I myself have spend thousands of dollars on treatments, not bringing me anything. What if I had donated the money? Well, then I still had to wait for 10 plus years. People think egoistical, including me. Your argument is right about maybe more research had already been done if people before us didn’t think like this. Yet, they did think like this. Making me end up in the situation I now have two choices. Spending money on myself with an extremely small chance of finding something. Or spending money on research where i have zero chance of surviving long enough to see the day something comes out of that. An extremely small chance is still bigger than zero, so I go for the extremely small chance. Man, I might still donate to the foundation just because I care about the cause, but it isn’t going to bring me anything personally. You can call this short sighted, but to me, this is survival. I want to try everything to maybe, just maybe, get lucky, and survive this shit. And research has zero chance to do that in the next years. Sorry, but I choose egoistical ,because this is about life and death for me.
Also, you are talking about forgetting about PFS, absorb myself in a project, and forgetting about what I can’t have. Listen, the situation I am in right now, there is no forgetting here. As I said, I am bedbound. Can’t do anything. How can I do all this you talk of? My condition debilitates me in all normal activities, there is no forgetting here. Sexual symptoms, yeah, you can work around that. But this is a totally different problem. This is the whole reason I say, I can’t do this for periods like 10 years. I am not trying to get pity here, but people should understand this condition can become extremely unliveable.