）

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?
1mg finasteride for hair loss

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
1 mg/day

What condition was being treated with the drug?
hair loss(m + o)

For how long did you take the drug (weeks/months/years)?
A little over a month
(2021.07.06-2021.07.07) After taking two finasteride, the side effects stopped obviously for one week
(I really want to scold my doctor here. If she tells me about the persistent side effects after stopping the drug, I will not take it again)
(2021.07.14-2021.08.14) After that, I insisted on taking 32 finasteride, and finally I couldn’t stand the side effects and chose to stop taking it.

How old were you, and WHEN (date) did you start the drug?
23

How old were you when you quit, and WHEN (date) did you quit?
23

How did you quit (cold turkey or taper off)?
cold turkey

How long into your usage did you notice the onset of side effects?
first finasteride

What side effects did you experience that have yet to resolve since discontinuation?

1. Depression
2. sexual dysfunction
3. early awakening
4. My stomach is OK at present, but I can eat very much and become hungry easily
5. My tinnitus and numbness and chills in my small arms seriously affect my study

Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual

[√] Loss of Libido / Sex Drive
[√] Erectile Dysfunction
[√] Complete Impotence
[ ] Loss of Morning Erections
[√] Loss of Spontaneous Erections
[√] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[√] Reduced Ejaculate
[ ] Inability or Difficulty to Ejaculate / Orgasm
[√ ] Reduced Sperm Count / Motility

Mental
[√] Emotional Blunting / Emotionally Flat
[√] Difficulty Focusing / Concentrating
[√] Confusion
[√] Memory Loss / Forgetfulness
[√] Stumbling over Words / Losing Train of Thought
[√] Slurring of Speech
[√] Lack of Motivation / Feeling Passive / Complacency
[√] Extreme Anxiety / Panic Attacks
[ ] Severe Depression / Melancholy
[√] Suicidal Thoughts

Physical
[√] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[] Penis curvature / rotation on axis
[ ] Testicular Pain
[√] Testicular Shrinkage / Loss of Fullness
[√] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[√] Muscle Wastage
[√] Muscle Weakness
[ ] Joint Pain
[√] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[√ ] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[√] Vision - Acuity Decrease / Blurriness
[√] Tinnitus (ringing or high pitched sound in ears)
[ ] Hearing loss
[√] Increased hair loss
[ ] Frequent urination
[√ ] Lowered body temperature

[ ] Other (please explain)

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
Nothing, just waiting, I don’t know what to do, please help me please!!!

If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?
I will add that later

Anything not listed in the above questions you’d like to share about your experience?

Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.
After three months of withdrawal, my condition has been improving, and I completely returned to normal after 77 and 78 days of withdrawal.
However, after 84 days of withdrawal, I began to feel serious side effects.
At 87 days, my penis lost connection, I couldn’t erect, I was cold and afraid of cold, my hands trembled slightly, my hands, feet, legs and small arms felt slightly numb, my tinnitus was mild, I couldn’t concentrate, and I had suicidal thoughts. It deteriorated again after 90 days of withdrawal.
Up to now (after 93 days of drug withdrawal), I still have side effects: difficulty in erection, low sexual desire, no confidence in sexual life, early awakening, tinnitus, numbness and chills in arm muscles, and tired brain, especially tinnitus, muscle and brain fatigue, which affect my study very much

[Exsexgod]

Prologue

You stopped in August, you have past the first three months, but for the most users here many symptoms become better with time.

My doctor told me nothing of the side effects, gave me a pharma muster package just to try, although I denied before, because of sexual activity. If there was not the salesman before, he never give me the pills against benign prostatic hyperplasia at the age of 59. Normally Finasterid 5 mg it’s taken as last Resort from 65 ± old men.

So like you I started the pills and from the first day I realized a thinner dick, when erect and watery semen. Instead of being shocked and breaking up, I went on for absolutely creazy two months. Even when my dick get injured and becomes very small in flavid state and brainfog began I didn’t realize what was going on.

First in the moment I had sexual intercourse again I suddenly was shocked and paralysed and checked the internet the whole night long.

What the hake I have done to me!? With open eyes into the disaster. I should had break up after some days. Many I have had a chance of getting back to normal. But there was a kind of hypersexuality with the smaller dick, that I didn’t recognize what was going on.

Imidiatly I heard about PFS. Internet was full of warnings about permanent side effects and persisting ED from Finasteride.

Like you my doctor told me absolutely nothing about the drug and gave it to me like vitamins or candy.

So we both have a similar story of ignoring the side effects. The package leaflet of Finasterid 5 mg says absolute nothing about long lasting ED and other sideeffekts. The only advice was ED can persist after quitting the treatment. But for who long!? I thought to weeks. Never thought of long lasting or livelong effects.

So doctors have to inform their patients about the long lasting side effect s of this dangerous poison. I can’t visit my doctor, because he died on COVID.

I’m very very sad, that you like all the other young guys are confronted with the shit in such young years.

I try to warn young potentielle Fin user in hairloss forums, but I was first mobbed there by a crowd and than suspended by the admins.

[baitongWu]

You’re back. The tiger is my good friend. I thought he was all right，He is now in great confusion.

[ShockJock]

It’s scary how it starts, he recovers, then goes back. How do you know when that’s happening? What are the warning signs?

[baitongWu]

we all Chinese，recently，Just like at the beginning, first the Dick doesn’t work, and then everything comes. He’s terrible now. He’s a good man
It’s all shit. The three people I know recently who have side effects have completely recovered after 2-3 months, and then crashed

[Jodido]

Please need help and información. Check

Mental sides only

Hello, I would like to know your opinion of the mental issues and especially of the anhedonia. I have been 6 months without fines and I only have mild depression, mild anxiety, severe anhedonia and moderate insomnia. I have read that the mental effects usually improve in a few years but then looking at anhedonia cases I hardly see improvements while with depression and anxiety I do. so anhedonia tends to improve normally like the rest of mental issues or not I took inasteride 2 months and fin…

[TigerK]

I tried sildenafil. 100mg sildenafil can make me have sex like normal people, but I am worried that using too much sildenafil will make me develop drug resistance. I am more concerned about sexual function. Other problems I can overcome by my own willpower

[TigerK]

What should I do ???

[Cbrandel]

If you can have sex with viagra I would use it. Start with 100mg and after a while you can take less.

Having sex with a women might help to “rewire” you’re brain into liking sex again. I see many recoveries where having regular sex was in the picture.

[TigerK]

I’m using pregabalin and zopiclone. Has anyone ever used these two drugs

[TigerK]

I stop all of medicines, pregabalin zopiclone and sildenafil. Just take you time

[TigerK]

But i’m still suffering from sexual dysfunction, tinnitus, Lumbar 1 sacral 1 disc herniated, temporomandibular disorders(tmd), hypertension

[TigerK]

Tonight, I stopped using traditional Chinese medicine for three days, and I feel restless all over, but this kind of power is different from the feeling brought by DHT. I don’t know how to describe my feeling, and I plan to vent my restless on push-ups to break through my limits. Later I will drink the Chinese medicine I still have, and then I will not continue to drink Chinese medicine

[TigerK]

I donated 40 euros to PFS through a friend in Germany. I am still a student, so I don’t have much source of income. If translated into RMB, it is 300 yuan, which is enough for a color ultrasound of hormones or testicles checking. However, I think that real PFS may be difficult to cure, and promoting scientific research in this area is the key to make Pfser more aware of what is really happening. Perhaps research cannot provide a real cure, and we can only improve or even cure PFS through lifestyle changes, such as diet and exercise. But it is just another flame of hope in an endless darkness.

Best wishes
Tiger

[TigerK]

In addition, I want to update my current situation. My first crash was almost three months after I stopped taking finasteride. It lasted about a week, and I was faced with panic attacks, the feeling of my brain stripping away from the world, shivering, chills, numbness in my hands and feet, tinnitus, sexual dysfunction and atrophied testicles. Within 3-6 months of drug withdrawal, I don’t have panic attacks anymore, But I still face sleep problems, sexual dysfunction, testicular atrophy, tinnitus, decreased muscle strength, joints bouncing and many other problems (which is too bad, He made me feel that I was one of the most serious patients in this forum.) Of course, during this period, I tried drugs such as pregabalin, sildenafil, and only half sertraline and zopiclone once, which didn’t have much effect. Fortunately, it didn’t hurt me, so I stopped them. The change of things happened when I went to Chinese traditional medicine, I drank Chinese herbal medicine, and I did have some improvement. After a period of time, I could really get an erection of 5-60%, sometimes even 8-90% or 100% (rarely, I need to combine tadalafil). But I stopped using Chinese medicine and tadalafil later, and I didn’t feel so good, but I can accept it. It’s six months since I stopped using finasteride, and it seems that I have a second crash. But this crash is not as strong as last time. I have a slight bad mood and cry easily. What is important is that my penis and testicles don’t feel so good. I think this may be related to my stopping Chinese medicine or my masturbation, because I started to feel bad after an ejaculation two days ago. Oh yes, because I’m on a gluten-free diet now, my stool and digestion are relatively good.

[TigerK]

I think I need to follow a strict herbal protocol, raise the baseline of my body to a certain extent so that I can stick to anaerobic exercise and complete my studies, and at the same time, I will stick to a gluten-free diet and strictly abstain from sex through nofap. It seems that my crash is a three-month cycle. Let’s see what will happen after three month. In this three months, I will not check the forum. I communicate with lots of people who suffer from pfs in China, they are all warriors. Forgive me for my poor oral English.

I hope everyone will recover from this terrible nightmare

Tiger

[TigerK]

Many thanks to my friend @baitongWu , I am a novice of the forum who has just realised the most important things in the fight with pfs.

[TigerK]

Hello everyone, I would like to publish my results here. I didn’t stick to traditional Chinese medicine in the next because it made me feel sick and, yes, I vomited. So I decided that I would not continue to try traditional Chinese medicine until I found a very reliable doctor. I haven’t made any significant progress at this stage. I’ve tried a 4 day water fasting followed by a 2-day juice fasting, but unfortunately I don’t think it’s going to help me fully recover. However, my mental state and tinnitus did fluctuate during the fasting process, and I experienced a very slight tinnitus moment.

After that I think I’ll probably try the 16/8 fasting six days in a week, and the 24-hour water fasting once a week, and I’m doing my own exploration in supplements.

I will take fish oil, b complex vitamins, vitamin D/K2, 1mg vitamin C/day, calcium, magnesium and zinc.I’ll have my blood tested soon.

any suggestions?

yours
tiger

[TigerK]

大家好，我还是想继续在这个论坛上写一些东西来记录我的pfs生活，我就直接用中文吧，把这玩意当成我的日记吧。很可惜我对补充剂的反应并不是太好，我吃了两天鱼油、维生素D/K2、1mg维生素C，这又导致了我崩溃,我猜测大概率是维生素D导致我反应不太好，又回到了之前的基线。我的生活很沮丧，我有抑郁焦虑失眠问题，同时我也有很多性方面的问题。不过我现在学会如何客观理性的去看待自己的崩溃了，而且最重要的是，我在失去了我的性欲后，我发现我对这个社会和规则以及人性看的更加的通透，我也能更加理性的去处理自己的工作而不是在崩溃发生后感到恐惧和无助。我还需要为自己未来的工作去努力，我更倾向于找一个收入体面同时又轻松的工作，然而在中国，这是不可能实现的。我只能以最简单的方式。
现在，把我最主要的问题列在下面：
1.耳鸣
2.睡眠：我入睡还行，但是我可能会早醒，差的时候我甚至一天只能睡3-4个小时，奇怪的是有一段时间我会嗜睡。其实我现在觉得嗜睡可能比早醒更幸福
3.血压不稳定，这个其实可以基本忽略了
4.睾丸萎缩
5.性欲低下
6.阳痿
我目前的解决方法：
啥也不去做，啥也不吃。先调整好自我，因为我有好的时候也有坏的时候，其实现在看大部分好的时候发生在什么也不吃的时候。我觉得我应该先这样尝试一段时间，如果能稳定住自己才是最好的。
其实我现在不知道怎么去解决这些问题，希望能得到大家的建议和看法。

老虎

[TigerK]

嗨，兄弟们，我注射了hcg250iu×3
哦，该死，我tm真是一个勇士
周一第一针感觉还不错
周三第二针有点不对劲了
周五第三针又tm变差了
不过我很快恢复过来了，这次恢复的比以往快
不过可惜这种恢复只是恢复到用药前的某一种pfs基线
像上次维生素d/k2使得我变差了大概，一周？还是两周
然后我今天上了高强度篮球对抗，好吧，其实并不算高强度，虽然我打的还挺开心，然后你猜怎么着，哦，该死，我今晚耳鸣又大了，又不困了，好吧，那就愉快的玩一晚lol手游吧，选上我最喜欢的男枪和一个adc霞

这是我打球时候的风景，它很美对吗，人生就是在逆境中前行的，这是属于我们pfser的战斗

哦，对了，我还带了帅气的短款假发
hcg250iu×3使得我变差，但是不得不说，第一次打了hcg后，我确实感觉自己变好了，充满了力量，勃起也不错，这是我现在的背

我现在觉得浪费时间在无聊的抱怨上是没有意义的
要么推动科学研究进展要么在自己接受范围内尽可能尝试可以尝试的药物
我接下来的计划：我去他妈比的pfs，我的计划就是先去他妈比的，然后我打算在去他妈逼的pfs
最后，我打算
1·我吃的益生菌对我的肠胃特别好，当然益生菌也挺贵，我愿意负担，因为我可以基本不去考虑拉肚子的问题了，也许会换什么更好点的，有利于情绪或者啥的，whatever
2.我想尝试单独的维生素d，不加k2，我了解到维生素d/k2都可以调节雌雄激素比例，具体点说，好像都是降低e2，但是剂量会非常低
3·我打算一周一针，一针250iu 该死的hanru_sun可能又要嘲讽我才这点剂量，你肯定心理作用。但是我想说，要不然去协和用药，要不然自己尝试，不是人人有hanru_sun那样的家境可以支持去那样搞
而且hcg虽然能模拟lh刺激睾酮分泌，但是多余的睾酮也会在芳香酶的作用下转换为雌二醇，我本来雌二醇就范围内高值了，所以一周一次hcg是一个可以尝试的点

根据我的尝试，可以看出
不管是升高e2还是降低e2，我的身体反应都比较差。其实打球或者抗阻运动也会刺激睾酮分泌，进而抬高e2。当然这只是我的个人观点
啊，我坚决拒绝ai