@Demon dont give up yet, you might be just oscilating. in few months you might have a higher baseline. just hang in there!!! come on you gotta be tough. i know it sucks but just do it
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Did zadig ever try trt? I Know this may be a pointless question
This is extremely disheartening to hear, as a 21 year old myself, I and all of us with this condition know very well what itâs like to experience the darkest days, feeling extremely hopeless at times.
Zadig777 was a warrior, he fought this condition with everything he got trying everything he possibly could and my heart goes out to him, although I donât know the circumstances, all I can say is I hope losses like this can be prevented from now on.
No matter how bad things are please talk to someone, call them if you have to, call a helpline in your area or abroad such as âThe Samaritansâ open 24/7 for free https://www.samaritans.org/ireland/how-we-can-help/contact-samaritan/#tab1, someone you know in person or even on this forum, if your feeling near breaking point, please hold on and reach out to anyone you can think of, your life is extremely valuable and I almost guarantee what youâre feeling at that very moment, you wonât feel for your whole life and you will be happy again, just hang in there 
I hope for Zadig777 and for all the others whoâve lost their lives due to this evil condition, we find a treatment or better a cure, sooner rather than later for current and future sufferers, not one more person should have to lose their life and I certainly hope Zadig rests in peace, he was a brave young man.
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This is our species. Denial is the universal balm for guilty conscience. Not that conscience is particularly strong. Denial mostly serves the external purpose of saving face. Inside, people donât really care if a million people will die as long as they will profit. I wish I could blame Merck, or pharma, or doctors but no⌠it is our species to blame. Sad but true. This is why I am not a great optimist for the future of mankind. As far as I am concerned, Artificial Intelligence canât destroy us fast enough.
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I donât think we can blame Zadig for trying to find a cure for his devastating condition. He was desperate and was willing to try anything. His tragedy didnât come as a result of his attempted treatments, although they might have been aggravated it, but from PSSD, for which he had no fault whatsoever.
As for capitalism, it is an important topic but I wouldnât want to discuss it on this thread. I do have an opinion and I donât think evil in this world is capitalismâs fault, unfortunately. I think it is human natureâs fault, which of course is far worse.
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I donât blame him at all. The fault squarely lies with Merck 100%. Capitalism provides a faceless, blameless, yet coercive institution that rewards inflicting human suffering with material wealth. Like an other worldly being that has parasitically attached itself to humanity from the future, driving it to extinction from outside in. But Iâll just leave it at that.
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Rest in Peace Zadig777.
Depression is one of the worst aspects of this condition. If you feel alone in your own mind and donât talk to someone you can convince yourself to take your own life. Itâs best to share those thoughts with someone you know as what might seem normal to you might seem concerning to someone else. Without someone to tell you that doesnât sound right you continue on that path thinking your thoughts are right. Depression can trap you inside your own mind like a bully, it can hold you there and make you feel like your life is worth giving up. Itâs a awful condition and suicide can seem like a relief from the suffering of your own thoughts. We really need a pinned post about depression explaining our theories, experiences and coping mechanisms so guys like this can better understand this condition and recognize it within themselves. One of the hardest things is to break free and get help.
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I love capitalism. Problem is government. Merck fucked up, but who can really blame them if after 7 years of study funding and vast sums of money wasted on self experimentation we still have no earthly clue what PFS is. To blame capitalism when complex Medicine goes wrong is childish and idiotic.
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The same can be said for using capitalism as a convenient scapegoat when medicine goes wrong. I think the âupholding ethical obligation to stakeholders to make as much money as possibleâ was used as a defence in the Vioxx fiasco. That, and lots of finger pointing within the company.
Itâs not capitalism or government, but people who do unethical things.
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The mass media + official studies + big money should be involved into this, otherwise there will be no attention on a global level. I wonder if its possible to start a fundraising company towards raising the awareness of devastating consequences.
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An be careful Merck might be reading this forum.
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Thatâs what the PFS Foundation is trying to do. Thatâs what we here in this forum are trying to do. Unfortunately, it is not easy and thatâs why we need everyoneâs help.
There are several ways everyone can help:
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Report your side effects to the authorities. This is an easy way to create awareness in the medical community and has lead to far more severe warnings on leaflets and handouts to medical professionals. With the current Information with regard to side effects on Propecia leaflets, there is no way I would have taken this poison. Too bad, these warnings werenât there 15 years ago. See here for more Information on how to report your side effects: https://www.pfsfoundation.org/report-side-effects/
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Complete the survey. For the first time ever, we will systematically generate data with regard to the numerous side effects of this condition and their Impact on quality of life. It will likely also show the unsurprising similarity in symptoms between PFS, PSSD, PAS etc. that have so far been considered as separate conditions, but are likely based in similar if not identical mechanisms. The survey will hopefully create awareness and leads for publications and research. And it only costs abount an hour of everyoneâs time to complete it. See here for more details: Post-Drug Syndrome Survey FAQ. Survey NOW LIVE - Please Participate
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Provide 23andme data. This is a DNA test. We hope to compile as many samples as possible of DNA from PFS, PSSD, PAS etc. patients. This may generate leads with regard to our genetic predisposition that makes us suspectible to suffer from persistent side effects after the use of these meds. This would be of high scientific interest. It costs only about a 100 bucks to order the test. See here for more Information: Important Announcement: Two Community-Led Research Projects - Please Participate
There are three things everyone can easily help with. They cost comparatively little time and money, but may generate more awareness and generate scientific leads. The latter two points may help to establish that PFS, PSSD, PAS etc. are all the same Thing which would be huge and make our problem much more relevant and thus may provide much more interest from the scientific community and attract more funds.
I also want to use the opportunity to express my condolences to Zadigâs family. Itâs a shame that another young life was wasted and another family is mourning. It was clear from his posts that he was desperate, yet I was hoping that his suicide threats were just another part of his rather brash harsh way to express himself. It wasnât. He was serious.
It is in all our duty to do our best to stop the suicides and stop the suffering. Letâs do all we can do to advance research in and awareness of this condition, so that one day these suicides stop and we leave this mess behind us!
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I remember watching the entire documentary about accutane consequences, was called dying for clear skin and aired on BBC. Maybe in the future someone will do similar documentary with more evidence. Although documentary alone was not enough , accutane is still on the shelves.
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No wonder some docs donât believe us if some people here are that deluded to blame capitalism for worldâs diseases
Please, letâs not turn this into an ideology debate.
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Really feeling down about this, I talked to him loads, not for a couple of months. I tried to help him but nothing seemed to work.
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Does anyone just feel like they need a hug sometimes
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Itâs great that youâve said that @irishguy754.
I think it would be extremely valuable if people said if they wanted to talk to someone and also if people would say they would be happy to talk to someone who needed some help.
A buddy system would be great.
I also think it would be great if people could arrange to meet up.
I know when I met up with someone from here it was a great experience for me.
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Exact, bravo! This is a post to remind Zadig, our friend, and NOT to talk about capitalism or liberal democracy and Bolshevism. Things that make me vomit.
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Iâve only been on the forum a few months and find it very useful. Iâm crushed by the many symptoms and have lost everything my wife and job included. I message some outside of the forum which again helps me greatly. A buddy system or personal is a very good suggestion, thanks Greek.
I live in the north east of England if anyone wants to get in touch. Most of the people around me have either fled or donât want to talk about it which bring the isolation. Iâm sure lots of you can relate.Reading about Zag is very upsetting, the poor lad should have had his life ahead of him, canât describe or give him fitting words. Iâm 52 and have to be greatful that this torture didnât hit me at such a young age. May he be at rest
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