What's the point?

General Discussion
#52

No no it must be the gut and that tomato you ate for breakfast. Are you on a specific diet like broccoli or eggs with bacon or something? You should try the latest tips on this forum which include eating clean and avoiding 5aris in your drinking water, and monitoring the form and smell of your sh*** every day while doing some pelvic floor muscle excersises.

Im sorry for joking but the damage that some ppl do through suggesting and being convinced of such stuff is literally unbearable. What would a scientist think, if he was trying to look into our problem and started reading about eating potatoes makes the symptoms better or worse…Im really sorry, but im very annoyed, and if my comment is bad, please delete it mods, sorry again.

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#54

Please do the survey brother. It will help a lot to fight this condition. Those mf pig pharmas and scientists need our data. We need to contribute to this.

#55

@jrums01 @silentpain89 I had a brain heamoraghe in 2008 and actually suffered brain damage so I know the symptoms first hand. I can tell you that for some this is real and brain damage can occur… Doctors were confounded that I continued to deteriorate after the bleed but this was down to PFS

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#56

No you can’t.

#57

@orthogs I should have said a later brain scan hashown further damage. Then look at Robin Williams, the neurons in his brain were destroyed.

#58

I’m not doubting your claim that your brain sustained further damage. But to attribute it to PFS is unfounded.

#59

Well the neuroscience department stated it wasn’t down to the original bleed.whichvwas as the consequence of a fall. Even after the recovery I was still very smart and was extremely fit. Laws of probability put it at the door of pfs.

#60

I see hCG on your list. How much of it did you administer it, and how often? I’m on it for over 2 months now, at 250iu injected 3 times a week, and I’m feeling emotionally better, with less hopelessness. There are some other improvements, but I’m happy with the emotional parts and continuing to use it.

Can you share your experience with it? Would you consider using it again?

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#61

How long did u stay on stuff like NSI-189?

#62

How you survived so long? For me it’s only the hope of healing or relief that I did.
I will try a few more medications, see a urologist and andrologist, wait for the Baylor trial (if it should come out in November) and then is the journey of experiments and waiting over. 3 years are a good deadline, and with that I fought longer than three other young men with whom I wrote, who also were destroyed by Trazodone and now are dead. At some point everyone realise that the body will not recover (unless a proverbial miracle cure comes along in next decades) and must ask himself if he want to exist like that or not. Some can accpet it, some not. But why continuine to suffer?

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#63

I feel the same exact way. I’m down to the last months here I think. Have a relatively peaceful method ready to go. Just can’t keep fighting in such a severe state. Nothing has gotten better in 2.5 years. Everyone has a limit of how much they can take.

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#64

Not to let those that depend on you down…

#65

Hey man. Like I said after Accutane I wasn’t totally destroyed, I could manage life. I just knew it was seriously something wrong with me. I didn’t connect the dots until I got PSSD five years ago. And since then I’ve been living with almost daily suicidal ideation. Tried to killed myself twice, got admitted to mental hospital five times. In the meantime got in debt and spend around 20 thousand dollars on almost every “cure” that could work. So for a long time I just lived with hope that maybe next hormone or peptide or supplement will miraculously cure me. But it didn’t happen and now I know that I will never have a normal live. Why am I alive? Liek I said it takes massive balls to take your own life and I’m just too much of a coward to do it properly. As I stopped believing in God, I guess this life is the only one I will ever have and I’m trying to hold on to it, taking it day by day. It’s a torture, but I’m telling myself that as long as I stay alive, I still have a chance. After you die, you’re just a food for worms.

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#66

Longest streak was around 6 months, but I had a feeling that it stopped working after that and I couldn’t afford it anyway.

#67

I took around 250iu 3xweek for around 3 months. I didn’t feel anything on it. Positive or negative. And it was legit stuff from pharmacy. If I had money I would go for full PCT with hcg, clomid and tamoxifen for at least couple of months. I guess it’s worth a shot.

#68

Unless you get cremated :stuck_out_tongue:
No seriously, I have respect for those who fight and this is part of life. But for how long?
There is this saying: “Even a good warrior knows when a battle is lost.”

#69

That’s a good point my man :wink: I don’t know how long but I have a feeling that not much longer. I have had it with this motherfucking snakes on this motherfucking plane.

#70

I’m in the exakt same situation. Every single word you say describes how I feel, too. I am 35 now and have PSSD for 11 years.

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#71

All we have to do is start advocating for ourselves as a group, start drawing attention to our condition, give scientists the data they need to study us, and get research started. The tragedy is that we haven’t started to do any of those things. Once we do we’ll get a cure.

For example, instead of sitting here crying for the last two years, we could have sought out other survey responders and obtained two or three times as much data for the scientists to work with. Until they get that data, no cure.

#72

The harsh reality is that probably there will never be official “cure” for this conditions caused by psych meds, iso and fin. It’s a billion dollar market and companies will never admit that this drugs cause permanent damage because it will mean huge decrase in sales. Secondly, how many people you think are damaged like us? 100 000, 500 000, 1 000 000? Even if it’s one million no company would ever market the drug that targets such a small group because it’s simply not profitable. Just a cost of developing the drug and clinical trials would much exceed profits from the sales. Face it guys, we are fucked :wink:

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