This is absolutely a fantastic move ! I think this will be great for the cause and in a paper that’s read by a lot of people .
I would consider being involved however My biggest concern is having this disease assigned to my identity in some way , which I wouldn’t want .
I know that sounds weird but I’m sure you get what I mean .
I wouldn’t want to be associated as the “PFS “ guy or ‘the guy with a dysfunctional cock’ etc etc by the public !