This forum seems to be dying. I think I know why. For some reason, the moderators have created a waiting period between when a (new) user writes a post, and when it is posted. The problem with that is that many people lurk on this website. Then when they reach a breaking point and post, they find that their post doesn’t show up. That’s discouraging, and against the idea of what this place should be.
Same general place. Anhedonia is the toughest part. Being in a relationship and having no sex drive is rough as well. But I’m mellowing out mentally. I don’t get the spikes of anxiety nearly as often. Mornings are usually the worst. I also have a dull prostate ache on the left side that comes and goes. I suspect I have chronic prostate inflammation. I may do chronic pelvic pain massage / treatment in the next six months if I don’t improve before then. The auto-immune theory makes sense. I think we have inflammation in our prostates and guts. Probiotics and enzymes have helped my stomach inflammation, but I wonder if the root cause is the stomach, and if I need to go directly to that. That could be why squats seem to help.
Going to try low dose clomid along with cialis / weights / diet / supplements, and see if anything changes. Clomid seems to be the safest next step. I can’t see using armidex, as it just does not appear to be safe.
I’m amazed that in 2017 I’m still running into doctors and urologists who have never heard of PFS. Seems incredible that they are unaware of 6 years of studies / papers. Especially the urologists. It is such a narrow field, yet they are arrogant and ignorant. There are significant problems with how America trains its doctors.
Some body-building sources say coffee and/or caffeine boosts DHT and other sources say coffee and/or caffeine inhibits DHT. A decade ago I remember seeing an expensive ($200 or so) German topical cream for male hair-loss made from coffee beans, the caffeine boosted blood supply to that region and blocked DHT or so it claimed. I think adrenal fatigue is a big part of PFS so I stick strictly to decaf and use lactose free milk or whatever they have at the cafe like almond or coconut, not soy obviously. Anything above about 30mg of caffeine gives me the jitters, I can’t handle it like I used to before PFS. I didn’t notice a difference in ball ache when I abstained from it for several months nor when I drank 2-3 cups a day. Most if not all teas are also dht-inhibitors, you’re better off drinking steamed milk or soup. Although some of them do release feel-good chemicals so it makes more sense to drink tea than coffee which only yellows your teeth.
Hey Paul,
How did the low dose of clomid work for you?
Dr. Crisler is recommending the same thing for me. I would like to know how it made you feel. Especially in the sexual department in terms of erection quality, libido, ejaculate volume, sensitivity, etc.
Thanks man
9/26/19 Update: I am doing worse. I have been having constant lower back aches for a few months. I’ve had a bunch of blood tests and they show that I have elevated calcium. My doctor thinks I might have kidney stones or a parathyroid problem. I am hoping it is just kidney stones because if I have a parathyroid issue that is probably going to require a surgery. My kidney function is fine, so that is good.
I also had a bone density scan, which showed that I have osteoporosis. I’m a 33 years old man, so that’s unusual. Not great. I think it is likely related to hormonal changes caused by finasteride. I’ve been off Propecia since I was 26. Nobody else in my family has osteoporosis, with the exception of my 91 year old grandmother.
I was completely healthy before finasteride. This is beyond frustrating, and I am about ready to start beating the shit of dermatologists who prescribe Propecia and continue to claim it is safe. It is absolutely not safe.
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Hey Paul,
Thank you for your update! I am sorry to read that you are doing worse.
You are absolutely right, Propecia is not safe and it’s a travesty that this far from widely accepted within the medical and scientific community. A product for a cosmetic problem that can have such life altering and persistent side effects should not be on the market.
The staff of this forum are working hard to create more awareness of this condition and to initiate more research into the underlying molecular cause. You can make a difference by supporting our projects as outlined in this post:
If you have any question, please let us know!
Good luck and keep us posted!
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Hi,
Sorry to hear you are doing bad!
Vitamin D3 raises the Calcium levels. Did you take Vitamin D3 constantly?
Yes. I was taking D3. 5,000 and sometimes 10,000 a day but the doctors think I am not absorbing it properly. My D levels are low: 21.9 ng/mL (normal range according to my doc is 30-100).
I have been off finasteride since 2013.
So your D levels are out of range even after supplementing it?
That’s correct. My body is not absorbing Vitamin D somehow. I have stopped taking D now because I don’t want to further raise my calcium levels. The calcium makes sense when you consider the osteoporosis. I am peeing out calcium and my bones are getting weaker.
I got Vit D deficiency too. Supplementing at the moment, will see how it goes when I get new blood test…
Thanks for the update. Your story is shockingly similar to mine. Also, I have been off for over two years and am now starting to have issues with my joints and/or bones. I am going to get a bone density test to determine if I too have osteoporosis.
I had that today. So I just learned about the bone loss.
I recommend going to an integrative doctor. They are more willing to do extensive blood work/bone scan. If you need recommendations in Chicago or Wisconsin let me know.
This was mentioned in my hair analysis test to stay away from products with calcium in them
I got bone profile blood test done, everything came up within range, but my jointa are fucked. Next week I will do MRI to see what ia hoing on there…
I have vit D deficiency too, started to taking them again today. Never measured my blood results after supplementing it. Hmm maybe i should?
@tisho1012 How was your bone density tests? All normal bro? (Also, you made a promise to measure your height of you, about have lost it ahah lol? Just curious. )
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Hi man 
My height turned out to be normal, no changes here. My blood test was for bone profile, everything is within a range, so I suppose my bones are fine, appart from the joints…
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Problem with many posters on this forum is their 2-Dimensional view for many vitamins and minerals supplementing plan. You can’t simply take a few isolated vitamins and minerals and VOILA! prime examples of this is over loading on vit D3 and Zinc thinking these two would boost low T.
ALL vitamins and minerals work in synergy. Taking too much of something leads to deficiency in something else. High Calcium (AKA Hypercalcemia) could be a problem with kidneys, parathyroid disorder, low vit. K, high vit. D, high Ca intake and/or low Mg.
You can’t simply dismiss Ca thinking this is the root cause. Godspeed
So your story is similar to main. I somehow recovered after several months, until a quite good extense. However, over the years, our condition have been worsening little by little…instead of improving or the cesation of all symptons. Therefore, time is absolutely not the cure. I am also 33 years old.
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Have you developed new side effects along these years? Or just worsening of the existing ones? I only had semen issues back then, after 4 years now i have a fucking bend in my penis and some other new issues. Its weird.